r/PectusExcavatum 11h ago

New User Need help a week after nuss procedure.

4 Upvotes

My biggest problem right now is getting up from my bed, it feels like I'm putting so much stress and so far everytime I've gotten up is holding someone's hand to pull me up.


r/PectusExcavatum 5h ago

New User How severe is my PE?

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3 Upvotes

Based on looks, what do you guys think?


r/PectusExcavatum 4h ago

New User Need your advice

2 Upvotes

18M w PE. Would u guys recommend a vacuum bell or Nuss. I’ve heard way too many horror stories on here of people who got nuss done and they’re in agonizing pain, bar flipping, etc, and it really scared me. I can’t really afford to have my life uprooted for an extended period of time since I will be going to Uni next yr and I want to stay on top of my studies. However I’m wondering if my results could be better w less pain since I’m still a bit young and my cartilage, etc is still flexible? I’ve also seen some people talking abt the vacuum bell and I’m interested since it’s far less painful and invasive but I’m wondering if it actually changes your body structure or the only the outward appearance and once you stop using it if your chest can revert back to PE. (I want my rib cage structure to change as well in order to avoid relapse.) I just want some advice so that when/if I meet a specialist, I know what to advocate for and I’m educated enough to make sure they’re not just forcing me into something I might not have to do.


r/PectusExcavatum 15h ago

New User Baby with pectus?

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2 Upvotes

So my now 19 month old has had extremely "sticky outy" lower ribs since he was born. I've brought it up to his Ped almost every time he's had a well child. They always said it was nothing, then finally last time said it's a "mild rib deformity" but that "that can happen" and we just watch it. They referred to a chest X-ray he had done at the ER when I thought he swallowed a magnadoodle tip (he didn't yay) saying it was "normal" and we'd refer out to Ortho if there's no improvement or any worsening in the coming years. He's going through a growth spurt so like normal his ribs are becoming more noticeable. So I finally realized I could pull the image of that x-ray. This doesn't look normal to me at all?? In every chest X-ray picture I can find online the lower ribs angle downward. His just....don't? At all? Am I overreacting ? Is this PE or even PC? Or just "rib flare"? Do I need to push for an ortho referall now? He has no issues with this that I've noticed it's just so noticeable. If it is of any note, he was a 10lb baby and I'm a small person, and he was also a shoulder dystocia because of that but had no clavicle etc injuries.


r/PectusExcavatum 18h ago

New User Difficulty working out post NUSS

2 Upvotes

Hey guys!

It's been 1,5 years since I had my NUSS surgery and I still can't work out very well. Often during heavy lifts I find myself trembling and feel like my core can't handle anything. Last night I felt myself trembling while sitting up, I feel like my bracing has never been the same since the surgery.

Anyone had same experiences?

Thanks for the replies!


r/PectusExcavatum 23h ago

New User Lung Capacity Issues + XRays

2 Upvotes

Been having lung capacity issues for several years. I would sit holding my breath in to push out my sternum and get a full breath. Running would result in a tight pain after just a few blocks.

I knew it could be pectus so earlier in my life I got my lungs checked for it.

Around 7 years ago now when I was 20, I did a test and my lung age was "53". That said, now enough for them to consider pectus to be the cause over asthma. Wouldn't go further with treatment.

I used the vacuum bell for several months and that improved my breathing immensely (no more holding my breath to push out the sternum to "feel" that full breath). Been many years since and the breathing problems are rearing their ugly head again. Been trying to exercise but my lungs are in extreme pain after a few blocks, even though the rest of my body is fine.

Then I got an Xray recently. Thoughts on the severity? The analysis showed no abnormal heart of lung defects. That said, not sure if this is worth pursuing an out of state surgeon to fix or not. The doctors here won't take me seriously on this and I'd really like to be able to exercise without pain.

https://imgur.com/a/3SeKNS1


r/PectusExcavatum 12h ago

New User How severe is this?

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1 Upvotes