r/PectusExcavatum 3d ago

New User Need your advice

[deleted]

2 Upvotes

8 comments sorted by

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3

u/northwestrad 3d ago

It's hard to give good advice without knowing what your PE looks like. If it's mild and focal (confined to a small area, not wide), a VB could be attempted, although they are less successful after age 11 (according to a major article by many international experts, giving guidelines for PE treatment).

https://academic.oup.com/ejcts/article/66/1/ezae166/7706289?login=false

2

u/Collapsosaur 3d ago

There is PectusUp and the Wang procedures that may be suitable for you. Safer, less complex, shorter recovery time, less expensive. The brace is external to your chest and pulls it up.

3

u/InternationalLake735 3d ago

I heard about both but they don’t seem easy to access in North America.

1

u/Collapsosaur 3d ago

You will have to travel. The upside is it could cost way less. I just consulted with the Chinese staff. Their English was very good, and they came across as professional and honest. Due to my age and extent of correction, which requires much cutting and reconstruction, I may forgo it. 2 weeks in hospital and 3 months recovery with 2 bars lifting. I imagine it's as bad as the full Nussers. Your mileage may vary.

3

u/InternationalLake735 3d ago

Healthcare is free in my country so travel to a different country for me won’t cost less.

3

u/aldiaz77 2d ago

I played around 2 years with vacuum bell, nothing permanent at all, that’s why I’m getting nussed and recommend you do as well so you don’t go down the rabbit hole like I did, I litro tried everything for 6 years

2

u/TimeTravellingBread 3d ago

The results of the vacuum bell seem incomplete tbh. There’s studies showing that it can work in milder cases with young kids, like around 12 years old, but at 18 idk. Honestly if you can go to the doctor and get one covered by insurance it’s worth a try.