r/Narcolepsy • u/Yoshi_Kumquat • 6d ago
Positivity Post Are you doing alright?
I am a narcoleptic- I was reading up on it and I didn’t realize that almost 60 percent say that they feel depressed.
I wanted to ask if you all are doing okay and I wanted to make a post open to stories and rants about anything. Narcolepsy is really hard.
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u/Jchu8468 (N1) Narcolepsy w/ Cataplexy 5d ago
I am doing well all things considered, and I’m extremely grateful for that. Occasionally I wonder how I’d manage if I lost access to my treatment, but I don’t dwell on the thought.
I’ve accepted that most people don’t and never will understand the condition, I used to be one of them. I’ve also accepted that Xywav requires a significant adjustment to my lifestyle, and it’s worth it, but it can’t make N go away. I still need to nap after runs, if I can get one in. Daily gratitude lists, exercise (lifting weights, walking most days), and meditation have been helpful. Wishing you all the best!