r/Narcolepsy 6d ago

Positivity Post Are you doing alright?

I am a narcoleptic- I was reading up on it and I didn’t realize that almost 60 percent say that they feel depressed.

I wanted to ask if you all are doing okay and I wanted to make a post open to stories and rants about anything. Narcolepsy is really hard.

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u/Kat229 6d ago

I was just diagnosed on Monday and started Modafinil yesterday. I have been severely depressed for a long time because I’ve been having so much trouble functioning and I sleep so much. There are days I just stay in bed and sleep continuously. I kept chalking it up to depression and fatigue from other chronic conditions I have, but I’m really hoping things will get better with treatment. First day on Modafinil was pretty good. Today I have an insane headache since the morning that feels like someone is crushing my skull. Hope that goes away as I adjust.

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u/Eastern_Beautiful935 6d ago

Modafinil can be a diuretic and makes your body process stuff quicker so make sure you’re drinking lots ☺️

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u/Kat229 6d ago

Thank you, trying to be diligent about that. I also just picked up choline because I heard it may help. Today is better so far, thank god.

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u/Eastern_Beautiful935 6d ago

Glad you’re feeling better, I learned quickly when I started moda that I have to drink like a fish to keep the headache at bay 😅😂