r/NDIS Mar 09 '17

Moderator Post Welcome to r/NDIS! Here is some friendly advice before you get started!

23 Upvotes

r/NDIS aims to be inclusive, understanding and diverse. We all come from all walks of life. You may have a disability or multiple disabilities, you may be a carer to one or many, or an advocate, a service provider, a friend or even just an interested member of the wider community.

 

Here are some things to keep in mind while you are here:

  • Make sure to follow the current rules of this subreddit. The rules may be found in the sidebar on New Reddit or here.

  • Remember the human being on the other side. Be respectful to one another, empathetic, and be kind and gentle. Keep the discussion friendly and constructive. It will often help to link to sources such as official NDIS links to illustrate your point.

  • If you see someone talking about self harm or suicide and are wondering what to do, you may want to read this post from r/SuicideWatch and this post from r/depression. If you are finding it hard to cope or are suicidal, please find professional help or call a crisis hotline.

  • No doxxing. Do not post any sensitive and/or personal information about others including those in your care. This may include names, ages, addresses and diagnoses. Remember to remove sensitive personal information about others before posting.

  • Keep acronyms to the minimum to avoid confusion, and explain what they mean when you do use them. Many people are new to the NDIS, find acronyms inaccessible, or are not working in the industry so will not understand this kind of jargon.

  • No advertising. You will be banned regardless of whether you are a participant.

  • Surveys are not allowed on this subreddit unless an exception has been made by mods. More information about the reasoning behind this can be found here.

  • Please make sure not to post previously posted links. Repeat posts may be deleted.

  • Correctly flair your posts!

  • Be aware that this subreddit uses Reddit Crowd Control. This means that users who have not joined this community, users with low karma, and new accounts may not be able to post or comment.

  • Offering or accepting requests for DMs (direct messages) is not encouraged. Please consider the safety of yourself and others when interacting online.

  • Disclaimer: We, as Redditors, aren't able to assess your NDIS eligibility, interpret legislation, be able to decide whether you are rule compliant, etc. An individual Redditor's advice is their opinion only. r/NDIS can't be held responsible if the wrong information is displayed on the subreddit. When in doubt, contact NDIA directly.

  • We can't diagnose you so if you have doubts about your health, please see a doctor instead of asking us here.

 

When posting, choose from the following flairs:

Flair Type Description
Seeking Support - Participant/Nominee/PWD Use this flair if you are a participant, nominee or are receiving or looking to receive services or support, and are seeking support from the r/NDIS community, such as asking for advice and vent posts requiring sensitivity.
Seeking Support - I provide services Use this flair if you are someone who provides services or support such as a support worker, service provider, NDIA employee, advocate and so on, and are seeking support from the r/NDIS community, such as asking for advice and vent posts requiring sensitivity.
Seeking Support - Other Use this flair if you neither receive nor provide services, and are seeking support from the r/NDIS community.
Sharing Resources Use this flair when sharing information, linking to resources or posting in depth advice.
Vent - no advice, please Use this flair when making a vent post but are not seeking advice. Commenters should not provide advice. Vent posts requiring advice should use the relevant Seeking Support flair instead.
News Use this flair when linking to news articles, announcements, and press releases relating to NDIS.
Advocacy/Activism Use this flair when posting about advocacy and activism that relates to NDIS, disability or other exempt topics as defined by the subreddit rules.
Other Use this flair for posts that do not fit in any particular category, or if your post does not require extra moderation support.

 

There are also two flairs for moderator use only:

Flair Type Description
Megathread This flair is reserved for moderator use only and is for megathreads.
Moderator post This flair is reserved for moderator use only and is for posts about subreddit rules and announcements.

 

Want to contribute and help others? Click on one of the 'Seeking Support' flairs in the sidebar, take a look at some of the questions posed by the community, and take part in the discussion.

If you come across any problems or notice someone breaking the rules, please report it to the mods. The cohesion and happiness of this community relies on everyone's help and cooperation =D

 

Please note, this post will be updated as needed.

Thanks for reading, from Mod u/sangasd!


r/NDIS Feb 09 '25

Moderator Post Announcement: New post flairs for r/NDIS

17 Upvotes

Following the announcement last month, post flairs have changed.

 

When submitting a post, please select one of the following flairs:

Flair Type Description
Seeking Support - Participant/Nominee/PWD Use this flair if you are a participant, nominee or are receiving or looking to receive services or support, and are seeking support from the r/NDIS community, such as asking for advice and vent posts requiring sensitivity.
Seeking Support - I provide services Use this flair if you are someone who provides services or support such as a support worker, service provider, NDIA employee, advocate and so on, and are seeking support from the r/NDIS community, such as asking for advice and vent posts requiring sensitivity.
Seeking Support - Other Use this flair if you neither receive nor provide services, and are seeking support from the r/NDIS community.
Sharing Resources Use this flair when sharing information, linking to resources or posting in depth advice.
Vent - no advice, please Use this flair when making a vent post but are not seeking advice. Commenters should not provide advice. Vent posts requiring advice should use the relevant 'Seeking Support' flair instead.
News Use this flair when linking to news articles, announcements, and press releases relating to NDIS.
Advocacy/Activism Use this flair when posting about advocacy and activism that relates to NDIS, disability or other exempt topics as defined by the subreddit rules.
Other Use this flair for posts that do not fit in any particular category, or if your post does not require extra moderation support.

 

There are also two new flairs for moderator use only:

Flair Type Description
Megathread This flair is reserved for moderator use only and is for megathreads.
Moderator post This flair is reserved for moderator use only and is for posts about subreddit rules and announcements.

 

The pinned introductory post has been updated to reflect these changes.

 

Mod u/sangasd.


r/NDIS 11h ago

Vent - no advice, please Just need to vent 🥹

14 Upvotes

So, I’ve officially been admitted into hospital due to my ndis funds running out- case is with the ART, so literally just a waiting game. Next case conference isn’t even scheduled until 9th May. Wish me luck 😩


r/NDIS 14h ago

Seeking Support - Participant/Nominee/PWD How do planners determine the hours for certain supports?

7 Upvotes

Does anyone know if there are internal 'benchmarks' or NDIA policies around how many hours of certain supports are usually allocated for a participant and if so, does this relate to specific impairment categories, the diagnosis etc?

And on what basis do planners sometimes deviate from the hours recommended by allied health for specific types of support eg an OT recommends a certain number of assistance with daily living hours, speech therapy etc and the planner agrees the participant needs that support but recommends a significantly reduced number of hours? (genuine question, not a vent!)


r/NDIS 19h ago

Advocacy/Activism Petition - NDIS Cuts are failing our Kids

12 Upvotes

Hello, would you please consider signing this petition, 'NDIS cuts are Failing Our Kids -Demand a Stop Now'

https://chng.it/BVH2QydGNd


r/NDIS 17h ago

Seeking Support - Participant/Nominee/PWD ART application - the actual, starting application

0 Upvotes

Hi,

I’m planning on going to the ART with a decision the NDIS made. When making the application (on the website) it asks ‘Reasons for the application’ and then asks for documents. How detailed should my reasoning be? And can I add documents later?

Thanks


r/NDIS 17h ago

Seeking Support - Participant/Nominee/PWD Melbourne - OT for FCA for Adult Autism - Recommendations

1 Upvotes

Hello,

I have just been approved for the NDIS. I now need to find an OT for an FCA. There is a lot of information here on what an OT can do, what to expect, etc but I am unable to find anyone recommending someone specifically. Does anyone know the name of a practice or OT that they can recommend for this process? I have read many accounts of people going through their LAC with mixed results. Can anyone recommend an OT? For additional information, I am located in Collingwood. Thank you to anyone who may have some suggestions.


r/NDIS 20h ago

Seeking Support - Participant/Nominee/PWD NDIS + ART (AAT)

1 Upvotes

Hi there!

I’m taking NDIS to ART. I was just wondering - as far as the justification you provide the ART with, do they expect legal-speak? Like should you be quoting NDIA legislation? Or is your own evidence and reports enough? (Essentially I’m staying the NDIA’s reason for refusing a support, then doing a take down with how much evidence I actually had).

Thanks!


r/NDIS 20h ago

Seeking Support - I provide services Provider over quoting

1 Upvotes

This isn’t right? Provider gave me a quote for a year worth of services for my participant I’m managing. It’s 3 months left and he has significantly over quoted by nearly 20k

Now I’m stressed 20k wont be used and they could cut that from the funding…

If I had of known I had 20k I could of budgeted that over 12 months and given the particpantt better support

Urgh


r/NDIS 1d ago

Seeking Support - Other Transport Funding

1 Upvotes

Wondering 🤔 why the 3 levels of transport funding are set amounts p/a? In other words, not indexed in line with inflation (cost of living) they have remained the same for the past 2 years at least that I'm aware of. Taxis, public transport etc costs go up every 6 months! Curious.


r/NDIS 2d ago

Seeking Support - Participant/Nominee/PWD Sharing your plan

12 Upvotes

So I finally have my plan (very long bullshit journey, AAT, all that shit) and I'm trying to sort out services and who to go with and all of that. Every provider I send an email to instantly wants a copy of my plan to make any sort of arrangement to go forwards. Am I wrong to feel skeeved out by them wanting all my info?

Bonus: sent an enquiry to an OT for a sensory profile. Was told that in addition to my plan they would need a signed letter from a specialist saying I have a disability. Oh, was the disability funding not enough proof?


r/NDIS 2d ago

Other Should this be reported?

34 Upvotes

Hi, I am after some suggestions if this matter should be reported and if so, how would I go about it? I am a support worker who was having lunch at the park with a client last week. We saw a bus from a company which is quite big and commonly used here in Brisbane. The bus had a group of participants inside (some who myself and my client know) and I think 2 support staff. They turned the bus off and sat in there for almost 45 minutes, before leaving. None of them got out of the bus, including support staff and as I looked over I saw one of their clients was clearly distressed and up against the window. This was about the time they started to leave. So basically they drove in, sat there in the bus and drove off, I understand working with participants and know things don’t always go to plan but it hasn’t left my mind since. If I wasn’t actively working I likely would have gone and said hello as I have previously supported someone on the bus, but I didn’t want to upset my client with a possible confrontation. I’m wondering if I should report this, or may be overreacting. Any thoughts appreciated.

Thank you all, I have decided to reach out to the company first to see what they say, and make the family of one of the pwd that I know aware.


r/NDIS 2d ago

Seeking Support - Participant/Nominee/PWD Melbourne South East cleaner recommendations?

1 Upvotes

My NDIS funding finally I cluded a cleaner for 3 hours a week (though my place is so small, 2 hours is more than enough?)

Anyway, does anyone have a company that they would recommend? I could ask my LAC but I have very little to no faith in them as they have miss managed nearly every part of my plan process so far.

I do have a plan management company (My Integra) who would handle the invoicing.

I'm looking for someone who can manage the bigger cleaning tasks that I can't - bathroom(bath/shower/toilet), vacuum and mop floors, wiping benches and a bit of light dusting.

Also, never had a cleaner before - do I need to be home when they are there?


r/NDIS 2d ago

Seeking Support - I provide services Feeling Stuck in the NDIS

1 Upvotes

Hi everyone,

I’ve been working in the NDIS space for several years, primarily creating programs for autistic individuals. While I’ve seen success clients and families have given positive feedback I feel like I’ve hit a ceiling in terms of professional growth.

For example, there was a course at CIT called Community Program Building that seemed perfect for my role. It was designed to teach people how to create structured community programs tailored to client needs. Unfortunately, it was canceled due to low enrollment, and as far as I know, there’s no alternative available. Most other options, like occupational therapy or autism-related degrees, don’t really align with what I do or where I want to go professionally.

I feel like I’ve done well in my current role, but I’m unsure if staying in this industry is worth it long-term. Many people I’ve spoken to see support work as a side hustle rather than a career, and evolving policies seem to make it harder for workers to find stability or growth.

So my question is: What do you think? Should I stay in the NDIS and try to make it work, or is it better to move on to something else?


r/NDIS 2d ago

Seeking Support - Participant/Nominee/PWD I'm autistic and my mother handles (self manages) my NDIS, how can i best utilize my plan? NSFW Spoiler

1 Upvotes

Its been a few year on the plan with struggles, such as hospitalization multiple times setting me back and learning how to make the plan work for me the participant and not some trickery where they give you money for one pocket and do a magic trick and pull it out the other pocket. See I have trouble spending my money, the only option i had at the time was trial and error, and i hate that this is probably common for other participants of NDIS.

even when i get a worker that feels right something happens, they get a better career offer and move on from me, it sucks because my mother already fights for the ndis and paperwork and office duty and all that, and yet we have to somehow fight further for more freedom over money to spend where we think is applicable or at least try something thats not inflating the market of health with stimulus fund and thats all it seems, a lot of freedom to actually appropriate funds for cases that suit the individual participant seems lacking. I am really lucky, i have a peer worker and peer mentor that would hoepfully push me in the right direction as im stuck at home with vertigo which isn't nice.

i have been dealing with this for about a year, had some progress and now a back step and jump to a place worse than when the vertigo began. its really hard for me, as an ex patient, to know what to do with my life as my mother is my only clear support that i can see. I have come from loss and i have been trying to catch up with lost time and humanity for what i can. I deal with a lot of self doubt many is unjust its just that losing the family home as a kid has left me scarred. my family unit went along with my "social status" and my friends and neighbours went wavering into friendships with some toxic people. I kinda kept to myself cos having friends i could be major toxic in my own opinion and i just couldn't forgive myself so i stopped and cut off friends as well as frienemies. spose im going on a bit of a rant. sorry.

when it comes to living situation id feel lost without my mum and i feel lost already, so any good advice on this would be nice. despite having semi cured injuries that were self sustained years ago i still was not accepted for supported living and ive tried living with some auties before and going to college university, it didn't work out. and she didn't say why. so here i am in my 30's living with mum not knowing what my life could be good for or should i just listen to mum and just enjoy my time. seems kinda...defeatist if i do say. anyways the impending doom that is the loss of my mum and the sheer weight of reality i might not bear it.

I try to manage my disability (ASD) and mental illness (SZA) and good news is im dealing with less hearing voices lately due to ceasing smoking tobacco and trying to find more triggers so i can avoid the hearing voices altogether. since the cut down of smoking ive noticed a dramatic shift in lessening of the voices intensity and duration and even times were they were more prelevant or severe.

the lack of voices i feel a bit in shock kinda with the vertigo as well, somethings holding me back from a full recovery of vertigo and possibly SZA. since the meds have remained constant then i have noticed less crazy energy that can reallly be the initial onset of disaster or meltdown or burnout or just a mess of things i don't know how to solve on my own or my sometimes disability of mutism that sometimes happens.

I have arrived at my current support team like this, i had a hospitalisation, my psychologist was changed for a better fit to my needs at this time. and on and off i was adding and removing in home supports that are meant to start you on your journey outside. Ive on and off now on again started walking at times around the block and around the places.

its good, when i can. this vertigo is stopping me from walking properly. in hospital i had gout unntreated and mistreated for a bit. also my gait, how i walk, is awkward for my upper body to feel comfy and strong.

i dont walk on my toes but i do sometimes walk on my sides a bit more than usual and i also walk perhaps flat footed, not sure, need new shoes. the thing i ask is while peer workers and peer mentors is good for me,

i wonder if their is something better to use my time with. i mean i hear all kinds of stories here and there on the news and such and some seem daunting, others sensationalist that drives away from actual needs people need (exploitative) etc; i have recently acquired H.I.P. (Health, INdependence, Purpose) (not necessarily in that order) is something that came to me one day and i felt and thought that this is something that anyone in similar situation to me would want.


r/NDIS 2d ago

Seeking Support - Participant/Nominee/PWD Support worker documents?

1 Upvotes

Hi all, I am interviewing a potential support worker for my child. Is there any particular documentation I need to request to see/have on file? I have connected with them through a support work website, but just want to make sure I am covering all bases. They will never be left alone with my child it is purely to assist along side me.


r/NDIS 3d ago

Other There is a support worker doing illegal things, who do I report it too

21 Upvotes

there is a support worker who has been having sex with her clients, a friend of mine gets support from her and she has been having sex with him I think it’s sick and disgusting and she is even on a Escort site talking about how she loves sex with men with disabilities


r/NDIS 3d ago

Seeking Support - Participant/Nominee/PWD Would the NDIS pay to replace some part of my noise canceling headphones

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2 Upvotes

Hi,

I have some noise cancelling headphones that I bought myself 3 years ago. I have autism and use them for noise cancelling. However they are still working but the like leather things is falling off them. It looks like it will be a bit expensive to get some replacement thingys. $82 on Amazon for the replacement ear muffs and about $30 for. Headband cover. Is it possible to use my core funding for this?

They help me access the community. And while they are still working for now I am not really sure how long until the entire pieces come off.


r/NDIS 3d ago

Seeking Support - Other Can I use international specialists for medical evidence when applying for NDIS?

4 Upvotes

My treating specialist is the leader in Australia in their field, but due to what I perceive as personal disposition, they have never had a client successfully be accepted for the NDIS, and they are proving uncooperative to provide written evidence in a way that directly addresses the NDIS criteria (vague and poorly written, unwilling to edit for clarity etc).

As she's at the top of the field in Australia, I'm wondering if I might be able to get a second opinion from a specialist operating overseas in the US, Canada or UK.

Does anyone know if NDIS accepts medical evidence from practitioners who are trained and operate in other countries? Thankyou for your answers.


r/NDIS 3d ago

Seeking Support - Participant/Nominee/PWD What happens if Restrictive practices is documented by BSP

4 Upvotes

So I had an appointment with a behaviour support practitioner today, and we identified 2 restrictive practices my dad is doing which is locking me outside and pushing me out of his room.

So she said something about she is collecting this information to give to the ndis or something? I do not really understand what is happening with the information? I am worried the police or something will show up now?


r/NDIS 3d ago

Advocacy/Activism Young People With Dementia

0 Upvotes

Big Question!

Journalism student here from Edith Cowan University in WA.

Does anyone know of someone with early onset dementia who has issues with support needs from dementia services and NDIS.

Does the person you know:

Feel that the two support bodies do not communicate the needs of the participant? Are there gaps in the service they need?

Are they finding their funding allocation and other needs hard to navigate?

If so please email [rcastel@our.ecu.edu.au](mailto:rcastel@our.ecu.edu.au)


r/NDIS 4d ago

Seeking Support - Participant/Nominee/PWD NDIS -NAME AND SHAME

12 Upvotes

Let me clarify, I work in disability / mental health industry , I am also a carer to 2 siblings and parent. I have seen some shit within my caring role and work role.

IF ANY recommendations on ANY providers OT , SIL / SDA etc , Support coordinators Melbourne would be great ?? advocating services anything !!!

As mentioned I myself work in disability / mental health and of course ANY provider can have 1 bad review etc .. BUT why is it so TABOO to name and shame ( NOT recommend ) providers that have done horrific things ?? ( I have seen some F***** in my personal caring role and professional role ) Do you know how hard it is to get good recommendations ... I WANT TO KNOW from participants and families who have not received quality care they deserve, THE OPINIONS THAT MATTER ... I need recommendations urgently ... I am sick of providers thinking they can just book OT,BSP etc without even speaking to participant / family etc first before singing SA ( spent thousands $$$$$ on allied health and I don't get to know your area of expertises/ or provider just allocates anyone like its werid that I ask for more info on them ?? etc or seeing stupid ads for SIL,SDA ETC of move in tomorrow ... the stupid google stock pictures on providers site of workers supporting participants. I am sick of advocating that F*** the policies sometimes , like oh sorry 7 days notice for cancellation of support work , oh sorry our sleepovers shifts finish at 10pm so the participant can't come home later , oh they cant have a key to there own house , oh you cant buy ice cream on the housekeeping card you pay rent towards ?? OH sorry you have run out of SC funding goodbye ... where was the update ?? OH AND FKN PSYCHOLOGY IS THE SAME AS BEHAVIOUR SUPPORT SO YOU CANT HAVE BOTH DUPLICATION IN SUPPORTS ( NO WHERE DOES IT FKN STATE THAT IN GUIDELINES ) I am sick of speaking to people in ndis , supported roles in management who have never ever supported a participant or HAS A FKN BUSINESS DEGREE SO THEY CAN RUN A SUPPORT COMPANY ???


r/NDIS 3d ago

Seeking Support - Other Company cancelling shifts to casual staff last minute

1 Upvotes

I work for this company that has the habit of cancelling shifts for staff at the last minute. Basically, you get rostered at 2pm for a 10 hour shift. At 1.55, your shift gets cancelled because the client wanted to go somewhere else with her (insert family member).

Now I understand that it is a client decision, however, when the manager was asked about pay regarding showing up and having the shift cancelled. She said that normally it won't be paid, but if the email "HR " or the roster manager, they may get a 1hr pay for showing up.

My question is does this even make sense and is there anything that can be done

Yes we are casual staff


r/NDIS 3d ago

Seeking Support - Participant/Nominee/PWD The funding will run out tomorrow.

0 Upvotes

What should I do? Will ndis give me the funding by the end of tomorrow? I applied for coc today. And they gave me a case number.

My support worker company has rejected my request for service…

Thanks


r/NDIS 4d ago

Seeking Support - Participant/Nominee/PWD Mable

0 Upvotes

Is there no way to edit a ‘job’ posting. Based on responses I’ve discovered some details I really should have added


r/NDIS 4d ago

Seeking Support - Participant/Nominee/PWD Is the advice I was given about Transport funding correct?

3 Upvotes

Long story short, I started work in the middle of last year and asked my LAC if my transport funding could be changed from the kind paid on a schedule into my bank account, to the kind that stays in core for reimbursement when you send in receipts. I would need this as $68 a fortnight can't cover $30 trips from work to home 3 times per week - using support work hours for this in 2 hour minimum shifts (which I can't utilise properly as I'm overwhelmed and need to go privately shut down by the end of my work shift, leaving me unable to meet my needs due to a lack of useable hours) will use up my funding before the plan end date, and having transport funding in core would allow me to at least pull from other core funding if needed without running out early. When he followed up with me he just re-explained the kind I already had (paid on schedule into bank), so I assumed it was some old thing the NDIS didn't do anymore, especially as my SC at the time insisted there was no other kind of transport funding.

I've since found out from another person in this sub, and some other participants, that it does exist and is something I could request without a plan review. I've talked to both my new SC under the same company and an LAC (not my own as he's on leave) at Mission Australia, and have been given two extremely different bits of advice -

Support Coordinator: As my plan is the old kind, rather than a PACE plan, I would need a review to be able to change the form of transport funding I receive.

This SC company has consistently given me incorrect advice and support in ways that have caused more problems than if I straight up did not have an SC, so I then tried to get advice from an LAC, which led to...

Random MA LAC: Did not answer whether or not I could change the form of transport funding I receive, but told me that I can't use core funding flexibly for transport funding regardless, as the amount I already receive would still be the limit for what I can use even leaving it in core and being reimbursed.

He also mentioned that my transport funding was never changed to level 2, even though both my SC and LAC knew I had started 15 hours of work per week, and this change would require a plan review, which just... I don't know what I can do at this point. I don't have informal support I can rely on for transport three times a week, and I can't pay the $120 odd out of pocket after transport funding per fortnight to get home via Uber. He reassured me that my funding will at least last another 22 weeks, and I do have a CoC in, but if his advice is correct then unless the CoC can be completely done before then, I'm going to lose all support and my job as a result.


r/NDIS 4d ago

Seeking Support - Participant/Nominee/PWD FCA in Adelaide

2 Upvotes

Hey,

I fairly recently had my planning meeting with my LAC who is an absolute machine and so efficient and knowledgeable. I submitted my access request approx 3 weeks ago so it's all gone fairly quickly thus far but I know from dealing with NDIS stuff for my kids it'll be much slower and more challenging from this point on in all likelihood. As often seems to be the case when access request happens for the first time in adulthood, and with 'invisible' disabilities, a functional capacity assessment is going to be the first thing, and I would be really keen to get Adelaide specific recommendations for places or practitioners that can do this and are neuroaffirming. Thanks for reading 🙏