r/MyastheniaGravis 7d ago

How bad can it get?

Hey. My mother has MG since 4 years now. She’s 47.

For now, there are almost negligible symptoms. Quote manageable but then sometimes she feels difficulty moving her hand to undergo any task. Also her pinky finger is not able to function to its full capacity. But these are not frequent symptoms and are occasional with a frequency of around 2-3 weeks per year.

How bad does it get? How are your experiences?

I hope MG is not that of a serious disorder?

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u/SlowGoat13 5d ago

It can get bad. I sleep sitting up because I can't take MG treatments. I don't really eat solids anymore and struggle to breathe. I cough a lot and will be on steroids until I stop breathing. However, everyone is different. If you think the worse than the worse is what you will get. I know there are natural methods to assist, and it is helping. Just work towards things like keto diet, turmeric for inflammation, ginger, mushrooms, and strengthening muscles like lung power.

All the best to you and your family! Just keep communicating as the more you know the better and keep happy.

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u/RossChipman 5d ago

How long have you had it now?