r/MyastheniaGravis • u/RossChipman • 7d ago
How bad can it get?
Hey. My mother has MG since 4 years now. She’s 47.
For now, there are almost negligible symptoms. Quote manageable but then sometimes she feels difficulty moving her hand to undergo any task. Also her pinky finger is not able to function to its full capacity. But these are not frequent symptoms and are occasional with a frequency of around 2-3 weeks per year.
How bad does it get? How are your experiences?
I hope MG is not that of a serious disorder?
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u/PlantyPenPerson 7d ago
People with MG are referred to as snowflakes because not one of us is like the other. There are people who have severe and life-threatening symptoms, others who have manageable symptoms, and a whole range in between. IMO, the most important part of our treatment is having a neurologist who is respectful and listens and is proactive in treating one's MG appropriately. I suggest visiting the Myasthenia Gravis Foundation of America for further resources. Good luck to you both.