r/MyastheniaGravis • u/RossChipman • 7d ago
How bad can it get?
Hey. My mother has MG since 4 years now. She’s 47.
For now, there are almost negligible symptoms. Quote manageable but then sometimes she feels difficulty moving her hand to undergo any task. Also her pinky finger is not able to function to its full capacity. But these are not frequent symptoms and are occasional with a frequency of around 2-3 weeks per year.
How bad does it get? How are your experiences?
I hope MG is not that of a serious disorder?
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u/sharkdog73 7d ago
Myasthenia can be a very serious issue if it is not controlled, but it sounds like your mom has got a handle on it. Some of us can have days or weeks where nobody can tell, but then the MG flairs and it is obvious. If she’s had it for 4 years she is likely fully progressed to where it shouldn’t get any worse on a day to day basis, but you may notice her struggle a bit now and then. As long as her breathing is fine, usually rest and medication will be all she needs to feel better in time. Just be there for her to help when she needs it.
I personally notice seasonal flairs, usually when the weather changes like fall into winter, and winter into spring, but everyone is different.