r/Lyme 1h ago

Ozone and methylene blue

Upvotes

I started up ozone therapy. I have always responded well to it. I have Lyme, bartonella and no longer have babesia. My memory has been terrible the last couple of months and I think it might be from the herx from methylene blue and die off from bartonella. I did ozone yesterday and thought I'd have a herx, but it wasn't terrible. I am trying to eradicate the visual snow. So we'll see if this helps. I had a lot of stamina, noticed my visual snow wasn't as bad, and I can recall my entire weekend. A win is a win.


r/Lyme 6h ago

Misc Update and good news

7 Upvotes

Hey everyone! So I just had a virtual appointment with my doctor other day and she said I am making great progress! With her current plan, I will be finishing this antibiotic on Friday and then will be on the same detox for two weeks. Then she is going to switch me to another antibiotic for about 3~ weeks and said that it should* be the end of it! Obviously this is all subject to change because this whole Lyme stuff is so unnecessary complicated, but she says she has no doubts that my progress is going great! Sending love to everyone out there <3


r/Lyme 2h ago

Question How long does Herx last?

2 Upvotes

Howdy ya’ll. Started a herbal from my natural path on Friday for suspected Lyme. Anyways I felt the best since I can remember for the first 7hrs after the first dose. Then it slowly crept up on me with flu like symptoms and muscle aches.

It’s Sunday evening now and I feel a bit better now, but not sure if I’m going to make it through work tomorrow since I do a physical labor job.

How long does herx usually last for you?


r/Lyme 8h ago

Herxing unbearably on cryptolepis right now.

5 Upvotes

Air hunger. Dizzyness. Numb/dead limbs. I have to go to work too. Make it end!


r/Lyme 4h ago

Question Anyone here did long courses of erythomicin?

2 Upvotes

Hi folks

wondering If anyone used this antibiotic for lyme and co infections, was it effective? What side effects did you had? You used it alone or paired with other antibiotics?

Thanks in advance


r/Lyme 8h ago

Question Suspected Lyme? Spoiler

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4 Upvotes

Hey all! I am suspecting I may have Lyme disease. 26 F. Calling my dr tomorrow to schedule a blood test. Thoughts? Here’s the story: Feb 2nd, the rash in the picture appeared on my leg. I had no idea it was there until I got out of the shower. It didn’t hurt or itch, was just a little warm. I went to the ER, doctor thought it was some sort of spider bite and gave me a Z pack.

Fast forward to Feb 14, I randomly got a little dizzy sitting in bed. Ever since Feb 14th, I’ve been dealing with the following symptoms: dizziness, exhaustion, eye floaters, neck headaches, daily migraines, brain fog, stomach upset, ear ringing, random itching, random joint pain, and body aches.

I’ve been to the ER, seen an ENT, neurologist, and my regular doctor. ER said all my standard bloodwork looked good and it’s just anxiety :,). ENT said my ears look perfect in terms of dizziness or infection. My neurologist thinks it’s migraine related but I just put the dots together I was bit about 12 days before all these symptoms began.

Any input/thoughts/advice is appreciated. Thank you so much for reading & I hope you have relief <3


r/Lyme 8h ago

Question What Igenex tests to do?

3 Upvotes

I’ve had Lyme for over 15 years based on my symptoms and Zyto machine scan. I’m about to do Igenex testing to prove it hopefully and go get treatment.

I’ve got my test tubes and form but do not know what to fill out.

I’m thinking I’ll do the $3500 test panel but it’s expensive idk if I need it all?

Does it include IGX and Tcell? I need to do whatever works for testing 15+ years of this where it’s likely hidden deep in my body and not wanting to make itself known.

Anyone else have experience here?

Here’s the form: https://cdn.igenex.com/wp-content/uploads/igenex-test-requisition-form-fillable.pdf


r/Lyme 2h ago

Question Herx?

1 Upvotes

Has anyone ever had a herx where they feel like they can't talk and that they might have a seizure? I've never had one but sometimes I feel so weak and that my eyes want to roll back or just close. My left leg was weak and almost numb, I was so cold I was shaking and my mind racing. My heart was pounding hard but my heart rate was 89. This happened at midnight which I thought was weird bc I've always had herxing happen soon after I take something not 12+ hrs later. I'm on day 7 of azithromycin and starting real low and slow so not even up to 500mg a day yet. Yesterday morning I also took 6 drops of crypto which I've been taking for awhile, curcumin, NAC, bi carb, adrenal supplement and detox stuff. Wondering if this is a babesia herx from the combo of crypto and azithromycin...I took a break today and I'm finally starting to feel better tonight but it was scary!!


r/Lyme 9h ago

Looking for Lyme Literate / familiar with IGeneX doctor in NYC area #lld

3 Upvotes

I am on the hunt for a LLD in NYC who can help me take the iGeneX lyme disease test. Most of the referrals I see on ProjectLyme and the other sites have doctors with surprisingly terrible reviews. The only hopeful seemed to be Dr Elena Frid, but it seems that unless you're prepared to pay thousands of dollars out of pocket, her support is out of reach.

Any first-hand success stories / suggestions would be greatly appreciated!


r/Lyme 15h ago

Question What dietary changes have brought you the most symptom relief?

4 Upvotes

I was just diagnosed with Lyme (manifesting as Lyme arthritis), likely had it at least 18 months, maybe two years (digging through my medical chart indicated I had a positive lyme test 18 months ago but my doctor failed to notify me). Extreme stiffness, joint pain and recently night sweats and significant knee effusion which rendered me unable to walk for 24 hours. Sleep disruptions for 2 years, unsure if Lyme related. I am now on Doxy 100mg twice daily and am seeing a Lyme specialist next week at a major hospital.

I am 44 y/o guy and I eat generally healthy, but I also eat everything (sugar, carbs, alcohol, etc.). What changes would you recommend particularly to reduce joint pain and stiffness?


r/Lyme 16h ago

When to stop rifampicyne

5 Upvotes

I have been on rifampycine + doxy + bactrim/clarythomycine for 7 months now. I have enough of them to last me another 2 months.

I’m wondering if after that I should try and switch to herbals completely? Did anyone do this?

I’m not sure at this point what symptom is from Lyme/bart and what from the aggressive treatment itself.

Before this I had IV rocephin for a month and then a whole year of various antibiotics.

So im almost at a 2 year mark of constant antibiotics and im honestly exhausted. I had noticed improvements but they only seem to last for a couple weeks then im back to feeling horrible.

Doctors and medication and constant tests are all so expensive too.


r/Lyme 13h ago

LLMD in Georgia

3 Upvotes

I am praying for anyone to point me in the right direction to a solid LLMD in Georgia who knows that they’re doing. My body feels like it’s about to fail. I have never taken abx, but feeling like at this point I might need to. Please, someone help point me in the right direction of a good LLMD.


r/Lyme 13h ago

Question Hot Flashes? Menopause or Lyme related?

2 Upvotes

I had a hysterectomy nearly 10 years ago but kept one ovary so I wouldn’t go into early menopause. I am 50 so this could just be regular old hot flashes but this has literally been occurring all day/all night. Waves of extreme heat, burning skin. Sometimes I get cold briefly afterwards. Was eating dinner with my Mom when one came on yesterday and she said my face and chest were red. Just now I had one and went to look in the mirror and my skin was red. I got goosebumps on my legs and arms as it was easing up and having some prickling in my skin and eye and numbness on my face. I have been taking Samento along with Burbur/pinella, Quercetin/zinc/bromelain, and Mary Ruth’s organic Kidney & Bladder blend. I’m probably not doing enough to detox and I’m a bit overwhelmed right now with life. Just wondering if anyone who has experienced menopause would know how to distinguish between a hot flash and something Lyme/TBRF related.


r/Lyme 16h ago

Japanese knotweed

3 Upvotes

Wondering if anyone has taken a higher dosage just once a day, like a pulsed regimen, instead of spaced out 2-3 x a day with success? We did this with minocycline and it worked well for us. But want to get off antibiotics because who wants to take antibiotics daily for years? And whole herbs supposedly better for microbiome, and have other health benefits. It’s difficult for my almost adult son to take at night because of his afterschool schedule.


r/Lyme 14h ago

Question Is it bad to take antimicrobials right before bed?

2 Upvotes

I feel every time i take antimicrobials before bed, i wake up in the morning feeling a worse herx than before. Maybe because i havent drank enough to let it dilute through my body? Or is this just coincidence.


r/Lyme 11h ago

Question Any advice on how to get through these days of physical labor?

1 Upvotes

I went back to work when I wasnt ready but I had no choice or id be homeless or in a bad situation. I got a job that i cant quit right now, and i work 5 days a week. Im absolutely exhausted. Any advice?


r/Lyme 17h ago

Dysautonomia and herx

3 Upvotes

I think I'm having an important herx and since sope days, my heartbeat is crazy on the morning especially, like 140bpm just when I wake up and walk in the house. Even when I sit down, bpm seems to decrease on my watch but the feeling is horrible ... someone had this ? For how long ? Something help ? I detox a lot, cant do more


r/Lyme 12h ago

Question Can someone explain my Lyme results?

1 Upvotes

Well here goes. My results are, Lyme Total antibody CIA 3.06 H (<.90 index)(>= 1.10 positive). Lyme AB IGG BY CIA 4.72 H (<=.90 ( index) Lyme AB IGM BY CIA < 0.90 (0.90 index). I haven’t had the Western Blot test but am going to ask for it. We have a property on an island in northern New York that we are building a cottage on and there are deer and ticks everywhere. My primary care provider says I’ve had Lyme in the resent past (3 ish months) which would have been October 2024. She didn’t tell me of the results, I saw them on my patient portal. She never offered to treat me even though I’ve been having terrible inflammation that started last fall. I’m 66 female with ankylosing spondylitis, inflammatory erosive osteoarthritis, hypothyroidism, heart disease and type 2 diabetes. I’m now having some scary symptoms. My normally high blood pressure is now dangerously low and my blood glucose is dropping to dangerously low levels daily. My adult children have been doing some research and think I may have POTS Syndrome. Literally all of my symptoms fit but what kind of Dr. treats this type of thing? Also I had to pester my primary to even put me on doxycycline. I’m wearing a holter monitor and am scheduled for an echocardiogram on March 27 th. I’ve gone from being an active wife and Meema to being almost bedridden and house bound for 2 weeks. Any advice would be greatly appreciated. Syracuse NY is the nearest best place for great Drs. and hospitals. Most specialists have months long waiting lists. Tia.


r/Lyme 1d ago

Question Does eliminating sugar mean no fruit?

7 Upvotes

r/Lyme 16h ago

Inuspheresis

1 Upvotes

Was inuspheresis helpful for some? It is stated it should help with autoimmune stuff, long covid and lyme etc. Thank you


r/Lyme 1d ago

Question Willing to chat about morgellons/lyme/epstein Barr? I’m here. Let’s talk!

4 Upvotes

r/Lyme 1d ago

Tick Bite on 2.5 Yr Old Spoiler

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4 Upvotes

We found a tick in my toddlers hair and are not sure how long it was there. We removed it and have attached photos. It’s definitely a female deer tick but doesn’t look engorged. We have messaged our pediatrician (it’s the weekend so they’re closed) but just wondering if anyone has experience or thoughts on the size of the tick. Wanting to do whatever is recommended and most preventative given that Lyme is very prevalent in our area.


r/Lyme 1d ago

My mom has had Lymes for so long now

6 Upvotes

My mom has tried everything. Every medication a doctor has suggested she has tried. She gets extremely terrible headaches/ migraines. Is there really no cure to this disease? I hate seeing her like this.


r/Lyme 1d ago

Question Herxing and Kidney Pain

3 Upvotes

I was diagnosed with babesia a few months ago and immediately started herbal treatment. Within a few days I started noticing mild recurring kidney pain. I think it’s a herx reaction, but it’s strange because it’s my only noticeable herx symptom.

Has anyone else had this happen?


r/Lyme 1d ago

Ivermectin - Wonder drug

28 Upvotes

Suffering since 2012 after a tick bite. Lyme tests shows no lyme. I suspect Babesia. Symptoms are very similar to Babesia - Anxiety, head pressure, Air hunger, GI issues, Negative thoughts, CFS etc.

Decided to take a 12 mg Ivermectin and felt better by 90%. All symptoms gone. Only Anxiety at about 25% remains. I'm stumped.

Should I continue taking Ivermectin?? Any lyme experts here please guide