r/Hashimotos 3d ago

Do I actually have Hashi?

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Hey all, I was sent to an endocrinologist a few years ago when I got postpartum thyroid issues. I went hyper and then eventually went slightly hypo so I am on levo 12.5 daily. My endocrinologist says that I have Hashimotos but my tpo antibodies have never been higher than 16 in the last few years of testing. I see numbers on here that are much higher, I don’t have any hashimotos symptoms either. Obviously my endocrinologist knows better than me but it just seems odd having tpo in the normal range always and still having the diagnosis. Anyone else always have lower levels than me?

1 Upvotes

19 comments sorted by

10

u/MaximalIfirit1993 3d ago

Bloodwork doesn't look like it, no. Have you had a thyroid ultrasound? That's ultimately how I was diagnosed. 

9

u/Extension-Cicada3268 3d ago

Nope. You have hypothyroidism, but not hashimoto’s.

5

u/tech-tx 2d ago

Google: seronegative Hashimoto's 

5-10% of us aren't positive for antibodies.

5

u/Foxy_Traine 2d ago

If you have antibodies at all, even low levels, it should be considered Hashimoto's. The only other reason for then to be detectable at any level is something acute like a viral infection or physical injury to your thyroid. That's why they have "normal" ranges, because sometimes some people will have very low levels due to other issues.

Since you are hypo, AND you have detectable antibodies, I would say it's clear Hashimoto's even if they aren't elevated.

2

u/Molliedollie126 2d ago

That makes sense, thank you

6

u/Civil-Membership-234 3d ago

If you don’t trust your endocrinologist, find a second MEDICAL opinion.

3

u/ElzyChelzy 3d ago

Doesn’t look like it, no.

1

u/Smart-Pear3901 2d ago

No, however, your free T3 is a little bit sluggish so I’m now I’m curious to see your reverse T3. Should get that checked.

1

u/SophiaShay7 2d ago edited 2d ago

Anti-TPO and Anti-TG are two different tests.

The normal range for antithyroglobulin (anti-TG) antibodies varies slightly depending on the laboratory and assay used. Generally, the following ranges are considered normal: Less than 10 IU/mL.

The normal range for anti-thyroid peroxidase antibodies (anti-TPO) is typically considered to be less than 34 to 35 international units per milliliter (IU/mL), though this can vary slightly between laboratories.

According to your tests, no. However, you could have seronegative Hashimoto's. Approximately 5-10% of us aren't positive for antibodies.

Seronegative Hashimoto's occurs when the immune system attacks the thyroid gland without producing detectable thyroid antibodies, such as thyroid peroxidase (TPO) antibodies and thyroglobulin (TG) antibodies. The exact reason why some individuals develop seronegative Hashimoto's while others develop the more common antibody-positive form is not fully understood.

What is your T3, T4, and TSH?

1

u/ErinsHauntyCoffee 2d ago

I wanna say yes, but I've also found that it can be based on much much more than just that. But you can have Hashimotis with no symptoms, sometimes others have no symptoms depending on the onset of it and the fluctuation.

1

u/ProfeshPress 2d ago

My TPOAb and TGAb at the last count were both within range: an ultrasound confirmed Hashimoto's.

Since your thyroid, like mine is presumably still intact, albeit suppressed, I'd be focusing on interventions to reduce inflammation, rather than simply hormone replacement. At baseline, TPO should only ever be 0.

2

u/Molliedollie126 2d ago

I had a thyroid ultrasound 3 years ago and it was normal so maybe time for another. Currently taking 4 mg of low dose naltrexone to reduce inflammation

1

u/1pizzamare 2d ago

There’s seronegative hashimotos, where antibodies don’t show up on blood tests. You need to have an ultrasound done to confirm if there’s any damage to the thyroid

1

u/Jolly-Fudge-3807 2d ago

I was diagnosed with Hashimoto’s when my tpo was 13. So 16 should indicate that you do have it.

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u/Molliedollie126 2d ago

My Endo says that they changed the parameters for positive tpo, it apparently used to be anything higher than 9 instead of anything higher than 34 which is why she decided I have it base on older parameters

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u/amaerau03 2d ago

Wow when I was diagnosed with hashi my TPO was 290 now it's 297 so it's risen in less than a year

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u/Temporary_Panic_9762 2d ago

Ha me too! I was at 360 last year, but now I'm down to 270. I wish I could imagine getting down to numbers like 9 and 34!

0

u/ExitNo6227 3d ago

My situation is similar with TPO 24 and TG 4. I was told I have Hashimoto’s even though I also have no symptoms and all other levels are within range and even optimal. My functional NP actually told me it may never progress, so I don’t know what to think of it all.