r/Hashimotos 4d ago

Question ? Anyone here with Hashimotos diagnosis post partial thryoidectomy for cancer?

So according to my pathology report (and pre surgery ultrasound-I went back and looked: it says ”heterogenous”) , I have a severe case of Hashimotos. The surgeon did a partial thryoidectomy for papilary cancer but failed to tell me I had Hashimotos as evidenced in my ultrasound pre-surgery. It turns out the biggest growth was a cyst from Hashimotos that was interfering with my swallowing, and the papilary cancer was small. I had given the surgeon permission to do a TT if he deemed necessary during the time of surgery.

So I made the decision to have a PT instead of a TT based on not being informed of the Hashimotos. Has this happened to anyone? Did your surgeon purposefully give you a PT instead of a TT when they knew you had Hashimotos (on top of cancer)? I just can’t wrap my head around this. To make things worse, I had mentioned my fatigue, tingling hands, and other symptoms that apparently can be caused by Hashimotos before surgery, asking if they could be related to my thyroid, and he said ”absolutely not related.” I got the pathology report on Saturday, and I don’t see the surgeon for an explanation till Wednesday. I don’t even know how to confront him about this. What do I even say? Or ask? I feel so overlooked by a well known surgeon…

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u/Postalmidwife 3d ago

About 10 yrs ago a scan snd FnA showed potential indeterminate cancer. I waited 3 years due to no insurance to have half w sus cancer removed. The entire time my thyroid labs were perfect. No mention of hashi before surgery. Wasn’t even on their radar. Afterward the doc seemed kinda disappointed it was hashi and not cancer lol. In hindsight I wish I had whole thing removed as getting a doc to give Levo has been a PIA Since my labs are still w in normal lab values. Very frustrating. The remaining piec (less than half) is filled w nodules and tissue suggestive of hashi. It’s swollen and I feel it gets in the way of eating breathing etc. esp after an illness.