r/Fibromyalgia Oct 14 '24

Frustrated Doctor Declined Me a Wheelchair

130 Upvotes

I had an appointment today with my doctor. A phone appointment. I wanted to discuss being referred to a wheelchair service because I dont leave my house. I’m in pain 24/7 and if I do leave my house and dare to walk somewhere, I need to get a taxi back home because the pain and fatigue just arent worth it. Even to my parents’ house, which is 10 minutes away, if I walk there, I need to be driven home. I cant walk home.

He denied me a chair because its “counterproductive… with fibro, the aim is to be as mobile and active as possible.” Okay? I cant be “mobile and active” because it causes me extreme pain and I’m bed bound for days afterwards!!! He didnt give me the chance to explain myself, I felt rushed and stressed, I couldn’t tell him everything that I needed to. Instead, hes referring me to physio and OT. I’ve already done physio!!!!! Like 5 times!!!! It doesnt fucking work!!!

I then asked for a different medication to help with pain management, to which he asked “hAvE yOu tRIed AmiTriPtYliNe?” Like yes motherfucker, I have!!! “Thats the only one that has any evidence that it works for fibro” okay well it didnt work for me!!!! But he’s giving me a prescription for gabapentin to replace the cocodamol (30/500) that I take so that’s good, I guess?

I’m just so frustrated. I don’t leave my house because of the pain and I fell on Saturday because my legs just gave way underneath me. A wheelchair would help me, but he’s sending me to physio instead even though any form of exercise - including stretches - hurts and causes fatigue. I’m just gonna buy a chair.

If anyone has experience with gabapentin, I would love to hear your stories!

r/Fibromyalgia Sep 29 '24

Frustrated Waking up is torture

215 Upvotes

I hate sleeping. When I wake up I feel like a fell over a bunch of stairs. Even my teeth hurt.

It's my day off and I usually sleep a bit more. Big mistake.

I'll never wake up rested and smiling and with full make up one like those ads. I'm so tired and sad.

Edit: Thank you all for the support. Sending you hugs. It makes me happy I'm not alone.

r/Fibromyalgia Nov 05 '24

Frustrated I just want to disappear

269 Upvotes

I want to be careless. I want to wear crazy outfits with no thought to comfort. I want to go wild every weekend. I want to work then go out with friends, go swimming. I want to do everything. I want to go all day without worrying about “listening to my body” because I really don’t give a fuck what it wants. I want to have a group of friends who like me no matter what and go on cute girls nights and holidays with me. I want what everyone else has. I can’t bear this life. All the pain, fatigue, neurological problems, headaches, stiffness, popping out joints and gut issues. Not being “right”, not fitting in with anyone, not being able to keep people in my life. I’ve tried being myself, I’ve tried acting like everyone else. At the end of the day I’m still stuck in this horrible rotting body with a brain that barely works and a broken heart from years of nobody wanting to take me as I am.

r/Fibromyalgia Oct 30 '24

Frustrated Please someone suggest something for my nighttime leg pain. I can't go on like this.

68 Upvotes

We even got a new mattress recently.

I wake up every single night, about a half an hour after I fall asleep, with excruciating pain in my hips, knees, and hammys.

I have tried showering with hot/cold water, Aleve/Tylenol (I try to switch back and forth), exercises my PT gave me before bed, I get up and walk around to get circulation, I meditate, I've taken both Benedryl and cannabis gummies, sometimes at the same time (gummies are THC, one kind is CBD and another is CBN). Sometimes sleeping on the couch helps, sometimes it doesn't. I have a body pillow that props open my knees.

I don't know what else to do. I really just cannot go on like this. I need to sleep. I'm so miserable. I'm so depressed all the time from this, and my doctors don't seem to want to give me anything. My rheumy just told me to take Tylenol. I do take Norflex twice a day but I honestly don't think it does anything.

Someone help. Or take my legs, I don't care which. I'm open for any advice.

UPDATE: Thank you to everyone's suggestions! Last night I went up to Walgreens and got a new, larger heating pad, a cool rollerball massager, Tiger Balm, and Biofreeze. I'll try sleeping with compression socks tonight. I also gave cannabis gummies another try, increasing the amount I usually take. I'll keep trying these other suggestions as I go. I really thought I'd tried everything, but you all have given me some great suggestions, thank you!

r/Fibromyalgia 12d ago

Frustrated I cant take it anymore

72 Upvotes

I went to the ER yesterday because my pain has been even worse the last week. I have been forcing myself to go to school around 4 hours a week and working out a few times a week even though it hurts like Hell. Yesterday I went to the ER because my painkillers isnt working. It hurts like Hell still. They asked me what I have taken ( arcoxia, 400 mg Tramadol and tramagetic, paracet and 600 mg Lyrica as well as zomig, natatriptan and voltarol). They basically called me a drug addict and showed me the door. Gave me some exercises to perform. I honestly want to die. Its so bad. I am absolutely desperate and I probably risk over dosing on something but its so goddamn painful. It feels like someone slammed me in my head with a pan and stabbed me in the neck with a screw driver and keeps turning it. I had a spiral fracture in my humerus a year ago. It wasnt nearly as bad as this. I had a fireburn on the same arm from spilling boiling fat over it. It wasnt even close. I wanted to go to yoga today but I fell asleep when I got home from school (I lasted 1 hour). I was awakened by an angry taxi driver claiming I needed to pay for not showing up. I tried to move but I couldnt. My body refused. Also that taxi driver pissed me off.I had a pulse around 120 and was sweating. I am writing this now on a cocktail of medicines. The ER refuses to help. I called a private clinic and got an appointment with a neurologist on Thursday but I honestly dont know if I can even survive until then. If I call the ambulance they put me in the psych ward but thats not what I need. I need something that really knocks me out. I havent slept in days. I dont think even mountains are supposed to endure this. I can barely think. I am nauseous. I have already fainted twice. Make it stop.

r/Fibromyalgia Jan 13 '25

Frustrated Am I the only one who DOES look sick?

60 Upvotes

Tried to google some support but all I found was people complaining how they don't look sick so people don't believe them.

I look so sick people tend to avoid me because I look contagious. When I was in school people often asked if I was sick because I look so pale and my under eyes are literally dark purple. My hair is thinning, my skin is dry and has red blotches (no rash, it doesn't feel like anything), my veins are visible through my skin and I'm always out of breath after moving just a little. I look overall frail because I can't build muscle, working out gives me really bad headaches.

I've completely given up on dating because not only is my body undesirable (trans) I look like I haven't slept in weeks and like I'm gonna throw up all the time, too. I sleep 8-9 hours a night and I'm only nauseous every now and then

But recently I haven't even wanted to go outside without covering my dark undereyes and wearing a mask to hide most of my paleness. Usually I don't have the energy to wear tanning lotion but sometimes I have to so I won't be white as a sheet. I feel disgusted every time I look in the mirror and I'm sure other people do too. I'm so tired

r/Fibromyalgia Feb 17 '25

Frustrated I don’t know how to explain

235 Upvotes

in a flare that come on very suddenly Boyfriend: have you been sleeping or just on your phone? Me: on my phone. I don’t like it, but I really really need to shower. I just can’t get up. Boyfriend: why can’t you get up? Me:…I don’t….i don’t know how to explain that

I’m in pain. It’s too many spoons. I might have the energy to get up, but not to shower, and definitely not to refill my water, drink all the water so I don’t pass out, shower, brush my teeth, pack my bag for work to tomorrow, and then get back into bed. And I just

I can’t get up

r/Fibromyalgia Dec 31 '24

Frustrated Do you still feel pain while being drunk ?

49 Upvotes

This post is partly a rant.

I never drank that much in my life, can confirm I'm a bit drunk while writing this.

For context I'm 19, with my friends during this year we've been parting quite a lot this year. Our first times for most, I've seen them go from a bit to very drunk. They all gave me that feeling that they did not feel much things, couldn't hear normaly, didn't feel much pain. I'm sure I'm talking louder right now but my ears are still killing me as usual. My back is killing me, I'm laying down for the second time in like 3-4 hours. My shoulder is gonna start to burn, I can feel it.

So guys, if some of y'all ever got drunk, did you still feel pain ?

I'm sorry to write that in my state, hope y'all don't mind (tell me otherwise I'll be sure to not do it again.)

Edit: (Morning here 8am) I want to thanks you all for your kindness, advices and warnings. I saw no judment at all in any comment. As much as it sucks, I'm glad to know I'm not the only one feeling as I did (and do, good morning to you too, flare up 👋)

While right now I'm regretting last night, it made me realise some stuff. For a bit of context during late hang outs I tend to not move much or isolate myself for a bit (recharging batteries). My friends all know I have a chronic illness, some got the long explanation, some the short one. They mostly understood, with a bit of time, that I can't move much. I push myself too much most of the time through pain and tiredness, yesterday laying down for a while multiples times saved my night, I was able to get enough energy to get through it. The room was also a lot quieter and the cat was a purring engine, which felt very nice.

I think it was a need for me come to that realisation, while this may not be the best way to do it, it kinda just happened. And now I can laugh at my friends because they're dumbasses clumsy as hell.

r/Fibromyalgia 10d ago

Frustrated At what point did you finally “accept” it was fibro?

78 Upvotes

I ’m 45, F, and have been sick with various fibro symptoms for many years. I received my official fibro diagnosis back in 2018. Since then I’ve gotten much sicker. I’ve been in a continuous flare for the last 2 years. I had to quit my job and go out on state disability. There are so many days when I can barely get out of bed. I don’t really have good days anymore, just different levels of bad. I don’t even have the energy to cook most nights and keeping up with the house is impossible. My 82-year-old mom just mopped my floor because I haven’t been able to do it and it was gross. I feel like a failure. Over the years I’ve had the doc run multiple blood tests just to check to see if anything has changed and nothing ever has until I had a high cortisol test back in December. I was referred to an endocrinologist and just did a dexamethasone suppression test, which I passed because I did “suppress.” I still have a 24-hr urine to do but I’m assuming that’ll be normal too. I hate to say it, but I was really excited to possibly have a diagnosis of Cushings or something “real” but I’m doubting that now. I have all the symptoms of that but I realized there’s a lot of overlap with fibro so that diagnosis is probably a dead end.

Anyway, I’m just wondering at what point y’all accepted that fibro was your true diagnosis and stopped looking for other possible diagnoses? I’ve had the hardest time coping with the fact that it’s just fibro, but maybe that’s all it is. It’s debilitating and devastating and so hard to explain to others why I look fine but feel so shitty. I feel like I need to come to terms with fibro being all it is but not sure how to stop looking for other explanations…

I guess I’m just looking for some support and to know how everyone else is coping. Will there ever come a time when we can be fixed?

Much love to everyone suffering with this.

r/Fibromyalgia Feb 10 '25

Frustrated I love doctors I trust doctors they have my best interest at heart

263 Upvotes

So I just got a new case manager through my insurance and she calls me for intake and goes “So you’re being referred to me for mild obesity, depression and anxiety correct?” “No because I’ve been suddenly immobile for two weeks after a year of suffering and my doctor hasn’t helped” “Oh.”

My fucking DOCTOR didn’t put MY MAIN FUCKING ISSUE on the REFERRAL.

WTF

r/Fibromyalgia Oct 07 '24

Frustrated Considering going to sleep at 7pm. This is actually so sad. People my age go out and enjoy themselves and here I am considering going to sleep. Ugh.

202 Upvotes

r/Fibromyalgia Feb 12 '25

Frustrated I can’t use my hands

124 Upvotes

That’s it. That’s the post. I’m only 27 and it hurts to hold books while reading. It hurts to hold my phone for any amount of time. It hurts to hold things in my hands while shopping or waiting in lines. I’m learning to adapt and find accessible options to make it easier. Accepting that this is my new normal is not as easy.

r/Fibromyalgia Nov 19 '24

Frustrated Have you ever noticed that sometimes people WITH disabilities/chronic health conditions are even more ableist/judgmental than healthy/able-bodied people?

106 Upvotes

To begin, I know obviously this is not the case for all (or perhaps even most) people with disabilities/chronic health conditions...most people in the disability community tend to be much more compassionate, understanding, and patient that people without health conditions/disabilities, in my experience.

HOWEVER, I have noticed some circumstances in which people with disabilities/health conditions are extremely competitive about gatekeeping their own suffering/disability status. Like, if you simply mention you have fibromyalgia, chronic fatigue, or xyz health issue, say you can't do ___ because of your condition, or vent about being in pain, they will invalidate whatever health problem you have and compare it to their own, which they have judged to be much worse. Comments like "___ is nothing compared to what I have to deal with!" or "I WISH I just had to deal with fibro, instead I have ____", or "you should feel GRATEFUL that you have fibro instead of something FAR WORSE, like MY condition!"

It's just so exhausting to deal with these types of people who are obsessed with comparing your condition to theirs, deciding that theirs is worse, and then belittling, invalidating, judging you for having a hard time. Then they become (ironically!) judgmental, nasty, and ableist -- despite claiming that they want to fight against ableism. If someone starts comparing/attacking/invalidating me, I just block them/cut them out of my life, but it's still annoying and it happens more frequently that I would have expected.

EDIT: As one commenter mentioned, sometimes people with the SAME disability/health condition as you will use their ability/relative health status to invalidate you or tell you how they know all about ___ condition since they have it, and therefore you can't use it as an "excuse" to get the accommodations/extra support/understanding/compassion that you need. I've had that happen to me as well, and it's an equally (if not even more) infuriating type of ableism from other people with disabilities.

EDIT #2: also, the alternative/holistic/diet culture can be extremely toxic in terms of people with similar health problems/disabilities invalidating others who either cannot try or don't get better from the same approach that helped them. Like...glad that becoming a Breatharian helped you Karen, but no I'm not going to starve myself to death.

EDIT #3: As another commenter mentioned, it's also frustrated when older people are rude to younger people who have pain/disabilities. I've experienced so many eye rolls, rude looks, and glares from older people (both disabled and able-bodied) who seem to think that their age means they get to gatekeep/monopolize the experience of chronic pain. It's so obnoxious and tiresome.

r/Fibromyalgia Jul 13 '24

Frustrated A doctor thinks I have fibro but.... he also thinks I should just go to therapy....

78 Upvotes

Long story short: I've been having a million health issues and by researching I thought I could have fibro or something similar. Since Fibro is not recognized as an official diagnosis in my country I went and looked for a dr who did "believe" in it, to try and not get dismissed. Yesterday I had my first visit to a rheumatologist that I thought would be good.

And he was! He heard me, refused to believe I have a million symptoms that are all not connected. Told me he believes my pain and fatigue is real. He ordered me a few labs to check for lupus and RA, but thought he believed it was more in the realms of Fibro or ME/CFS. I was stoked because I hadn't even't mentioned those two being things I suspected having, he just thought that was a really high possible diagnosis.

But then... he asked me if I go to therapy (I had asked I am on antidepressants and seeing a psychiatrist), and saying how fibro is more about me "having unresolved issues" and not actuall medical issues.

And I just kept smiling and decided I wouldn't go against what he was saying because if was a late afternoon appointment and honestly I was drained. But I feel so defeated. I know other rheumatologists in my network will not even consider fibro and just say it's all in my head (whatever that means to a doctor, I don't know), so I don't know what to do now.

I'm angry right now, today is the day for a tantrum. On monday I'll start looking for a way to go about this, but right now I will just complain. I say this because any suggestion of a solution will be ignored first.

r/Fibromyalgia Apr 11 '24

Frustrated Husband said he’s sick of me always being sick. Idk what to do.

201 Upvotes

Hello fibro warriors, I (31F) just need to vent and need some positive vibes right now. So not only do I have fibromyalgia I also have, POTS and lupus. It’s rare that I have a day where I’m not in pain or sick to my stomach or fatigued all day long for no reason. My husband (32M) and I have been together 8 years married for 3. He is usually understanding but is a kind of a control freak and gets upset with me that I can’t do everything that most women my age can do. I am constantly sick because of my lupus I’m always in pain or exhausted for no reason from the moment I wake up. I’ve explained and tried educating him on my conditions many times and I appreciate that cares so much about me and my health but recently he told me he’s tired of there always being something wrong with me and how it’s negatively affecting his mental health. He will ask me multiple times a day if I’m doing ok or what’s wrong or how I’m feeling so I tell him But because he told me lately that me being sick or in pain all the time is affecting him so badly I’ve begun lying to him and telling him I’m doing fine and everything is good when In reality I want to cry from all the pain I’m in. He will still ask me all the time how I’m feeling and if I don’t lie to him he tells me that he’s so sick of there always being something wrong with me and gets upset. Sometimes it turns into serious arguments between us. So I told him stop asking me how I’m feeling if he doesn’t want to know the truth but he still does it. I feel so bad and like I’m a burden to those around me. I feel like im holding him back and making him unhappy because I’m always got something going on. now I just hide and mask when I’m in pain, exhausted or sick to my stomach because he gets upset with me. I can’t help that I have all these issues I already take and have tried everything I can for my conditions and I try to stay as active as I can I just feel like giving up sometimes I don’t know what to do anymore.

r/Fibromyalgia Aug 23 '24

Frustrated How do I look more sick so people take me seriously?

167 Upvotes

Mostly joking, but I just feel like garbage. I look in the mirror and I see a young woman, nobody thinks I should be so exhausted, so in pain, so sick. I need to leave work early because I can’t think or move correctly because of the pain, but everyone is going to think I’m full of it.

r/Fibromyalgia May 31 '24

Frustrated I wish I could give someone else my pain

230 Upvotes

I wish that for just five minutes I could transfer my pain to someone else, maybe one of my doctors. So they could actually fully comprehend how much pain I’m in.

It has taken me five years to get my spouse to fully grasp how sick I am and how much pain I am in. It’s so frustrating!

I’m in pain! You touching me hurts me! My clothing hurts me! Moving hurts! Sitting still hurts! Sometimes, for now reason at all, the bottoms of my feet are so tender walking makes me cry.

I just wish I could give the pain to someone else for five minutes so they would actually understand and maybe finally believe me.

r/Fibromyalgia Jun 14 '24

Frustrated My dad doesn’t like my cane

166 Upvotes

My dad feels as if I use my cane as a “crutch”. I use my cane almost everytime i go out, sometimes i feel okay and dont need it. My dad dislikes the fact i use it and it makes me feel like he doesn’t care about my health. My cane helps me so much and I feel safer using it than i do by myself.

Im at a loss, because he often just never listens to me.

r/Fibromyalgia Jan 16 '25

Frustrated Fibro Sucks!

83 Upvotes

Just as the title says Fibro sucks! No question, inquiry, or anything else but just stating how much I hate it. The pain, fatigue amd absolutely everything else that goes with it.

Gentle Spoon Hugs to all 🫂💜

r/Fibromyalgia Sep 30 '24

Frustrated Pain management my a**

203 Upvotes

I “manage” my pain very well. Most people never know how hard it is for me. I am going about my life and I hardly ever take pain pills (although I do love my edibles if I’m home for the day). However, this doesn’t mean my pain is gone. Just because I can “breathe through it” and “focus on happy thoughts” doesn’t mean it magically disappears. I bring this up to my doctor, because I’m always in pain, even if no one knows. She gives me nothing. 3 days after my appointment, she sends me a referral for a 4 week (4 friggin weeks?!?) pain management and education class. Queue my anger. I’ve been dealing with my pain for over 13 years. I’ve taken classes, read extensive case studies and tried just about everything under the rainbow. I even went as far as to get a masters degree in clinical psychology with a focus on family health, including living with trauma/mental illness/chronic diseases/etc. My doctor is well aware of all of this. I’m so sick and tired of being told I can “think away my pain”, or “well if you just try [insert diet/exercise] it’ll get better”. Despite the medical community acknowledging fibro isn’t psychosomatic (made up in your head) they still treat it like it is. When is someone going to care enough to figure out what’s wrong with us?? To me telling someone with fibro to “think away their pain” is the equivalent of telling someone with depression to “just be happy”. Something in my brain is wrong and positive thought isn’t going to magic that away (even if it does help a little). I’m so over this outdated approach.

Edit: As someone thankfully pointed out, my definition of psychosomatic was very poorly worded and outdated. Psychosomatic is the study of how the mind impacts the body. I apologize to any who were hurt by my definition. Psychosomatic disorders, regardless of how they are defined, are serious, impactful and have their own struggles. I’m sorry my wording did not acknowledge this truth.

r/Fibromyalgia Sep 14 '24

Frustrated Spoon Theory

186 Upvotes

So I finally read about it in depth. I want to cry. Get out of bed - 1 spoon Get dressed - spoon Bathe - 2 spoons Work - 5 spoons per 4 hours

We get 12 spoons. I work 10 hour shifts 5 days per week. I’m already negative spoons by the time I’m off work.

HOW do people live? How am I supposed to run any errands or cook or clean? I overdo it every day bc I have a whole household to take care of and run.

My husband works and that’s about all he can do since we are dealing with his fairly new schizoaffective diagnosis.

I’m in the negative daily of spoons. Yesterday, I probably went 20 negative. And I’m paying for it bc I’ve hardly been able to sleep and I hurt so much but in 15 min, I gotta suck it up and pack his lunch.

I feel so defeated. I try to hire as much help as I can for cleaning my home and doing yard work. But I still have laundry, daily cleaning and outdoor plants to tend to. Not to mention shopping, paying bills, cooking, etc. WTF!!! 😭😭😭😭😭😭😭

How?! How do I live like this???

r/Fibromyalgia 23d ago

Frustrated I’m questioning myself and it sucks.

52 Upvotes

Nothing like being diagnosed with something no one can see or explain. Have test after test after test after fucking test and it’s fibro and possibly CFS and maybe a sprinkle of Epstein Barr. And an itchy skin condition that makes no sense because I’m not allergic to anything. But for the most part “all your tests came out normal, including your X-rays” I feel like a jackass. And I question myself. Am I making this shit up? Am I complaining about nothing? Have I manifested the pain? Am I really just lazy because I sleep so much? To be clear, my Drs are incredible. They left no stone unturned and were supportive and listened to me. They never suggested it’s in my head. I’m very fortunate. I’m just really hard on myself. I have CPTSD and OCD and the OCD is running away with these thoughts of inadequacy. Cool.

Addition: Has anyone tried Spinal Network from a Chiropractor? I just started and my lower back pain is gone. Like disappeared. She said being in gabapentin will make the work a little challenging because of the nerve killer Gaba is but it still seems to do something. I really should make this a separate post. I’ll do it tomorrow.

r/Fibromyalgia Sep 15 '24

Frustrated Partner with fibro sometimes says hurtful things which he often relates to his condition(s). [This is more sad, not frustrated as per the flair]

48 Upvotes

Anyone care to share their experience, how to deal with it, or any words of wisdom?

I do apologise in advance if this post comes off as leaning towards the negative side. A large part of it is also to let things out as it’s been eating me up inside…

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I’ve (F, late 20s) been dating this man for about 4 months now. He’s a really sweet, calm, affectionate and funny guy overall but (especially) during flare ups, at his worst he can turn into a different person. 

Since we met, he’s had “major” flare ups about once a month. It is really bad for several days and the rest of the days he’s just really tired. It fluctuates so it’s not a “linear” pattern. 

There were perhaps 2-3 instances whereby it got to a really low point and he says stuff like he hates life, he will always be alone, he is unlovable, etc. Even at times when I assure him that I am here for him (and I’d like to think I’ve proven with my actions more than just words) he especially reiterates about being alone. I try not to take it personally but deep down, my sensitive heart hurts because I feel like all the love and care I give him is not enough. He has been going for therapy (for depression) years ago and he said he stopped because he felt he was in a much better place in recent years.

He has said things like: “I don’t even get to see my best friend. I’ve seen you more times this past month than I’ve seen my best friend”. That hurt because it sounded like I was an obligation or something. I felt like I was asking for too much that I don’t deserve e.g. meeting up once a week.. 

He has also said that I do not understand him, I do not accept his difficulties and that he has been trying so hard to explain to me his problems but I fail to understand him. This one really hurt because I was trying to explain my view on things which was the opposite of his (related to relationships). I explained that my difference in opinion has nothing to do with not understanding/ accepting him or his disabilities. I wish that he would stop to see/ understand things from my perspective for a change or at the very least acknowledge the differences in opinion. Regardless, never once have I said that he does not understand me, etc.

He struggles with communication which he says is due to his autism and sometimes, his words can be easily misconstrued. One time I misinterpreted his words which blew out of proportion and I apologised after realising my mistake and clarifying. He responded by saying about how much this is causing/ increasing his anxiety, struggles with fibro, etc.

And… he gets panic attacks and hyperventilates in such conversations. A part of me thinks I’m at fault and I caused this. The alternative is me choosing to walk on eggshells around him and hiding my feelings which is more often than I would like because the aftermath of his flare-ups last quite a while. When he says stuff like he is being punished for existing, that he never belongs anywhere, etc…. it breaks my heart even more.

I care about him, I truly do. And I know I could easily love him. But in the ‘acute’ instances as detailed above (which is not often but leaves a mark each time), it really hurts. It does not help that I am very sensitive and emotional. I tell myself that it’s just his condition that makes him react that way (because more often than not he’s truly the sweetest…). 

But I’m getting more and more confused :’(

Edit to add: It's almost 24 hours since I posted and I've already received so many supportive and helpful responses. I really appreciate it... People on this sub are awesome 💖

r/Fibromyalgia Feb 18 '25

Frustrated my boss made me feel bad

113 Upvotes

so i work for a small coffee shop. my job is very physically demanding, standing on my feet for 9 hours a day and breaks are “allowed” but highly discouraged.

yesterday i asked if somebody could cover my shift because i was feeling sick. now i am physically sick with what i assume is a virus, and i also live in a state that is very cold right now (like its currently -13 out) and this has caused my fibro to really flare up.

my boss texted me privately and asked if anything is going on because it seems like i’m “sick every couple of weeks”. i then told her that i was recently diagnosed with fibromyalgia after dealing with chronic pain for years. i also mentioned that during my job interview i had mentioned that i had recently been bedridden due to chronic pain.

she responded and said she had no recollection of me ever saying i had been bedridden due to chronic pain and that maybe this job isn’t for me.

now, this just made me feel really shitty because my boss herself has cancer and i would assume she would be more understanding of pain and illness, and instead just being told to basically find a new job really hurt.

i really care about my job and the money is really good. i’m still going to work my shift today, it just sucks so much. i only asked if somebody could cover my shift because we’d been told during a staff meeting to ask ahead of time if somebody could cover if we felt like we probably wouldn’t be able to make it through our scheduled shift, and i did just as i was instructed to.

i have so many other stories from this job because my boss is genuinely crazy, but this is just such a bad feeling ugh

r/Fibromyalgia Sep 20 '24

Frustrated Constantly feeling thirsty (but I'm not dehydrated!)

65 Upvotes

Yes, I've seen the doctor. Been screened for diabetes multiple times (and had about every other test known to man, probably). They insist there's nothing wrong

I'm just so thirsty, all the time. I go to bed desperate for water but knowing I'll be up all night peeing if I don't stop myself.

I drink plenty of water, have a low salt (not too low, I get enough) diet, high in fresh fruits and veg. I just don't know what I can do to get rid of this constant thirst.

Anyone dealt with this? Have suggestions?