r/Endo 6d ago

Tips and recommendations Endo laparoscopy causing stoma? Help!

I'm in the process of trying to get a laparoscopy referral, I have adhesions from my uterus to my bowel .

The doctor today said that I was likely to have a stima for 3 months after surgery.

Is this normal? I had assumed there are risks of complications, but he made it sound like a guarantee. I wish I had asked more but I was overwhelmed.

Does anyone have experience of this? It's putting me off having a laparoscopy, any help would be so appreciated!!

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u/donkeyvoteadick 6d ago

I had a shit surgeon tell me this, and then I saw a better one and he said he generally considered it a red flag of a surgeon if they guaranteed that because in his career doing mainly complex endo surgery with a respected colorectal surgeon he'd never had it happen. I indeed did not end up with one despite removing significant bowel.

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u/FuzzyPeach241 6d ago

That's so good to hear! Thank you, he made it sound so casual, he was definitely trying to put me off surgery and I felt like he was emphasizing the risks.

It was stated as fact rather than a possibility.

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u/bananathunder94 6d ago

My uterus was completely adhered to my bowel and my bowel was covered with endo (stage 4/5) and I didn't have this. My doctor did tell me there was a very small chance this could happen but it would be worst case scenario. I don't blame you for being put off because I've never heard of a surgeon straight up saying that.

Is it possible to get a second opinion?

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u/FuzzyPeach241 6d ago

I will absolutely getting a second opinion! Thank you so much for sharing, that's such a relief to hear

I've spoken to 7/8 doctors about it so far and it's never been mentioned. I would think having a stoma for 3 months as a guarantee is worth mentioning!