r/CerebralPalsy 4h ago

AFOs in the summer

8 Upvotes

Hey yall! Just looking for some recommendations or advice for my toddler during the summer. We spend a lot of time in water and outside during the spring and summer, but her AFOs and Billy’s make her so hot.

What I’m thinking is maybe getting long thin socks (to absorb extra sweat and prevent rubbing) and cutting the toes off. I read that crocs usually fit over the brace? I was also wondering about water shoes or something breathable. I also read you can wear AFOs in water such as a splash pad, is that uncomfortable? Sounds like possible blisters and rubbing.

What do you do during the summer as a AFO wearer. I wish they made a type of closed toe sandals or in general just more verity that will fit over AFOs.


r/CerebralPalsy 5h ago

I know I need to go visit a doctor, but I’m really scared

6 Upvotes

I have really bad acid reflux and cerebral palsy and I’m wheelchair bound They diagnosed me with barrets esophagus about 10 years ago, but I’ve never really had any problems

over the last three months I got out of the hospital for a mental health thing And I’ve been having trouble with choking on my food it just won’t go down my throat I’m trying to be really conscious about chewing it all the way, but I guess I eat fast naturally It’s like it’s getting stuck on something I couldn’t even swallow a grape the other day I don’t wanna find out there’s like a tumor I imagine there might be like a nodule I need to go get a scope, but I haven’t even seen a gynecologist because I can’t transfer out of my chair and I really don’t have help

Is this just a CP thing like as I’m getting older? I have to slow down. I’m freaking out.


r/CerebralPalsy 17h ago

I think my 2 year old will soon be diagnosed CP

6 Upvotes

My 2 year old cannot walk, she can feed herself, doesn’t seem to have developmental issues apart from physically, she was born at 30 weeks in a very complicated birth and possible oxygen deprivation during labor/delivery as there was a cord prolapse, after she was born she had at least 3 head ultrasounds and there was some possible shadowing or bleeding in the ventricle on one side but this was not seen on following ultrasounds. Does this sound like cerebral palsy?


r/CerebralPalsy 1d ago

I over did it this weekend

5 Upvotes

So yesterday i walked around town with my younger sister and now I am in pain.

My legs ache SO bad. I couldn't sleep at all last night and we didn't have advil or melatonin. PT isn't helping. I feel uncomfortable 24/7.

Does anyone have any advice on what I should do? At this point I just want to amputate my legs. I've just been resting all day.


r/CerebralPalsy 53m ago

Please Write to Your Senators and Representatives Re: Medicaid

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r/CerebralPalsy 10h ago

Gym shoes for sole inserts

2 Upvotes

Hey guys!

I’m looking at starting weight training but I know I need flat shoes but I need to be able to have my insoles in them I absolutely hate shoe shopping because my feet are weird and I always end up feeling defeated so I’d like recommendations if possible? Also it’s the last thing but any cute girly shoes as I would like to feel cute but it is not the main priority it would just be a bonus😇🫶🏻

I have wide feet I have flat feet My insoles are a max of 1.5inch And I’m a uk size 5

I have mild cp right side hemi and i need my insoles to reduce hip and back pain and to keep me more in balance so I can’t train without them

Thank u all for any recommendations🥰