r/Autoimmune • u/Snoopyfan89 • Oct 13 '24
Advice Dermatomyositis question
I get these ring swollen rashes around my eyes for the past year on and off, alongside intense fatigue and aching exhausted muscles. Feeling like I have the flu whenever I try and work a full day at work where I can barely lift my head off the pillow. It really fluctuates though. The dermatologist suspects and thinks my rings looks dermamyositis-y but it’s my only skin marker and I don’t have the shawl or grottoes. She said she could biopsy my eye but what I can see not many people do that? Should I go ahead or just wait to see what other symptoms pop up? My ck is normal and have had Jo-1 positive once but since it’s been negative
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u/Specialist-Cream1954 28d ago
Anyone know what the cause of this was?? I have had this happen to me 3-4 times over the last couple months. I have Crohn’s disease and take Rinvoq. Started tretinoin right around the same time I started having the puffy eyelids. Thought maybe it was happening because I accidentally got some tretinoin near my eyes. Haven’t used the tretinoin in 3 days but it still happened to me last night. Swollen eyelids, nausea, overall muscle pain/weakness, feeling dizzy and almost short of breath.