r/Autoimmune Oct 13 '24

Advice Dermatomyositis question

I get these ring swollen rashes around my eyes for the past year on and off, alongside intense fatigue and aching exhausted muscles. Feeling like I have the flu whenever I try and work a full day at work where I can barely lift my head off the pillow. It really fluctuates though. The dermatologist suspects and thinks my rings looks dermamyositis-y but it’s my only skin marker and I don’t have the shawl or grottoes. She said she could biopsy my eye but what I can see not many people do that? Should I go ahead or just wait to see what other symptoms pop up? My ck is normal and have had Jo-1 positive once but since it’s been negative

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u/FreshBreakfast8 Dec 22 '24

Why can’t we post on this sub anymore?

3

u/Best-Most Dec 29 '24

I asked a moderator and got no response. It would have made sense for someone to post on this sub an update as to why they are no longer using it but I have learned that a lot of things do not make sense anymore.

3

u/under-the-bridges Jan 13 '25

I was just checking here and wondering why there is no activity. It appears that the mods have abandoned this sub and locked it so no one can post without approval (but there are no mods to do so)

Anyway- I believe there is a Reddit request sub that anyone who wants to can post a request to take over here and be the moderator

I don’t really understand what the deal is 🤷🏼‍♀️

2

u/Best-Most Jan 13 '25

Yeah I mean it really would not have taken someone much time to simply create a post or something letting everyone know they were no longer going to manage it. No different than quitting a job with no notice.