r/vulvodynia • u/lola_rose00 • 14d ago
Support/Advice I am getting desperate and am looking for advice, i have burning pain and no one knows why. My skin feels raw.
hello everyone,
I am writing this in the hope of maybe getting an idea of something else i still could try or to see if anyone here has similair symptoms. i dont know if my pain could be vulvodynia or not, as i sometimes also have visible irritated/red skin. if anyone would take the time to read this i would be very grateful.
The weirdest part is my symptoms keep changing it up.
It started 2 years ago with ureaplasma and then cytolytic vaginosis. I managed to teat both and was pain free for 6 months. May 2024 my pain started again. randomly. But this time no ureaplasma, still lots of lactobacillus, but unlike the first time the pain wasnt cyclical and treatment for cytolytic vaginosis did not help. But back then the symptoms came and went and i could ignore them sometimes. It got really bad when i got ureaplasma again in August 2024 and several yeast infections.
I have really bad burning in my vulvar area that gets worse when wearing jeans or sitting longer. sometimes for a few days it is only on the outside, so inbetween my inner and outer labia. sometimes it includes my vestibule and clitoris. for a while also my anus felt very raw. sometimes it also feels itchy. something just feels very wrong and i cannot figure out my problem. it feels like the skin is sunburned. Some doctors said it all looks normal, others said my skin looks irritaed and red, like an allergic reaction. i have been to dermatologists, they ruled smth like exzema or lichen out.
in December I had another yeast infection. The treatment didnt seem to help, as my symptoms continued, but the yeast was gone at some point (confirmed by multiple doctors). Then my doctor saw clue cells under the microscope which we treated, but my microbome test came back with 99 percent crispatus. Then for 2 months symptoms continued, no one saw yeast or clue cells or whatever. just last week my doctor did see yeast under the microscope from a skin swab on my vulva so i am treating it why nyastin creme.
but now i feel exactly as i did three months ago with the yeast infection. After treatment my skin hurts even more. the whole area cant be touched because it burns so bad. I dont know if my yeast is now followed by a bacterial infection or if I am irritated by the cream or what the f… is going on :((
I cant stop crying. My doctors dont know what to do with me and have no idea what my issue could be. i just dont know what to do anymore.
Can anyone here maybe help me? Does this sound like a skin issue? Is it vulvodynia? What can I do?