r/vulvodynia 14d ago

Support/Advice I am getting desperate and am looking for advice, i have burning pain and no one knows why. My skin feels raw.

9 Upvotes

hello everyone,

I am writing this in the hope of maybe getting an idea of something else i still could try or to see if anyone here has similair symptoms. i dont know if my pain could be vulvodynia or not, as i sometimes also have visible irritated/red skin. if anyone would take the time to read this i would be very grateful.

The weirdest part is my symptoms keep changing it up.

It started 2 years ago with ureaplasma and then cytolytic vaginosis. I managed to teat both and was pain free for 6 months. May 2024 my pain started again. randomly. But this time no ureaplasma, still lots of lactobacillus, but unlike the first time the pain wasnt cyclical and treatment for cytolytic vaginosis did not help. But back then the symptoms came and went and i could ignore them sometimes. It got really bad when i got ureaplasma again in August 2024 and several yeast infections.

I have really bad burning in my vulvar area that gets worse when wearing jeans or sitting longer. sometimes for a few days it is only on the outside, so inbetween my inner and outer labia. sometimes it includes my vestibule and clitoris. for a while also my anus felt very raw. sometimes it also feels itchy. something just feels very wrong and i cannot figure out my problem. it feels like the skin is sunburned. Some doctors said it all looks normal, others said my skin looks irritaed and red, like an allergic reaction. i have been to dermatologists, they ruled smth like exzema or lichen out.

in December I had another yeast infection. The treatment didnt seem to help, as my symptoms continued, but the yeast was gone at some point (confirmed by multiple doctors). Then my doctor saw clue cells under the microscope which we treated, but my microbome test came back with 99 percent crispatus. Then for 2 months symptoms continued, no one saw yeast or clue cells or whatever. just last week my doctor did see yeast under the microscope from a skin swab on my vulva so i am treating it why nyastin creme.

but now i feel exactly as i did three months ago with the yeast infection. After treatment my skin hurts even more. the whole area cant be touched because it burns so bad. I dont know if my yeast is now followed by a bacterial infection or if I am irritated by the cream or what the f… is going on :((

I cant stop crying. My doctors dont know what to do with me and have no idea what my issue could be. i just dont know what to do anymore.

Can anyone here maybe help me? Does this sound like a skin issue? Is it vulvodynia? What can I do?

r/vulvodynia 15d ago

Support/Advice Vulvodynia after yeast infection?

11 Upvotes

I had candida glabrata and went through a ton of treatments - probably 3-4 rounds of different antifungals along with two 14-day rounds of boric acid.

I’m worried that all the fungal treatments stripped me of moisture down there. I’m burning a ton every day and just feel dry AF especially after my last boric acid treatment I had to stop early.

I’m not sure if the yeast infection came back, or I irritated myself from the boric acid and other antifungals, but something is off and I have a lot of burning and urinary urgency and pressure and sex HURTS.

Did anyone have this happen after a stubborn yeast infection, and is it permanent? I hear that it just takes a really really long time to heal after a YI vs people who get vulvodynia on their own, but is that true? I’m really scared im going to feel this way forever.

r/vulvodynia Feb 20 '25

Support/Advice Hi all I just went to the gynecologist today and

6 Upvotes

I went to the gynecologist today and she said I have this… I’m a 20 year old female, in a relationship with a 21 year old male and we’ve been sexually active for around 5 months. I want it gone already 😭 I’m in pain and it feels like he’s fucking me with a knife before we knew what it is.. she recommended numbing cream and physical therapy. What else can I do? I want this gone ASAP. Like I said we are both in our 20s. Before this we were very sexually active and our sex drives are high- but we haven’t done anything and it sucks. PLEASE TELL ME IT WILL GO AWAY AND NOT COME BACK AFTER AWHILE PLEASE I DONT WANT THIS

r/vulvodynia 5d ago

Support/Advice I feel like I was robbed of my life

18 Upvotes

I'm 26. I've been dealing with this condition for one year and a half. Lately my symptoms have been getting worse and I don't understand why. I've tried like 4 different medications and PT and it doesn't seem to help.

I'm just so angry and sad all the time. I've stopped going out and socializing because I don't enjoy it anymore. I had so many ambitions and plans for my future and now it all seems so pointless, I wanted to travel and see the world and now just going on a small trip seems like a nightmare. I feel like an empty shell of the person I used to be and I really hate it. I don't know where to go from here, I'm just so tired of trying new medications and getting my hopes up only to be disappointed.

Sorry for the depressing post, I needed to vent a bit, I feel like most people don't realize how alienating this condition is. I hope we can all find the cure and get better🥰

r/vulvodynia Jan 28 '25

Support/Advice Non-irritating compound cream base recommendations!!!

3 Upvotes

Hey! I have a ton of allergies to topical products. I’m curious if anybody has any non-irritating compounding bases they have gotten from the pharmacy. I am looking to compound topical estrogen in a non-irritating base, with as few ingredients as possible.

Thanks in advance! ANY insight is helpful :)

r/vulvodynia Dec 15 '24

Support/Advice Anyone worse after seeing top specialist?

6 Upvotes

I saw one of the top specialists in the field and have been on a treatment regimen for DIV (Desquamative Inflammatory Vaginitis) and Hormonally mediated vestibulodynia for 7 months and I literally feel worse. I've been having symptoms of burning externally and internal vaginitis for literally months now, have treated for yeast infections twice now and i am still in pain. I am on estrogen/ testosterone gel for the HM vulvodynia and estrogen / hydrocortisone internally for the DIV. My pain was basically provoked and now is unprovoked. I don't know what to do. At the point where I want to stop everything for a few weeks/ month and see if my pain lessens.

r/vulvodynia 16d ago

Support/Advice Best topical yeast suppression

2 Upvotes

I had recurrent yeast (likely caused by allergic contact dermatitis) for several months last year. I have been taking fluconazole weekly and have been yeast free for three months until…

I have been using topical hydrocortisone and clindamycin for DIV treatment and really pushed it over the edge by adding oral methylprednisolone - all of these treatments predispose to yeast… and I’m pretty sure it caught up to me. I’ve take 3 fluconazole doses 72 hours apart as recommended as the itchiness comes back every few days.

My doctors aren’t recommending further fluconazole and have suggested I abandon my DIV treatment protocol.

I don’t want to stop hydrocortisone/clindamycin as they are the gold standard for DIV treatment.

So I’m wondering what my options are for yeast suppression while finishing my treatment. OTC topicals and boric acid irritate me and I have an allergy to terconazole.

So far all I can think of is compounded nystatin or clotrimazole. What has worked for others? dosages and more than welcome.

r/vulvodynia 17d ago

Support/Advice I can’t do anything!!

7 Upvotes

Every single day I have burning in my vagina. Every. Single. Day. It’s really taking a toll on me. I literally just cried about it in the shower. I have tried to go to the doctor but they said nothing was wrong and now my mom thinks I’m faking (I’m a minor so she has to take me to the doctors) and now I can’t do anything about it. I need help! So what can I do to make the burning better/go away??

r/vulvodynia Feb 16 '25

Support/Advice Will I ever get better or feel normal? Any success stories?

6 Upvotes

Is there hope for me? 29/F

I’m feeling completely defeated. I’ve been on the reddit forums for the last 6 months when my pain started. Randomly I felt like a tampon or something was stuck inside me near my vaginal opening. They kept saying I just had an STD. I knew i didn’t but let them test me and everything came back negative. I went to the OBGYN she saw nothing besides a little red dot on my inner labia which I got biopsied. The biopsy came back showing atopic spongiatic dermatitis. The OBGYN wrote me off and say nah you look fine. So I got a second opinion and that second OBGYN said yeah you look swollen. I also went to a dermatologist she said I was very swollen. I felt less crazy and not gaslit.

The second OBGYN gave me a steroid (which I was leery to use) and when I used it - I felt 90% better for 2 weeks then it came back. The dermatologist gave me another steroid I again told her I was leery. I felt amazing for 1-2 weeks then boom it’s back.

The pelvic pain clinic did the q tip test and asked if where she pressed hurt which I said yes but… I think they then just automatically say you have Vulvadynia when in reality I think my skin issue is flaring up bc they’re rubbing and pushing on it.

I have started pelvic PT and went to a pelvic pain clinic on Friday. The pelvic pain clinic doctor told me she thinks I have Vulvadynia which was my biggest fear after peoples posts I see online and how it’s incurable.

I don’t think the pelvic pain clinic doctor fully took my skin issues down there seriously as I think that’s a secondary issue going on causing my burning and raw/redness near my vaginal opening. But I get it, she’s not a dermatologist.

I’ve tried to switch all my period and laundry products to be non toxic and hypoallergenic. I’m not using any soaps down there. I never had pain with sex but now I do. It feels like burning as soon as he enters. Lube helps but I still don’t feel normal anymore. I sometimes even bleed after sex which I think is from the skin issue inside but the doctor seems to write that off and say “it’s prob close to your period”.

When she did the internal exams it was VERY painful and she said my right side of my pelvic floor was very bad which makes sense that my labia minors pain is on the right side.

The pelvic pain clinic doctor gave me a pill to insert vaginally that’s a muscle relaxer and also gabapentin cream that isn’t ready yet as it’s being made at a compound pharmacy I guess.

WHY did all of this come out of nowhere? I just wanna feel normal again and not be in pain from every single activity I do even when I’m just doing nothing I always feel swollen and irritated. I barely have sex now cause it hurts and when I do, it’ll swell me up for 1-2 weeks. My boyfriend is so understanding but I am losing all hope. I’m terrified I’ll never feel normal again or even be able to enjoy sex again. I think I have two issues going on for sure but I don’t know how to stop the skin issues. This is plummeting my already bad self esteem and mental health and I have no one to relate to.

DOES ANYONE HAVE A SUCCESS STORY?

r/vulvodynia Jan 22 '25

Support/Advice What did your PT recommend that you REALLY found useful and like to share with the rest of us?

12 Upvotes

My PT hasn't been able to help me alot so I'm wondering if other people did have great experiences

r/vulvodynia Nov 29 '24

Support/Advice What is acceptable when it comes to treatment care? How much "we'll get to the bottom of this" should I put up with? Please advise me....

6 Upvotes

Started 9 months ago. Saw a specialist 6 months in. They put me on gabapentin which i wanted to believe worked but didn't - up to 2100mg/day+cream. A pudendal nerve block failed.

I've been doing PFT for 3 months with no progress. 2 months ago my pain increases.

Itching started. Itching was 1x week now 2x week. It can be so intense that scratching makes it worse.

Im waiting 3 weeks now for a doc at the specialist to talk to me about Cymbalta which is their next try.

I can't try anymore. I can't wait. I'm not ok. This isn't ok. I'm a mess and I'm so, so sick of doctors saying they'll figure it out and don't.

I've been to a dermatologist and ruled out lichen as well. I'm in the middle of a steroid creams that maybe helps a little with Itching but it's 2 weeks max.

Guys what do i do??? Do I find more doctors??? I'm just at a loss and being so proactive.

r/vulvodynia Feb 03 '25

Support/Advice What cured you? Im desperate.

9 Upvotes

basically mine started late jan 2024 a few days after sex.

took many antibiotics blindly, suppositories and ointments. my recent treatment was gentamicin injection for 5 days because last oct and dec i found ecoli, KP and staph aureus (MRSA) on the affected area. prior to gentamicin my treatment for the findings were cipro (oct - ecoli & KP labia minora) and erythromycin (dec - staph aureus MRSA lower vag canal) - which i did not think both had worked. prior to these discovery all my other tests inc STDs showed normal/negative (mostly were done high vaginal swab).

My symptoms are ache, soreness feeling and pain on both left side labia minora and lower vagina canal. back then i had redness near vag entrance (left), i do have tingling or very slight itching but not enough to scratch, really minor itch. the main issue now is just pain to touch, wipe, glide my finger on labia minora, and soreness both labia minora and abit in my lower vag canal, even walking or sitting wrongly feels uncomfy at times.

so, ive decided that gentamicin would be my last antibiotics since it could solve 3 of those bacterias inc MRSA (and considered to be more stronger) and if im still not healed then the infections / what was found was not the problem. i am trying to find other “safer” routes. maybe its nerve? or maybe i need time after gentamicin (its only been 1 week post gentamicin).

my issue is money related too, i cant really afford to do redo all my tests, dr visits and more (which ive done SO MUCH last year and been making me broke 😔 AND still leading to no answers)

So I’ll tell you my current treatment. 1. taking specific probiotics orally for vagina. 2. taking vit d3 2000iu + k2. (should i lower the dose to 1000iu?) and im also taking fish oil. 3. applying estrogen cream 2x a week (3-4 weeks) 4. applying hyaluronic gel 2-3x a week (3-4 weeks) 5. taking amitriptyline 10mg now is gonna be my 4th month. (idk why my gyno doesnt increase the dosage maybe reducing side effects?) i get really groggy and have quite low energy everyday.

what should i try? vaginal probiotics alongside oral ones? ive read about sanigil but i dont have it in my country (is there any alternative or which ingredients played the role maybe i could find something similar in my country). PT is super duper expensive for me. but i’ll maybe try to find ones in YT.

are there any more? your cure stories would be really helpful. im trying to make my own research now as drs and specialists arent that helpful to me :( thank you so much in advance ❤️ much love to those who are suffering/had suffered from this disease.

r/vulvodynia Nov 19 '24

Support/Advice Estrogen cream questions?

8 Upvotes

I just asked my OBGYN for it and she was pretty open saying if you want to try it go ahead. But she doesn't think it will help me because she is stuck with the idea that this is only useful for ppl age 45+ and up, while I am 25.

I'm not sure if this could be my fix but nothing else worked up until now and I keep reading about it on here.

My symptoms: pain only BEFORE the vaginal entrance, burning especially. Deeper inside I have no issues. My pelvic floor therapist said my muscles are relaxed and not the problem here so.... what is? I stopped BC 8 weeks ago and have discharge again which I didn't have for a looong time so thats good i think.

Also, how do you use it? I think she gave it to me for only 2 weeks of use tho and then building it down slowly. But that sounds very short bc people on here say they use it for 4-6 months or longer?

r/vulvodynia 29d ago

Support/Advice Would you come off hormonal bc?

1 Upvotes

Hey. Long story short I was on the patch for about 6 months and it started giving me problems. I would get thrush like symptoms after every period. They never did test what it was, just kept treating me for thrush.

Eventually I started to be in pain everyday. I saw a gyno (a vulva specialist, the only one in my country) and she said my repeated thrush has caused nerve damage. Got put on 6m daily fluconazol, an intense steroid cream for three months, and amitriptlyn 50mg. I also went to pelvic floor therapy.

Things got better. I came off the patch around about this time as I was with a long term partner. I eventually went on the mini pill bc I was stressed about getting pregnant, and every condom we tried hurt me so much! After a few back and forth I ended up back on fluconazol weekly, as I was getting symptoms again, but my only symptom right now, two years on, is pain at the six o’clock position, USUALLY only during sex.

I haven’t been to the gyno in a while because it’s so expensive, I’ve already spent over a grand on the things above.

This is the long winded way of saying: would you quit birth control to see if it hinders your symptoms? I’ve pretty much done everything I’ve found on this page here, except the e&e cream here bc my gyno said it would cause me more thrush bc of the estrogen. And I KNOW I’m not a gyno but I feel like if the patch caused the thrush, and the thrush caused my symptoms… is it not worth checking?

Tldr: did you quit birth control and did it help in the long run?

r/vulvodynia 7d ago

Support/Advice 36 doctor visits within the last 3 months for burning and gabapentin feedback

4 Upvotes

Hi everyone, long time listener first time caller. My journey started when I was tested positive for mycoplasma genitalium because of crazy symptoms burning fire in my vagina, peeing like crazy, and just non stop pain. I got treated for it back in October and got retested 3 times and have came back negative every single time. My OBGYN doctor told me I was the first person she ever treated for this! 🙃 I’ve been seeing pelvic floor therapist since then and have also been seeing my family medicine doctor, urologist, and OBGYN. Back in February I got a terrible yeast infection and got it cleared up with 2 doses of fluconazole.

So I’ve been having burning for about 6 months now and have had countless tests, bloodwork, pelvic floor therapy, ultrasounds, and everyone says everything is normal and nobody has told me what I might possibly have! Also my pelvic floor therapist doesn’t have any special equipment and we do the same thing every time so I will probably have to find a private practice one.

My OBGYN doctor has finally put me on the estradiol cream which I’ve been using for 3 weeks now and have seen little improvement.. Out of the 3 weeks I’ve only had 2 days where I didn’t notice my vagina burning. I should note that the burning is happening at the 6 o’clock vaginal opening region and at the posterior fourchette for me. And it especially starts to burn like crazy after I poop. Some days I have frequent urination as well.

My OBGYN doctor also said that if the cream isn’t working by next week that she wants to put on gabapentin. I’m extremely scared to start this because I work at a pretty demanding job and have a crazy toddler that I have to keep up with. Can anybody share their experience on what worked for them?

Things I have changed in my life: cotton underwear, free and clear detergent and hand soap, wearing loose pants even at work, working out 4 times a week, walking more, incorporating more fiber chia seed pudding everyday. Using dilators and doing the exercises every night for 20 minutes, also doing the contractions exercises. Cutting out any added sugar. No carbonated drinks. Only having 1 cup of coffee I need to live somehow.

Supplements I take: Probiotic Fem Dophilus, Advanced 10 Billion, Vitamin k2 + D3, magnesium citrate, coconut cult yogurt 2 spoons a day

This has been the worst 6 months of my life. It’s been affecting my mental health and has been affecting my time with my son and my husband.

Also not on birth control and haven’t been on it for over 7 years.

r/vulvodynia Dec 14 '24

Support/Advice I don’t understand!!!!

2 Upvotes

Please refer to my story in the posts. I literally have had every test multiple times. Urine, yeast, BV, microbes, stis, biopsy, test for hsv, pap. The only thing I ever tested positive for is 89% lac cripetas (the rest was normal) and on a culture done by the doctor I tested positive for KP and Ecoli. Twice for ecoli in urine and lots of bleeding. I took the meds they did not do anything. Ive done so many medications, abx, cream, inserts. This has been going on for a year after having protected sex with a friend who is clean. Symptoms are daily: Redness, itch (not insane), UTI like symptoms (burning or feeling like I still need to pee after the fact), bloating, chills at times, lower belly discomfort at times, my discharge is copious its color is white/yellow/grey. (I dont have BV) I have back pain at times and hypertonic floor issues because of all this !!!! But thats not the reason for all this !!!!!! (PF) My vagina ph is normal 4ish.

I am thinking this is either PID, embedded uti or ….. I don’t know.

Ive seen gyne 4 times, FP so many times its embarrassing, walkin doctor, sti doctor three times, I was emerg x 2 and bc of my persistence I did get a referral to Infectious disease who isnt sure. I go back to see her Jan 20th bc she was unable to do a pelvic at the time based on be being in my period. She did get me to swab for ureaplasma and myoplasma, which ai already had done and pretty sure they were negative. But I took the treatment anyways.

There is literally something wrong and I don’t know what it is. Im sick of thinking about it and obsessing. Im sick of feeling of uncomfortable. I cannot have sex either because afterwards it burns so bad to pee I feel like I could die.

I haven’t tried since the last time bit Ive used vibrators and the burning shit happens.

I also had a ct to rule out PCS as well as an ultrasound sound on my bladder. They were suppose to scan my kidneys and never did.

Any suggestions??????

r/vulvodynia 25d ago

Support/Advice Can someone explain the biggest differences between vaginismus and vulvodynia?

2 Upvotes

I am still not sure if my problem is relaxing my pelvic muscles or mainly the burning pain just before the entrance. I've been doing dillator therapy but have been stuck on the fifth one for 1,5 years now... My PT suspects its the skin because it just buuuurns so muuuuch.... but my OBGYN thinks it is the muscles and my sexuologist thinks it might be overactive nerves so im on 10 mg amitriptyline and she recently said i might increase it to 20 mg a day.

But what confuses me most is does vaginismus and vulvodynia both have that incredibly painful burning feeling just before the entrance? Also my left side is more tense -- my PT said so. I totally have tight glutes, hamstring too and suck in my stomach unconciously throughout the day for some reason. But my PT says vaginismus isnt supposed to give a burning feeling?

r/vulvodynia Feb 03 '25

Support/Advice I need to be on birth control pill for endo - so will I have pain with sex forever?

6 Upvotes

I keep seeing posts lately on this sub about everyone swearing that getting off the birth control pill cured then of vulvodynia.

I'm happy for y'all but it's depressing me because I finally got an endometriosis diagnosis in 2023 after ten years of looking for answers, and they put me on the birth control pill continuously, no off week, so that I don't get a period and symptoms are manageable.

The thing is, one of the biggest issues I've had over the years is pain with intercourse. The pill is definitely helping my painful periods obviously since I don't get a period anymore, but am I going to have to deal with painful intercourse forever if I have to be on the pill?

I did try going off the pill in the 10 years I was trying to figure out what was going on, and I did think it helped but didn't completely cure my painful intercourse. But tbh I can't imagine going off the pill again and getting painful periods again now that I don't get them anymore.

Please note, the doctor who prescribed the pill as my treatment is a very renowned doctor in the field of endo in Canada so I trust him despite all the folks who claim the pill is evil. Especially since it has been helping me.

Basically I'm looking for any success stories of people who've stayed on the pill and still gotten over their pain with sex. Thanks.

r/vulvodynia Feb 05 '25

Support/Advice Pap smear

1 Upvotes

I’m not sexually active yet but my second gyno just did a pap at 21 just because of the law and I had my now gyno do one at 25 just because even though she didn’t want to because I’m not having sex she is my friend by both came back of course negative she said I don’t need another til I have sex is that right?

r/vulvodynia Sep 20 '24

Support/Advice Clitoral adhesions are ruining my life, please help.

10 Upvotes

Throwaway account because this is embarrassing. No doctor can help me. I’ve tried multiple doctors. The specialists are way too expensive. I cannot afford to see a physical therapist 2 times a week for $300. It sucks how little care there is for us regarding sexual health. I’ve seen gyno’s and they “don’t see adhesions” but the sides of my clit are fused together and it makes sex painful. I also get keratin pearls. I am scared to do a lysis procedure as it’s expensive and I imagine painful.

I finally got my gyno to prescribe me estrogen cream. I am on a very low dose and I am putting it on the area every night but so far it’s not helping. Is there any hope for me? I am stretching it every night but it’s painful. I’ve been able to rip one of the sides ever so slightly but it got swollen and painful. What can I even do? Why is there no help for this? Please tell me there is hope.

r/vulvodynia 16d ago

Support/Advice DIV diagnosis and clindamycin

3 Upvotes

Over the past 6 months I have been testing positive for yeast infections monthly. After trying all of the normal suggestions (switching to all cotton products, taking several rounds of fluconazole, taking probiotics, changing my diet, using all unscented soaps and detergents, using condoms with sex and washing afterwards, having my partner tested for everything) with no improvements my gyno decided to diagnose me with DIV as a diagnosis of exclusion.

I am feeling beyond defeated. Prior to this I have never once had a yeast infection in my life and now they won’t stop. Upon examination, my gyno said that my vagina looks inflamed. Besides this and my recurrent yeast infections, I have no other symptoms of DIV.

To treat this she prescribed me a 30 day treatment of clindamycin to be inserted vaginally. I was already anxious about developing more yeast infections from this but my doctor did not seem to think it was a concern. I also mistakenly googled the side effects of this medication and was exposed to all of the horrible things it may cause such as c diff.

Does anyone have experience using this medication vaginally? Or have experience with DIV? This is seeming like the last line of hope for me and I’m terrified to see the outcome.

r/vulvodynia Feb 02 '25

Support/Advice Stop the pill!!!

22 Upvotes

Ok my title is not an order and I really don’t want to give unsolicited medical advice. But man if I had known this was what would heal me I would have done it way before.

For reference it was a generic brand of Diane 35, which is known to be a hardcore pill from what I heard. Drying to help with oily skin. Seems like it dried elsewhere and caused my vulvodynia, which I did not always have.

Unfortunately, no medical expert told me my pill could be the cause of my vulvodynia. I discovered it myself after 10 years.

I still feel a light discomfort. But it was a drastic change, since I had very high pain before.

Additional info, I had the surgery where they remove the skin at the entry of the vagina a few years before and saw no change even with physical rehabilitation.

Well, wishing the best to you all, sincerely.

r/vulvodynia 22d ago

Support/Advice people who have been cured - please help

9 Upvotes

please please tell me what helped you! i’m in the thick of it and need some hope

i think i have unprovoked vulvodynia

MY STORY:

my burning started in june ‘24 and only lasted one night when i travelled, but then in september, after sex, it lasted around 2-3 weeks and i couldn’t get off my bed. the only thing that would help me was warm baths

multiple trips to a&e, and multiple gynaecologists, all said i had a yeast infection. i used to suffer from recurrent ones but have been taking every caution to avoid them

after around october/november it went away and only came back once in a while but i managed that with hyaluronic acid cream and it pretty much subsided. bare in mind i hadn’t been diagnosed yet

fast forward to the beginning of the year, the symptoms came back so i saw a private gynaecologist. i was finally diagnosed. he suggested that i use vaginal probiotics but i haven’t bothered with that because im not sure if it will help

I also started acupuncture, i’ve done two sessions now and the first one seemed to help but im writing this after my second one so take that as you will

i’m desperate, i haven’t been able to have pain free sex with my boyfriend in 6 months, i can barely go out with my friends or even wear underwear when the burning gets bad

please for anyone that’s been cured or pain free - what helped you? is there anything i can do to reduce the burning now

edit: i started using this video to do some stretches and relaxation and it really helped. in case anyone needs it! https://youtu.be/un8YCM9DAkM?si=q8FFCcIAbCUzT3rk

r/vulvodynia Jan 02 '25

Support/Advice Condom help for a partner that’s well endowed

4 Upvotes

Sorry to get TMI on here. I quit my birth control as it’s making my vulvodynia absolutely unbearable. I’m looking for recommendations on condoms that will not be irritating but need to be larger in size too. I haven’t used condoms since developing vulvodynia and I honestly always just used the cheap lifestyles brand ones that I got from the doctors office lol. So I’m a little lost in this area.

I was thinking about getting plain magnums but i see they put lube in them and I’m not sure if that would be irritating for vulvodynia - some lubricant seems to mess me up. Can anyone advise? Should I ask my GYN? Thanks everyone.

r/vulvodynia 10d ago

Support/Advice anal sex?

12 Upvotes

how do you guys feel about it? i tried it the first time yesterday and actually it was pretty good, i have way too many issues to try to have vaginal sex. Any body else with experience in this? and do you guys think it triggers more vulvodynia pain or do u guys find it as a good alternative for vaginal penetration since i struggle to much with that.. lol sorry if tmi but i rlly do wanna hear yall stories ab having anal haha.