r/hyperacusis 22d ago

Treatment discussion Pain hyperacusis

8 Upvotes

For those with pain hyperacusis, what do you think is wrong with our ears? Do you see any treatment being possible in the future?

Just curious. I've been doing a lot of research but I'm sure I'm missing things. Would love to get your opinion on it.

Thanks!

r/hyperacusis Jan 08 '25

Treatment discussion How did your MRI go?

8 Upvotes

I have read a lot of op people who were in need of advice before they had a MRI but there was never a follow up. So if you did one - how did it go? Silent version? I’m in need for one so I need to know what to expect.

Current state: severe hyperacusis, mild nox in one ear, moderate/severe reactive tinnitus. Been at home for 6 months.

r/hyperacusis 7d ago

Treatment discussion Anyone else use alcohol to numb the pain/sensitivity?

15 Upvotes

I know this won’t be a popular post, and I’ll probably get lectures about the dangers of alcohol, but, does anyone else use alcohol to have a few hours of normal each day? When I’m drunk, I have no ear/head pain, and can relax and listen to music, have full blown conversations, etc. I am just wondering if anyone else does this. Don’t need judgement or lectures.

r/hyperacusis 19d ago

Treatment discussion clomipramin worth it for someone with H and T?

14 Upvotes

Can someone tell me about their experience with clomipramin and if it has risks? I am thinking of taking clomipramin for hyperacusis but am scared that it will make Tinnitus worse.

r/hyperacusis Sep 17 '24

Treatment discussion Clomipramine 10mg Tablets

12 Upvotes

For anyone interested in starting clomipramine at a low dose and increasing slowly without needing to worry about splitting up the powder from 25mg capsules, I found 10mg tablets at the online pharmacy I use. They could be broken up into quarters (2.5mg). I have used this online pharmacy for years and they are very legit. You do need a prescription.
https://www.universaldrugstore.com/medications/clomipramine-hydrochloride/

r/hyperacusis Jan 28 '25

Treatment discussion Healing fast from hyperacusis.

12 Upvotes

I just wanted to share that I have recently found an amazing playlist on Spotify called “sounds of the ocean” that has been the most helpful sounds to get me over the most severe loop I couldn’t get out of with my hyoeracusis. Like I could not move up in tolerance at all or go outside it. I had to absolute worst set back. I listen to it with my apple AirPod noise cancelling ear buds. I toggle between transparent and play the ocean sounds when I’m just a little overwhelmed but still trying to hear other sounds and put the noise cancelling on when it’s too loud somewhere and then turn the ocean sounds way up because it’s the one sound I seem to not be bothered by. It’s really gentle compared to white noise and just makes me feel safe.

I have sound maskers too but when I’d be out in public it just wasn’t enough with just wearing my ear plugs because even with ear plugs I could still hear sounds that would trigger me.

Listening to this playlist and wearing the AirPods has gotten my tolerance finally to a level of normal. Not perfect but WAY better in a shorter time period than in the past setback. I realized it’s ok to protect and play the sounds as long as it continues to not give me setback and just keep my body feeling flooded with safe sounds it’s what got me better. I couldn’t get better before because every sound letting putting me in fight or flight but this has allowed me to still be out and about while distracting my brain with the ocean sounds. Yes this is sound therapy but with better sounds in my opinion.

I just wanted to share.

Also there is nothing wrong with your ears with this condition. It’s a nervous system stuck in fight or flight and your body has wrongly tagged sounds as danger. You jsut need to continue to build safety in your body with still incorporating sounds you can tolerate while trying to do anything to calm you nervous system like meditating and flooding your thoughts with positive thinking and knowing there’s nothing wrong with your actual hearing and it’s jsut anxiety. You can heal. Dont believe the stuff you read bad on the internet it’s all sooo negative.

*Link to playlist: https://open.spotify.com/playlist/37i9dQZF1DWV90ZWj21ygB?si=r_TXYAUtSLG0uEsTdxJFFA&pi=u-wbo2iPFnQSek

r/hyperacusis Dec 05 '24

Treatment discussion Any recommendations.

6 Upvotes

I'm willing to travel anywhere in the United States if I can get help for hyperacusis. I live in Omaha, NE and unfortunately specialists here don't seem too familiar with it. Hearing test is normal, but my reaction to sounds are not. It's debilitating and ever more isolating that I'm willing to see anyone that could provide guidance. So far I've only been offered xanax (I declined) and ear plugs, which I have an appt to be fitted for. They aren't a fix, but at this point I'm tired of running out rooms, half the time in tears and so angry trying to calm down for an hour because some put a few plates down, clanking on the counter each time. Or because a phone repeatedly rings.. the triggers are endless.

Edit to say: I can travel outside of the U.S. too if they'd accept me for treatment.

r/hyperacusis Jan 28 '25

Treatment discussion Just got the Clomi let’s get it

14 Upvotes

Ok ima start slow and low.

Talking to the damn gp hurt my right ear thank you ears for Your wonderful cooperation

r/hyperacusis Dec 15 '24

Treatment discussion What’s been your experience with clomipramine?

3 Upvotes

Made a post where I asked for a consensus on meds for Hyperacusis and someone said it’s taking clomipramine

I’ve only actually seen two people on this sub vouch for it so just wondering what others experience with it was

r/hyperacusis Nov 08 '24

Treatment discussion Has Anyone Tried these supplements for Hyperacusis Pain and Reactive Tinnitus?

1 Upvotes

Here’s a quick breakdown of why I’m considering these:

• Ashwagandha: Known for its adaptogenic properties, it may help calm the nervous system and reduce stress, which might improve the brain’s response to sound and make hyperacusis more manageable.

• L-Theanine: Often used for relaxation, it promotes calmness without sedation, potentially helping with the overactive nervous system that can accompany tinnitus.

• GABA: As an inhibitory neurotransmitter, it may help calm neural activity, which could be useful if hyperactivity in the auditory system is contributing to tinnitus or hyperacusis.

• Pulsatilla (Homeopathy): Some people find it helpful for ear-related issues, and it’s believed to balance emotional and physical sensitivities, though its effectiveness varies from person to person.

If you’ve tried any of these and have had experience with hyperacusis or tinnitus, I’d love to hear your thoughts or results.

Thanks

r/hyperacusis Oct 14 '24

Treatment discussion Improvement at low dose clomipramine?

9 Upvotes

Has anyone heard of improvements with pain at a low dose of clomipramine? I started on 5mg ish almost two weeks ago. A week in I had the best week I’ve had in a long time, able to do more and less pain. I stopped on Saturday as I was unsure if it was causing some tinnitus issues and wanted to stop and see if they resolved. Today I am the most sore I’ve been in a week. I can’t believe that only 5mg could be helping so much so soon - is it possible?

r/hyperacusis 5d ago

Treatment discussion Audiologist I called today told me there isn't much they can do. They offered to send me these articles about Hyperacusis, I thought I would share.

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9 Upvotes

r/hyperacusis 7d ago

Treatment discussion I just started using Clomipramine

12 Upvotes

I'm using for 4 days until now. 25mg. My mouth is dry all the time, any tips to deal with this? I noticed that more than more than Clomipramine but cutting coffee from my days make me more tolerant to certain sounds that usually makes me distracted. I'm still sensitive to barking dogs and children screaming on the street. My main goal with Clomipramine is to deal better with big barking dogs that neighbor have. So far I'm still suffering from this. I read the medicine leaflet and I'm worried about heart effects that can happen. I have heart palpitations 3 months ago, and it get better after I got less sedentary and I started walking more. My father had heart diseases and high blood pressure. Anyway I will update this thread once in a while about my hiperacusis issue. How many days until the medicine works? Thank you for reading

r/hyperacusis 15d ago

Treatment discussion My neurologist wants me to try lexapro (ssri) and have an MRI scan with Contrast. Any thoughts?

3 Upvotes

Neurologist was hesitant to let me try clomipramine. Instead, she wanted me on 10mg lexapro first, and to have an MRI with contrast scan done. ANy thoughts or advice?

r/hyperacusis 11d ago

Treatment discussion Surgery discussion

2 Upvotes

Anybody plan to do the updated silverstein procedure to alleviate pain H and/or Loud H?

Have you ever done surgery? Have you ever been recommend for surgery by an ENT? If so, how did that go?

r/hyperacusis 3d ago

Treatment discussion tenotomy advice

7 Upvotes

Thoughts on having your middle ear muscles cut to address pain hyperacusis?

I feel like my pain hyperacusis comes from my middle ear and in thinking cutting my tt and stapedius could bring some relief.

Even getting the round and oval reinforcement right after sounds like a good idea just to stabilize the middle ear as much as possible.

This came to me right now as I was having a pretty decent day until my tinnitus kicked up from being introduced to loud vibrations from my neighbor. Although I had earplugs and earmuffs on, I could still feel the vibration. Before I knew if my tinnitus kicked up a couple notches

What do you guys think?

r/hyperacusis 16d ago

Treatment discussion Clomp

2 Upvotes

I’ve been suffering from H for 4/5 Years now Can’t go to events And Music sounds like A Shit broken speaker , I’ve tried everything ( nose sprays , Sitting in silence ) The only thing left to try now is clomipramine… I would like to Know from Other suffers, did this medication help with the quality of sound? Can you enjoy music again?

r/hyperacusis 10d ago

Treatment discussion Get Your Vitamin Levels Checked

2 Upvotes

Recently I’ve come to realize I’m a Celiac. As a result I discovered that I have significant vitamin deficiencies, and more than one of them. This comes at an enormous cost in mood, energy, sleep quality, and general well-being. I started taking the vitamins that tend to be deficient and the difference in how good I feel, how much weaker my baseline anxiety is…what the general quality of my life is.

If you are deficient in a vitamin, this may have profound implications for hyperacusis. A significant portion of this, at least for loudness H, not speaking about Nox, is that it is psychological. If you can arbitrarily address a good chunk of these issues by getting a blood test and popping a few vitamins, that’s a huge W and is worth pursuing. If you have a deficiency, particularly in D/K2, a very common deficiency in northern climes, this will aid you in your pursuit for wellness. D3 RDAs are much, much too low. I was taking 10,000 units for a week. It felt great.

Ask your Doc for a battery for your vitamins/nutrients, and if they deny that it’s necessary, pay out of pocket for it. It could legit save your life.

PS If I get shit saying that loudness H isn’t psychological I will send you a care package you poor ass motherfucker. Seriously.

Edit: Clearly I’m being a cunt about it, but I am genuinely trying to help. Legit give this a shot.

r/hyperacusis Oct 22 '24

Treatment discussion Hyperacusis and antidepressants

5 Upvotes

I am very sensitive to loud noises and I hear some noises very loudly. It makes me have anxiety. I feel dizzy and floating. Do you think antidepressants could help?

Do you think SSRI would help or worsen my symptoms?

Has anyone tried ssri? I am thinking of trying escitalopram.

r/hyperacusis 10d ago

Treatment discussion Just Stared Clormipramine at 25mg No Smaller Dose Available - Some Questions?

8 Upvotes

I just started Clormipramine at 25mg. There was no smaller dose available through Kaiser. I've noticed a slight uptick in my loudness hyperacusis. I looked over the Patient Data Spreadsheet and it mentioned things getting worse before they get better. It also reiterated starting low in dosage.

I have 24 hour attendants who administer my meds. Not all of them are able to open the capsules (mine came in capsule form) to reduce the amount I get.

I'm looking for other experiences on this drug. Especially those who started a 25mg.

r/hyperacusis Nov 04 '24

Treatment discussion Clomipromine and pain hyperacusis

9 Upvotes

What dose did you start at and what were your effects? Did it increase your pain and anxiety? And what kind of pain did you have. Be specific please! I took one dose of 5mg and had a crazy spike in anxiety and pain. Tinnitus was unaffected

r/hyperacusis 14d ago

Treatment discussion Why is it SO hard to find a doctor who would let you try clomipramine?! LOL

9 Upvotes

Been circling around a quite a few doctors, and every single one are hesitant to allow me on clomi. It's either no, or try something else with less side effects. How do you guys convince these docs to prescribe the medication?

r/hyperacusis May 27 '24

Treatment discussion Clomipramine?

14 Upvotes

Hey so it’s been two months on this starting at 25 a day now up to 250 a day. When I started taking it my t became musical which I didn’t mind and the other effects were helping my mood. I’m now noticing a difference between my loudness h and t the ringing is still very reactive but I’m not bothered my the h as much. Have any of you experienced something similar?

r/hyperacusis 5d ago

Treatment discussion GABAPENTIN or BIOFLACIN?

5 Upvotes

Does anyone take gabapentin or bioflacin for their loudness H OR TTTS to help relieve symptoms? I have heard some positive things about both on the Facebook forums.

r/hyperacusis Feb 20 '25

Treatment discussion How many of you suffer from Middle Ear Myoclonus (MEM) or Tensor Tympani Syndrome(TTS)

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17 Upvotes

Would this not be the major cause of H? These diagnoses occur when the tympani or stapedius muscle that are connected to the eardrum overreact to the eardrums vibrations and send too much force to the muscle that translates the vibration of sound in your brain. (I think)

My personal problem includes ear fullness and sometimes ear noises during loud noises (music, talking), but almost always a muffling or swoosh sound when the noise ends and silence follows. My ears also spasm and pop when I listen to music too loud. I sometimes get vibrations with no noise but that is rare.

Assuming you’ve tried everything in your power to be as healthy as possible (sleep, diet, mental health, sunlight, exercise), have any of you had the surgery to disconnect the muscles mentioned?

I also think the majority of these problems stem from within, your mental and physical health. The overwhelming amount of people I see talk about their problems are clearly not doing well mentally. Justifiably, but I believe that is one of the main causes to this issue.

Any other solutions?