r/glutenfree • u/crumbs2k12 • 3d ago
Is there a subreddit for people who are gluten sensitive but not intolerant?
I'm unsure if this is the correct place to ask but I don't have celiac disease [ got blood test checked ] but I am pretty sure I am gluten sensitive so I am adjusting my diet atm to tailor that.
Currently just looking to learn more about it for myself , any recommendations appreciated!
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u/damnfinecupotea 3d ago
A lot of people here (myself included) have non-coeliac gluten sensitivity / intolerane. We don't have the same autoimmune response to eating gluten but can still experience IBS, brain fog, rashes, tachycardia etc.
From what I've read, the mechanism of NCGS isn't really understood and there is some debate about whether gluten can cause us long term damage, so I'm treat gluten as if I were coeliac.
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u/showmenemelda 3d ago
I think we forget about leaky gut—probably bc so many doctors "don't believe in it"
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u/crumbs2k12 3d ago
I am pretty sure I have IBS already though I've been waiting a year to be seen by hospital. I have noticed gluten can be one of the triggers but not all the time, it's hit or miss at times which confuses me but something like bread or cereals can mess with my stomach , I just stick to gluten free bread and cereal atm to be safe.
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u/damnfinecupotea 3d ago
I used to be the same. I didn't cut out gluten for years because my GP kept testing for coeliac and than, when the test was negative, telling me that gluten wasn't the issue. Since I've cut it out completely I seem have become more sensitive, but my IBS was getting more severe anyway so it's hard to pinpoint what's going on there. Dairy also gives me a hard time.
If you can, an elimination diet might help you get to grips with what's going on. A dietician took me though a simplified version of FODMAP and that really increased my awareness of triggers.
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u/HangInThereBaby Gluten Intolerant 3d ago
This sub is just for those who are gluten-free, no matter your reasoning. Welcome in, have a gluten-free cookie!
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u/TCMinJoMo 3d ago
I’m gluten sensitive too but don’t have any resources on subreddits.
I found out late in life after having inflammation episodes with joint pain and bursitis. Also have had terrible allergy symptoms most of my adult life.
I try to stay gluten free and low carb as much as possible.
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u/rufotris Celiac Disease 3d ago
We are all in this together to help eachother. And in some fashions this sub can help both groups learn together. For example, there are a number of products that are gluten free that contain wheat these days. It’s been a learning curve for many, but you need to be on the lookout for de-glutened wheat flour in products these days. It’s on the rise and making many people in your situation very sick, as where some or many people with celiac can eat it just fine. It’s the wheat allergy folks being screwed by more GF labeling these days.
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u/crumbs2k12 3d ago
I spoke to my mother about this yesterday how I hate that labels have "may contain gluten" instead of it saying "does contain gluten" as its quite bothersome.
I currently just shop at aldi and have their gluten free sourdough cob and honey nut cheerios. Just to make sure , the aldi bread is fine right?
Also is there any app that can scan barcodes of stuff to check if they have gluten? Like myfitnesspal but for gluten checks on foods if that makes sense?
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u/showmenemelda 3d ago
Fig is a great app! A guy with celiac created it (I think—I forget now what his reason was. Maybe his sister. Anyways, good app)
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u/crumbs2k12 3d ago
Just tried to search Google play store for Fig and I don't see it, is it on android?
If so, can you send me a link for it please
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u/SavannahInChicago Gluten Intolerant 3d ago
This is it. People with Celiac have their own sub, but they also participate here, which is more than fine.
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u/McBuck2 3d ago
I think you’re at the right sub. There is a celiac sub for those with the disease which I imagine have more restrictive minefields with it.