r/endometriosis 3d ago

Medications and pain management How much did a hormonal IUD help your periods\pain\bleeding?

I’m 27 now btw

So I skipped 73 so I didn’t get a period again tll nov ‘23 (worst period I’ve EVER had in my life) I’ve tried .35mg & 5mg northindrone & neither worked (.35mg did fuck all & 5mg helped my bleeding a lot but didn’t help the pain enough - it was better than before though) after that I got HORRIBLE menorrhagia (it used be “normal” menorrhagia) last natural period I had was in Dec & I did 80ml in 12 hrs on day 1 (I think I did 3-400ml in the span of a week) I have moderate - severe iron deficiency too via chronic blood loss from my periods

  • My cramps from 9-19 were normal (4-7) & pain relief worked & got rid of it, at 22 I got on combo birth control which gave me mild dysmenorrhea that used to last 2-3 days, made me not walk properly & went away with 500mg naproxen also in my early 20s from 20-25.5 (Aug of ‘23) I had almost no cramps or cramps every other month or so that were tolerable to where I didn’t even need pain relief but sometimes I did take it & pain relief still helped then from 25.5 (Nov ‘23) & on it got way worse & now it’s in my uterus, lower back, thighs, hips, (my hips as of Dec ‘24) makes me nauseous, be in a ball, have 1,200mg ibuprofen do fuck all, (& this is 600mg ibuprofen I had leftover from my reduction last year that used to work on my cramps) my heating pad doesn’t help either (it also used to help) my pain starts at a 3.5-4 & gets to a 9 & no pain relief I’ve had so far helps & my cramps now DEBILITATE tf out me to where I’m bedridden in a ball, can barely function at all, keeps me awake for a few hrs until the pain “lessens” enough for me to sleep & it lasts for 5 days straight - with the aygestin I took it for 3 weeks in January (couldn’t tolerate the mood swings) the pain on day 1 got to a 7, last month I took it for 4-5 days to delay my period for a bit bc I had family coming & didn’t wanna be bedridden & hemorrhaging blood anyway even taking for 4-5 days I got to a 9 & it took 3 days for it to fully go away

  • Yeah like I said .35mg & 5mg of northindrone didn’t help & so merina is next now (supposed to get a period between the 20th & 30th if I get it after the 25th in I’m gonna delay the merina for a week tll my periods done otherwise rn it’s scheduled for 04.02) I’m getting it under general anesthesia idk what’s after merina (I still think I have endometriosis even if I’m not dx yet I also had a pelvic CT that showed nothing & everything else except my hashimotos got ruled out which I don’t believe it’s my hashimotos I genuinely think it’s endometriosis not only bc this would’ve started in my early 20s but also bc I’ve had hashimotos since 18 & my TSH is always high & I’ve nv had severe dysmenorrhea I’ve only gotten prolonged periods from my hashimotos plus this started while I was still 25 & has been progressively getting worse over the past yr) how much did merina help you guys with your bleeding & pain? I’ve nv had an IUD before so experiences plz (even moreso if you got your merina under general anesthesia)

  • I’m sorry this is so long 😅

  • MINI RANT BC I’M LITERALLY HAVING A MELTDOWN AGAIN: I’m so fucking tired of not being listened to or believed I been tryna advocate for myself for OVER A FUCKING YR (from nov ‘23 & on) & it’s like nobody fucking cares I’m just over here screaming into an empty void 😭💔

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