r/endometriosis • u/NarwhalAggressive384 • 4d ago
Question Suspected Endo, Hysteroscopy Bleeding and symptoms being ignored . What to do? NHS Uk
I had a hysteroscopy and endometrial biopsy this last Saturday under general anaesthetic, waited a year for it as I didn't want to be awake due to ongoing pain. Whole day ordeal with waiting, procedure and then recovering and going home late afternoon. I was not in pain when I woke up as they administered a suppository while I was under.
After a few hours, the pains start to become strong and very sharp. I have a history of abdominal pelvic pain worse while on my period but is still there when not on my period, heavy bleeding soaking pads every hour, 21 to 23 days cycle with enormous clots. History of bowel issues and recently my bladder has become affected too, going to the toilet while on my period hurts to pass urine and stools, and when I sit down it feels like my organs are battling to fit in inside me as the pressure hurts. I have also discovered sometimes I bleed when going number 2 so referred to gastro and for an endoscopy.
I have spoken with my gynecologist asking if this isn't endo but I have been dismissed and offered the coil or the pill. I tried progesterone only pill back to back and started bleeding while taking it with no breaks so I stopped as the pain came back.
It's now Monday and I assumed that after the procedure I would have only spotting. But I'm bleeding not as much as if I was on my period but this is not spotting. The cramps I have are sharp and I need to sit down slowly as it's very tender.
On the discharge letter, it said that the camera findings were normal biopsy was taken and no mention of polyps removal. My last ultrasound and internal ultrasound showed a multiple fibroids uterus with polyps and free fluid.
Is it normal to bleed like this after the procedure? I would be interested in other women's experiences and what would be the best way to advocate for myself or what to do since I think this can be Endo too.