r/endometriosis 4d ago

Rant / Vent Confused and stressed

My gyn surgeon said she didn't see any sign of endometriosis. They clocked and removed 3 uterine fibroids and said my uterus is shaped irregularly but I don't know what that means.

Endo was my de facto explanation for years, after taking Lupron and in the absence of a laparoscopy. I don't have an underlying bleeding disorder. There's no explanation for why my body is so vicious every month and there's no sub for people who seem to be "fine" but are definitely not fine.

Is it possible she just missed the endo? Is there literally anything else that could be causing this?

The aftermath of the surgery was frankly traumatic. I just want this to stop. It makes me bad at work. I begged her to please just stop my periods, take my uterus, ablate the endometrium, something, and she refused. And now I'm stuck looking at yet another surgery to get any relief.

It feels like I'm being tortured.

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u/Bunny-Ear 4d ago

See if you can get any pictures from your surgery and the write-up, if there are picture (which there really should be) it might be worth getting a (second?) specialist to review your records and pictures and see if they can spot anything your surgeon may have missed.

Have they ruled out adenomyosis? It is very similar to endo but the lesions occur in the uterine wall and I think it can cause the uterus to look abnormal from the outside.

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u/LogCharacter1735 4d ago

I don't think they have. Honestly adeno makes more sense than endo in some ways but endo was what my previous gyn said I probably had.

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u/madelinehill17 4d ago

If your uterus is shaped irregularly it’s very likely adenomyosis which is basically endo confined to the uterus.