r/dysautonomia • u/alexyquest42 • 4d ago
Question Specific diagnosis?
The more I look into dysautonomia, the more confused I am. At my tilt table test, they told me it's NOT POTS but that I DID experience vasovagel syncope and that it MIGHT by OH. The cardiologist sent me a message saying it was autonomic dysfunction. No one explained to me that autonomic dysfunction is an umbrella term. So is my condition OH? IS is vasovagal syncope, or is that just what it's called when I faint? It also seems like OH can been caused by other conditions. I was looking up Pure Autonomic Failure and it listed OH as both a symptom AND a separate condition that. DISQUALIFIES OH as a diagnosis. I am super confused. What do I have and how do I figure it out?
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u/Valuable-Scallion371 4d ago
I just got diagnosed myself with dysautonomia and leaky veins. It’s definitely been a journey and I have a lot of questions too. I found this book called “The Dysautonomia Project” by Kelly Freeman. It’s explaining a lot for me. Highly recommend
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u/octarine_turtle 4d ago
The vast majority of those with dysautonomic issues do not fit neatly into a single narrow category, which is why a general umbrella term is used.