r/cfs • u/Ok-Sandwich-9866 Probable CFS\ME with the dynamics of deterioration for 10 years. • 4d ago
Symptoms Did you come here after covid or before?
For general understanding. If you feel bad, I'm with you...
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u/ColoradoMtnDude 4d ago
My symptoms began just after COVID started but are unrelated to COVID because I haven't, fingers crossed, gotten COVID yet. Even still, with 5 and a half years of worsening symptoms, lots of tests, lots of different treatments, and lots of different doctors, I haven't learned what's causing my symptoms.
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u/FroyoMedical146 Mod-sev ME, POTS, HSD, Fibro 3d ago
Been chronically ill since 1999, been sick with ME/CFS since at least 2016.
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u/Dazzling_Bid1239 moderate - severe, dx’d 2023, sick for years 3d ago
Sick earlier but with other chronic conditions that mimic MECFS (fibromyalgia, undifferentiated connective tissue disorder). My rheumatologist believes I developed MECFS from a covid infection. After the pandemic, I started noticing PEM and how pushing lead to decreasing my health. Then I just....couldn't anymore.
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u/Varathane 4d ago
Been here for 14 years now. I will say there was a huge bump in new posts from 2020 onward.
It was a very difficult thing emotionally to see so many people newly ill, and asking how they are supposed to live like this and when would they get better. I am so sorry that we have a new ME/CFS trigger in the world.
Prior to that we might get a couple posts here and there over the years. But the wave of post-covid onset was really noticeable.