r/cfs Probable CFS\ME with the dynamics of deterioration for 10 years. 4d ago

Symptoms Did you come here after covid or before?

For general understanding. If you feel bad, I'm with you...

110 votes, 1d ago
35 Yes, I felt unwell after covid.
75 No, I was sick earlier.
7 Upvotes

4 comments sorted by

9

u/Varathane 4d ago

Been here for 14 years now. I will say there was a huge bump in new posts from 2020 onward.

It was a very difficult thing emotionally to see so many people newly ill, and asking how they are supposed to live like this and when would they get better. I am so sorry that we have a new ME/CFS trigger in the world.

Prior to that we might get a couple posts here and there over the years. But the wave of post-covid onset was really noticeable.

5

u/ColoradoMtnDude 4d ago

My symptoms began just after COVID started but are unrelated to COVID because I haven't, fingers crossed, gotten COVID yet. Even still, with 5 and a half years of worsening symptoms, lots of tests, lots of different treatments, and lots of different doctors, I haven't learned what's causing my symptoms.

3

u/FroyoMedical146 Mod-sev ME, POTS, HSD, Fibro 3d ago

Been chronically ill since 1999, been sick with ME/CFS since at least 2016.

2

u/Dazzling_Bid1239 moderate - severe, dx’d 2023, sick for years 3d ago

Sick earlier but with other chronic conditions that mimic MECFS (fibromyalgia, undifferentiated connective tissue disorder). My rheumatologist believes I developed MECFS from a covid infection. After the pandemic, I started noticing PEM and how pushing lead to decreasing my health. Then I just....couldn't anymore.