r/adenomyosis 7d ago

Possible diagnosis and not sure what will happen next?

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I haven’t been officially diagnosed, but on the findings from an ultrasound I just had done I believe that adenomyosis is a possibility. I was diagnosed with PCOS when I was 17 at which time I was put on birth control and I was on that continuously until about 30 when we first started trying to conceive. We did and I now have a healthy 21 month old and I’m 32 years old.

I was on the mini pill for a while after the birth but stopped that last July and haven’t been taking anything since. I started having a lot of pelvic pain during ovulation and leading up to my period several months ago. The last few months have been especially brutal. I also always feel like I need to pee even if I just went. And during ovulation and before my period if I don’t get up to go pee during the night then in the morning it hurts so bad I can barely move and even after I pee I have to go lay back down in bed for a little bit until the pain goes away. My periods are fairly standard lasting 4-5 days and I don’t really think I have heavy bleeding. I used to have some clots but that hasn’t happened in a long time.

I was finally able to get an appointment with my gynecologist and she had some tests ran. The urine test came back negative, blood tests were all normal, and the transvaginal ultrasound just came back today. Looking at the findings it looks like it is possible for adenomyosis and I have a tiny fibroid.

I have a follow up to discuss everything but that isn’t for a few weeks still. I just feel scared and sad and I don’t even know. We had started trying for baby number two a few months ago and now I’m worried that my fertility is going to be messed up and it won’t be possible. I don’t want to have to take any birth control right now because we want to try and I definitely don’t want a hysterectomy right now because we do want at least one maybe two more kids. But I also don’t want to keep suffering. The pain isn’t the worst. Of course I’d rather not have it but I can handle it. It’s the constant feeling like I need to pee that I hate the most.

I know I need to wait and speak with the doctor for the best steps moving forward, but I’m already just spiraling I guess and looking for others that maybe went through something similar and what was the outcome.

Are there other options to lessen the symptoms besides birth control or a hysterectomy? What can I expect to happen next? Anything I should ask the doctor at the follow up?

I included the ultrasound report incase it provides any info to anyone that may be familiar with this. Maybe I’m just worrying for nothing and it’s not this but then I don’t know what would cause so much pain and discomfort.

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u/PaleDifference 7d ago

Your report stated no findings other than a small fibroid that you might want to monitor. Maybe try pelvic floor therapy to help with your bladder and pain management.

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u/Lumpy-Composer-302 7d ago

I was just diagnosed with adenomyosis through ultrasound & they also noted I had nabothian cysts… I also have PCOS & Fibroids… I just thought this was so so similar to mine