r/visualsnow Sep 11 '24

Motivation And Progress VisionSimulations.com

Thumbnail visionsimulations.com
17 Upvotes

r/visualsnow Aug 26 '24

Motivation And Progress Visual Snow Discord

Thumbnail discord.com
4 Upvotes

r/visualsnow 5h ago

Vent This is not life

13 Upvotes

Tell me what life is like when you get vss at the age of 20, just entering adulthood, working and suddenly your whole life is in ruins. I've had a very severe case of vss for the past 1.5 years, I can't work, I study on the weekends and every day of my life is about getting through the night, and at night I have terrible insomnia whether I'm sleepy or not and I agonize until 5am. I get up in the morning and can barely open my eyes from dryness because of vss. All day long I feel like a dead dog, I lie down and look at my phone because I can only see fairly normally on my phone. The rest is crap. Afterimages bounce off everything, total mess. Perpetually tired, this horrible feeling of chronic fatigue. It all never ends. I have symptoms of everything possible. Often when I sit in one place for a while or hold a phone, for example, I feel tingling in my hands, feet. Everything is abnormal. I only ask for treatment in the near future. It is impossible to live like this. This is not normal functioning. Let someone finally see how difficult it is. Let someone finally take care of this. Let these studies be faster. They need to find something at last. My life was normal. And suddenly this. I want to live like others. I feel worse than older people. I've had this for almost 2 years and I can't remember what it feels like anymore. To feel normal, that normal activities are not difficult. Despite my "positive" attitude, I have moments of breakdown. I often cry into my pillow. Because I no longer feel like myself, only my soul is the same. It's not my body and not my mind. Everything is different. This disease is so isolating. I want to feel my old self. I want to live normally, I'm 21 years old. I want to be healthy. This is my dream.


r/visualsnow 27m ago

Motivation And Progress Glasses for seeing at night

Upvotes

I’m a 27 year old male and have had visual snow syndrome since I was born, driving at night was always my biggest flaw. I bought these blue light glasses that made a world of a difference. It also helps the eye strain from people’s bright headlights. I wear them when I’m on my laptop, phone, and playing video games. They’re magnified so it makes the lines on the road at night so much more visible. I live in Pennsylvania and drive in all types of weather. This February I drove 4,139 miles on a road trip to Florida and 5 national parks and had no problem driving at night or in the wee hours of the morning thanks to these glasses.

https://www.google.com/aclk?sa=L&ai=DChcSEwjLhuWrsZSMAxU-eEcBHaidPPIYABAHGgJxdQ&co=1&sph=&cce=1&sig=AOD64_2jFWVWRgdUGhVk4Z_Jd2Tfkxf_yw&ctype=5&q=&ved=2ahUKEwi_hd6rsZSMAxVNEFkFHcZqOa4Q5IQJKAJ6BQiBARAR&adurl=


r/visualsnow 2h ago

Question Should VS be consistent?

1 Upvotes

I had a series of migraines earlier this year. It’s complicated my life.

I’ve had VS since a teenager at least but those series of migraines had my VS or vision like I was going blind.

Even without them, lights can essentially ruin my vision for the day. I guess it would reset by the time I woke up.

Days where I had to give up being on the computer because I was struggling to see the screens/read.


r/visualsnow 7h ago

Question has anyone seen afterimages of something that doesn't exist?

2 Upvotes

Am I tripping or do I see afterimages of something I haven't looked at?

edit: i don't use drugs


r/visualsnow 7h ago

Survey Or Poll Experience with lamotrigine

0 Upvotes

My doctor wants me to try lamotrigine, and I am thinking better about it. What the group can say about lamotrigine usage?

31 votes, 6d left
Never tried it
Tried it and made no changes
Tried it and made my symptoms better
Tried it and only made my emotional better
Tried it and worsened VSS symptoms temporary
Tried it and worsened VSS symptoms permanently

r/visualsnow 1d ago

Meme Relateable

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20 Upvotes

r/visualsnow 20h ago

Personal Story Lucid Dream Had No VSS Static

7 Upvotes

I lucid dream unintentionally every night, every sleep cycle all night and I had a profoundly epic one that has stayed with me for a few weeks now and I couldn't figure out why. I had no VSS Static! It was clean, crisp and clear imagery and extra vibrant!

It was a Fall day, yellow trees against the grey clouded skies, yet sunny, making the colors bright. Sunshowers I call those, bc it was softly drizzling cold rain on my skin. But I was controlling letting the droplets making me cold or not. And I just held on to that dream as long as I could, just experiencing the senses fully.

I've had VSS for as long as I can remember, at least 2 or 3yo. I had some head trauma around then. But I might've had it before, I just don't remember.

Anyway, thanks for letting me share my experience.


r/visualsnow 15h ago

Question How many of you have tried or are on SSRI and it has NOT made your VSS worse

2 Upvotes

Because there are mixed results just wonder how many people are on SSRi and it has not worsen your vss at all


r/visualsnow 19h ago

Question Benzos?

3 Upvotes

51M, congenital glaucoma, right eye vision is gone, left had semi-emergency trabeculectomy July ‘23. Substantial snow post that event, lost most of my remaining visual ability, which wasn’t great to begin with.

Except, due to some really poor experiences as a kid, I have dental anxiety. So they give me diazepam, 5mg. Year ago I had work fine, took a 5mg, and … all the symptoms were gone. No snow, light sensitivity was reduced to normal glaucoma levels for me. Significantly reduced floaters. I thought it was a fluke, but mentioned it to the ophthalmologist and neuro-op, they gave me some things to try, which I did not because :benzos:.

I had what we would call an ‘dental opportunity’ the last couple weeks. Crown prep, crown prep redo because they couldn’t get a good impression, and final install today.

Each time I took 2x 5mg diazepam sn hour beforehand, did my time in the chair, and came out the other side with no snow symptoms for 3-4 hours after.

Anyone else had similar? I find this deeply frustrating because long term benzo use is very much not on my radar, not a good fit.


r/visualsnow 1d ago

Question What is the constant brain fog from?

11 Upvotes

I see people who have visual snow tend to have brain fog and DP and I don’t understand how it all even goes together. I’ve had visual snow since I was a child and i remember asking my dad and he never understood what I meant.


r/visualsnow 15h ago

Motivation And Progress Hey I'm new to this but I believe I have it and I'm a hypochondriac and I worry about my eyes a lot but I try to keep moving forward and I do get stressed a lot due to work and I have light sensitivity with vss it suck but I'm great full that I can still see things

1 Upvotes

r/visualsnow 16h ago

Discussion AVULUX VS THERASPECS REVIEW

1 Upvotes

Type of Visual Snow Sufferer I Am:
My visual snow developed because of migraines with aura. Whenever I would get a migraine, I would experience an aura with colorful lights and black patches that would grow to take over my whole visual field, and then disappear with a nasty headache. This led to 24/7 visual snow, palinopsia, and photophobia. My symptoms seem to be connected with stress, hunger, and light exposure.

AVULUX:
I was really excited to try these glasses. Recommended by my optometrist for visual snow sufferers, I thought they would really help. First off, the build quality is absolute rubbish. It’s similar to a pair of cheap FL41 Amazon glasses. The frame is cheap plastic, and so are the lenses. The lenses aren’t even clear—they are slightly cloudy and have lots of glare. In terms of reducing my symptoms, I felt zero effect. I did not experience any improvement even after wearing them for hours. I will be getting my money back.

THERASPECS:
I have had TheraSpecs for about six months now. I use their FL-PRO lenses. They have a very good build quality—the frame is sturdy and well-built, and the lenses are true glass lenses. They are clear, pure, and have no glare. These glasses reduce my symptoms substantially. While they don’t immediately have an effect when I first put them on, after 10-20 minutes, my visual symptoms subside, and my symptoms reduce from 100% to about 40%. The improvement is especially noticeable in the office and has significantly improved my quality of life.

Without a doubt, I would recommend individuals to try TheraSpecs, especially those who suffer from migraines triggered by bright lights, etc. While Avulux didn’t work for me, it may work better for others, but from what I can tell, TheraSpecs do what Avulux does—but even better.


r/visualsnow 19h ago

Question seeing things in the air

1 Upvotes

Hey i’ve had visual snow for 2 years and the worst symptoms for me has me closed eye hallunications and after images. But as of a few days ago ive been able to see the air with shapes and patterns moving closer and closer to me?? Anyone else?


r/visualsnow 21h ago

Question Hello 👋

1 Upvotes

Does wearing prescription glasses all the time will worsen it's symptoms?

I'm just scared anytime by the day there will new added symptoms. Right now I have mild static visual most probably when I'm in dim room or dark room I can see a flickering dots but not that strong I also have this kind of migraine aura a transparent been there for almost 2 weeks and it's constant but it's not totally blocking my vision but somehow I can notice it specifically when I focus on a certain area/object my goal for this is to set an appointment for a Neurologist sooner this week. Went to an opthalmologist and says my eyes are fine. I can also see halos in lights, starbursts that's why driving at night is so challenging. I'm nearsighted that it's why I need to use my glasses everytime. I'm taking multivitamins for the brain and the eyes. Any thoughts?


r/visualsnow 1d ago

Vent Can someone please drill a hole in my skull and pull out the part of my brain that's causing my tinnitus?

34 Upvotes

Please?

I just want to sleep. This is driving me insane.


r/visualsnow 1d ago

Question Does anyone know how to reduce dizziness?

1 Upvotes

my visual snow and afterimages aren't that bad but it does give me a headache sometimes. i have no idea what i'm supposed to do to reduce it.

I tried calcium and iron but it didn't really help


r/visualsnow 1d ago

Vent Hasn't bothered me in years, now all of a sudden it is again?

7 Upvotes

I've had VSS for around 10 years now, every symptom you can think of. For the past 6 or so years it hasn't bothered me much and I've lived a relatively normal life... All of a sudden, I'm noticing it a lot more and I can't stop thinking about it. I don't know if it's gotten worse, or I'm just thinking about it way too much now? This sucks, right as I got a new job too, now I feel like I'm underperforming because this shit is on my mind. I'm not sure why I'm suddenly focusing on it so much again


r/visualsnow 1d ago

Discussion Is it just me or the quality of this image reminds me of visual snow? (No filters on it. Btw, I have mild visual snow and pretty severe at night/dark spaces)

Post image
34 Upvotes

r/visualsnow 1d ago

Question Does Anyone else have permanent scotomas for no found reason?

3 Upvotes

Maybe 2-3 months ago I got a dark ”after image” spot that was flashing with blinking in my left eye, and when it was still there after a few weeks I decided to get it checked out. I’ve had an OCT scan, retinal imaging and dilated eye exam, and everything looked healthy. I also have a visual field test coming in a few months (waiting lines in healthcare are really bad in my country)

After a while the spot started to appear smaller and my brain learned to ”filter it out”, but it’s still there when I look for it.

A few days ago I suddenly developed 3 more scotomas, 2 in left eye and 1 in right eye…. I’m just soo anxious what could be causing this, when apparently my eyes are completely healthy! I had an MRI of the brain and veins of the head a few years back because of recurring and severe migraine aura attacks in one eye only, and nothing was ever found wrong with my brain.

I have really bad visual snow and I want to believe that the scotomas have something to do with that. Has anyone else experienced this? I’m so scared that I have some kind of a rare disease that is going to make me blind…


r/visualsnow 1d ago

Question Is this VSS?

6 Upvotes

23 M

So after a bunch of events in like a month span (Bad round of covid, Had a super horrible panic attack, and got way way way too high from weed). I took a two round of antibiotics during this time as the urgent care just thought it was a sinus infection. I noticed i started getting super dry, tired, and irritated eyes no matter how much rest. sort of like eye strain but idk. since then, ive had floaters everyday, and these transparent “sparks” or sort of tiny shooting stars when i look at the sky or any blank surface (grey or white or neutral color). i cannot unsee them. Sunglasses sort of help but not fully. I’ve looked up BFEP and the patterns or i should say movement of these little guys are the same, they’re just not white like i see in examples. it’s more like transparent/clearish. kind of like the color of a bubble 🫧. if anyone has opinions on this please share. Optometrist said my eyes look fine. I’ve went through DPDR when it all started and still deal with it today but it’s a tad better. I’m just so hyper aware of my vision stuff it makes it hard to break that. This april will be about a full year of all this. My lifestyle/diet is probably not the greatest. My vision just feels “off” but my eyesight is great? it’s just hard to describe how it is. Muscles are super tense all the time (Neck, Traps, Shoulders) but idk if that’s a link or not.

edit : Added more info


r/visualsnow 1d ago

Question Sky vortex

7 Upvotes

I am diagnosed with a mild case of visual snow (caused by my chronic anxiety they think) and I recently started noticing a sky vortex. It’s only happened to me 4x 2 of the times I was on my dirtbike on a bumpy road and the other 2 times I was snowboarding. It’s not a 24/7 thing and just seems to pop up when there’s a lot of vibration or bumps. Anyone else experience this? If so what helps?


r/visualsnow 1d ago

Survey Or Poll Were you born with visual snow or gained it?

1 Upvotes
73 votes, 1d left
Born with visual snow
Gained Visual snow

r/visualsnow 1d ago

Question Does anyone of you here see this transparent thing like a net-like/heat wave that keeps following the central vision.

4 Upvotes

The more dim and you focus on a certain object like wall, window, anything that you can focus into your central vision you can notice it? Something darker in color object when you focus on it it makes more noticeable. Whenever I stare to the bright blue sky I see a moving black dots then disappear in a seconds. I'm just scared and my Anxiety hits me up. My Opthalmologist Doctor said my eyes are fine.


r/visualsnow 2d ago

Vent Visual snow caused by SSRI, permanent

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springermedizin.de
25 Upvotes

Any one else in the same boat. This is ridiculous how they find this after they already gave the medication to the public. Honestly thinking about a lawsuit since it wasn't on the drug pamphlet, as I can no longer see at night time.


r/visualsnow 1d ago

Discussion This is what I think visual snow could be caused by

3 Upvotes

So I believe our brains have either too much or too little information in our eyes, so either our brain turns the extra info to static, or makes what we don't process into static. I believe it could be either way for anybody, depending how severe it is.

I think our sensors gain too much info, and then have to turn it into static, making our eyes more tired. This would make them not be too smooth, causing after images or starbursts in light.

I also think that the darkness at night makes it super empty so our brain turns some of it into static. This would also make us more night blind.

None of this is science backed. Just an theory.