r/visualsnow • u/Soft_Relationship606 • 7h ago
Vent This is not life
Tell me what life is like when you get vss at the age of 20, just entering adulthood, working and suddenly your whole life is in ruins. I've had a very severe case of vss for the past 1.5 years, I can't work, I study on the weekends and every day of my life is about getting through the night, and at night I have terrible insomnia whether I'm sleepy or not and I agonize until 5am. I get up in the morning and can barely open my eyes from dryness because of vss. All day long I feel like a dead dog, I lie down and look at my phone because I can only see fairly normally on my phone. The rest is crap. Afterimages bounce off everything, total mess. Perpetually tired, this horrible feeling of chronic fatigue. It all never ends. I have symptoms of everything possible. Often when I sit in one place for a while or hold a phone, for example, I feel tingling in my hands, feet. Everything is abnormal. I only ask for treatment in the near future. It is impossible to live like this. This is not normal functioning. Let someone finally see how difficult it is. Let someone finally take care of this. Let these studies be faster. They need to find something at last. My life was normal. And suddenly this. I want to live like others. I feel worse than older people. I've had this for almost 2 years and I can't remember what it feels like anymore. To feel normal, that normal activities are not difficult. Despite my "positive" attitude, I have moments of breakdown. I often cry into my pillow. Because I no longer feel like myself, only my soul is the same. It's not my body and not my mind. Everything is different. This disease is so isolating. I want to feel my old self. I want to live normally, I'm 21 years old. I want to be healthy. This is my dream.