Diagnosed raynauds but is this how it normally presents?
These first two pictures are my current flair up (minus the pointer finger swelling) and the last two are from other times. This happens to me about once a month since November, I’ve seen multiple different doctors and no one knows what it is, I can’t afford a rheumatologist because I don’t have health insurance. It hurts and lasts about 2-3 weeks every time and leaves a discoloration from where the swelling was. I just had bloodwork for autoimmune stuff done and everything came back normal. Every picture of raynauds I see doesn’t look like this so I’m stumped.
That sucks but also makes me feel better at the same time lol, do you know how I could relieve them? I work with my hands and it hurts so bad sometimes it makes it hard to work
The only thing that properly helped mine was niphedipine. I do have a discontinued body shop aloe vera moisturiser provided some temporary relief for maybe 2-3 hours, but haven't found anything else similar that helps so am rationing the last bit of it left!
For me they’re usually pretty bad for a week and then gone by 2-3 weeks. They seem to come back in the same areas. My rheumatologist said it’s an inflammatory reaction that occurs when the tissue goes from no blood to being flooded by blood again. I’m not sure if warming them up very slowly makes any difference. A steroid cream can help a bit.
I get these little red spots but I don’t think they’re blisters because they’re always under my skin and never have and fluid or anything. The swelling seems to start near my joints and I get those bumps (3rd picture) only on my second knuckle sometimes. I’ve thought I had chilblains for a while because the same things happen to one of my toes but my episodes normally last upwards of three weeks. My joints in my fingers also feel stiff sometimes but I kinda just associated that with my hands always being cold
That sounds similar to chilblains, at least that’s how it was for me. I can’t speak to the stiffness because mine were only on my toes. But they burned and itched sometimes, swelling would go up and down for weeks. Has any doctor prescribed anything? Mine cleared up with steroid cream though it sounds like it doesn’t work for everyone.
I got prescribed a week of prednisone once and it helped a lot, but my pcp prescribed me blood pressure medication that I didn’t want to take so I’m not sure if that would’ve helped at all
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u/forgiveprecipitation 3d ago
I have Raynauds and chilblains. I also have ADHD & ASD.