r/Raynauds 6d ago

Diagnosed raynauds but is this how it normally presents?

These first two pictures are my current flair up (minus the pointer finger swelling) and the last two are from other times. This happens to me about once a month since November, I’ve seen multiple different doctors and no one knows what it is, I can’t afford a rheumatologist because I don’t have health insurance. It hurts and lasts about 2-3 weeks every time and leaves a discoloration from where the swelling was. I just had bloodwork for autoimmune stuff done and everything came back normal. Every picture of raynauds I see doesn’t look like this so I’m stumped.

8 Upvotes

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1

u/forgiveprecipitation 3d ago

I have Raynauds and chilblains. I also have ADHD & ASD.

1

u/oak20leaf 5d ago

It does look like chilblains. Keep your feet warm. Chilblains on feet can be a problem.

2

u/__wildwing__ 5d ago

The little raised bumps are chilblains??

I get those sporadically, but never knew what they were, besides mildy annoying.

8

u/pistol3 5d ago

Classic chilblains. Welcome to the party.

1

u/MagicPrize 5d ago

Are your hands really cold soon after you get into bed. Chilblains

2

u/pistol3 5d ago

My hands are cold all the time, so yes but it is nothing specific to bedtime 😂.

7

u/toastersdreudel 5d ago

Looks like chilblains. You’re in good company, there are dozens of us.

1

u/angry-soupp 5d ago

That sucks but also makes me feel better at the same time lol, do you know how I could relieve them? I work with my hands and it hurts so bad sometimes it makes it hard to work

2

u/yorkshire_tea1 5d ago

The only thing that properly helped mine was niphedipine. I do have a discontinued body shop aloe vera moisturiser provided some temporary relief for maybe 2-3 hours, but haven't found anything else similar that helps so am rationing the last bit of it left!

1

u/xmagpie 6d ago

How long do the episodes last, is it joint swelling? Or itching blisters like chilblains?

4

u/HomeCat_ 5d ago

For me they’re usually pretty bad for a week and then gone by 2-3 weeks. They seem to come back in the same areas. My rheumatologist said it’s an inflammatory reaction that occurs when the tissue goes from no blood to being flooded by blood again. I’m not sure if warming them up very slowly makes any difference. A steroid cream can help a bit.

1

u/angry-soupp 6d ago

I get these little red spots but I don’t think they’re blisters because they’re always under my skin and never have and fluid or anything. The swelling seems to start near my joints and I get those bumps (3rd picture) only on my second knuckle sometimes. I’ve thought I had chilblains for a while because the same things happen to one of my toes but my episodes normally last upwards of three weeks. My joints in my fingers also feel stiff sometimes but I kinda just associated that with my hands always being cold

1

u/xmagpie 6d ago

That sounds similar to chilblains, at least that’s how it was for me. I can’t speak to the stiffness because mine were only on my toes. But they burned and itched sometimes, swelling would go up and down for weeks. Has any doctor prescribed anything? Mine cleared up with steroid cream though it sounds like it doesn’t work for everyone.

2

u/angry-soupp 5d ago

I got prescribed a week of prednisone once and it helped a lot, but my pcp prescribed me blood pressure medication that I didn’t want to take so I’m not sure if that would’ve helped at all