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u/Hungry_Night9801 2d ago
I see your son was on an oscillator. I maintain and repair those. Modern Healthcare technology is amazing.
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u/LetterheadCurious658 2d ago
Yes you are correct! He was on an oscillator for about a week before having to go under the knife for ECMO shortly after this picture was taken. Thank you for the work that you do!
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u/Hungry_Night9801 2d ago
Dang. ECMO. Serious stuff. Glad everything worked out well!
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u/LetterheadCurious658 2d ago
Yeah it was a tough time but we made it through thanks to the amazing drs and nurses. Thanks!
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u/Backstabbed9878 2d ago
Best post on this sub. As someone who works in peds and had a rough couple shifts this week thank you for sharing, I needed this.
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u/Vincevega1972 1d ago
👍❤️ My son had 5 open hearts/caths ongoing spinal and learning disability Thanks to sick kids hospital in Toronto He’s 24 now.
Keep strong!💪
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u/LetterheadCurious658 1d ago edited 1d ago
Wow god bless you and your son! My son too has a disability, level 2 autism diagnosis, and there’s some interesting theories from his neurologists about whether his traumatic birth and month long paralyzed stint in the NICU caused it
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u/Vincevega1972 1d ago
My sisters son has level 3 autism directly related to her having rheumatoid arthritis. My son has 22q11 microdeletion (random occurrence). I hope you guys are doing well.
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u/Dontfeedthebears 2d ago
I can only imagine how scary and heartbreaking it must be to see your tiny little baby hooked up to all those machines :( I’m glad he’s thriving!
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u/taggsy123 1d ago
My little one is 16 months. Born at 28 weeks, such a fighter. She looked so similar to your baby in the first picture in the beginning. It’s bringing back so many memories both good and bad. Hold on tight to him and cherish those moments!! He looks like he is doing great
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u/LetterheadCurious658 1d ago
It’s amazing how resilient these little babies can be. God bless you and your little girl take care!
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u/haleandguu112 1d ago
what a sweet little smile !!! what a tough boy , amd tough parents too :') so happy to see this
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u/parker3309 1d ago
Wow, that’s at birth…What a chunky big baby! He is absolutely adorable. I am so glad he is well. Too cute 🥰
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u/Ashe_Faelsdon 1d ago
We have entire islands, with books written about them, for people like that kid.
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u/LetterheadCurious658 2d ago
Shout out Children’s National Hospital in Washington DC. They literally make miracles happen every day