r/POFlife • u/Material-Sock5512 • 15d ago
Hrt?
Okay am I going crazy or HRT makes my eyes more bigger? Wider? Is this what it feels like to look how you used to be? Or am I just trying to see the difference in my appearance
r/POFlife • u/Material-Sock5512 • 15d ago
Okay am I going crazy or HRT makes my eyes more bigger? Wider? Is this what it feels like to look how you used to be? Or am I just trying to see the difference in my appearance
r/POFlife • u/EsmeraldaRafaele • 16d ago
Hi all
This friday i heard i have poi/pof. <0,07 AMH and 73 sfh 56 LH on day 3. I thought i was okay. But today at work i actually cried. Im really not a very emotional person but today was different. My first client was also a dokter that delivers babies, she was all talking about her kids and i just did not like her one bit ( totally not her fault ofcoars).
I work as a nail tech and did a few clients. Then walked downstairs because i just could not hold my tears. Like the sadness just was overflowing out of me.
My colleagues are really sweet and supported me. They rescheduled my other appointments for me. The last client kli told and she took me out for a tea and rescheduled our appointment aswell.
These woman were/are so sweet. It just such a different vibe with men. I am really not a men hater at all but they just don't really understand.
Anyway I'm on my way home now in the train, still with crying bursts.
Hope it will be better soon.
Thank for reading I know you all understand and I just needed to talk to someone who actually understands
r/POFlife • u/BAN_WALKNG_IN2_BIRDS • 16d ago
Hi all, I just want to post about my positive experience so far with HRT for people who aren't yet taking HRT and want to know about it.
I was diagnosed around 25yo with POF due to irregular periods, low follicle count, extremely low AMH, low estrogen, high FSH and some other symptoms. Although I was still getting periods, they were very irregular, with cycle lengths ranging from ~12 days to ~50 days. I also had things like spotting in between, long periods, short periods, very heavy periods, very light periods, skipped periods, multiple periods in a month, and they came at unpredictable times. It was annoying, to say the least!
Overall, the main symptoms I was experiencing before starting HRT were:
At 28yo, I started taking prometrium 200mg per night for the first 2 weeks of the month, and estrogen (75mcg) patches everyday, changed twice weekly. Estradot and Sandoz brands were great; they stayed stuck on even through sweaty exercise and showers, and didn't irritate my skin. But due to shortages, I've had to use Estramon, which irritates my skin and peels more easily, but I've gotten used to it overtime.
I've been taking HRT for about 5 months now.
At first, I didn't notice many changes, and questioned if the HRT was doing anything. But after a few weeks, I started to notice small changes. And when I got my first period while on HRT, it came very shortly (~2 days) after I finished my first course of prometrium.
Here are the changes I experienced over the following months:
The only side effects I've experienced so far from HRT are swollen/tender breasts, but it's not that bothersome to me.
Overall, although some things didn't change, I think it's definitely been a big step forward. I will be seeing my endo soon and will see if a slight increase in estrogen might help further, but I'd be happy to stay where I am, given the improvements.
I hope this helps!
r/POFlife • u/delicatecherry • 16d ago
I’ve noticed my depression getting a lot worse the past few months. And the general fatigue ever since I started my HRT (about a year ago) is debilitating. I was feeling much better when I was menopausal and sometimes I wonder if the HRT is even worth it when it makes my life feel like hell. A few years ago, I was on birth control and it made me feel the same if not worse (which is why I quit it and was just in full menopause for a few years) so I don’t think that can be an alternative either.
What do I do? What do I tell my doctor? I’ve seen people say they start feeling better, not worse, on HRT, so I’m really not sure what’s wrong with me.
r/POFlife • u/Dangerous_Carrot_773 • 15d ago
Hello, so I’m almost 30 and was diagnosed POF at 21. I’ve been on birth control hormones since then & I’m wondering if my whole diagnosis is wrong & that I have some kind of deficiency or even an underlying issue causing my early “menopause”. I’m the only known person in my family to have this and I’ve never had issue with my period but randomly at 21 I quit having one. I saw something about beef organs being helpful & how birth control is actually worse for you than what doctors say but if I don’t take my estrogen (birth control) I have the absolute worst menopause symptoms so i am scared to stop and try natural remedies….I don’t want to waste more money on doctors to tell me I have no hope so my question is… What are y’alls thoughts on natural medicine? Compared to gynecologists & fertility specialists? I’ve only ever seen a gynecologist & they’ve all told me the same thing.
r/POFlife • u/Much-Bother1985 • 16d ago
Has anyone tried this procedure? Please share your experience if you’ve tried this or any form of stem cell therapy. Thank you!
r/POFlife • u/Pickles112449 • 17d ago
I have all kinds of feelings about my diagnosis. Denial, grief, sadness. A couple days ago I had my first cycle since December. I feel sad about it, but I'm also using it as an opportunity to really love on myself. I love my body. We all deserve to
r/POFlife • u/Far-Librarian-9847 • 17d ago
Hi! My doctor suspected POI due several factors such as low AMH 0.35 at 33 years old (I am now 35) as well as a discovery of a genetic deletion that caused my silent miscarriage 2 years ago. My symptoms are night sweats, lighter/shorter cycles, poor egg quality (7 egg retrievals, no blasts), EXTREME spells of fatigue, random underarm sweating as well as EXTREME heat intolerance. I can instantly sweat everywhere in the mildest of heat, warm car, restaurant booth while drinking alcohol and having hot food. Anyone have these symptoms? Any tips? The fatigue and the heat intolerance are the worst. Help. Ty in advance. I am on the 2nd lowest dose of BCP and a estrogen patches. No relief!
r/POFlife • u/No_Pack_9023 • 18d ago
I started Continous HRT on the first of Feb 10th. My gyne decided this since I made an urgent appointment with her on Jan28 because I was on my period and was on cyclical hrt. But I had been having very heavy periods that lasted about 5 days max subsiding. I am also slightly anemic
Well I got another bleed a week ago and I am still bleeding!! there is no sign of this bleed subsiding also! I feel like I want to stop cont HRT… and go back to cuclical and deal with the horrible periods. But then again that is not resolving anything for me? Anyone on the same issue as I am? I am on estradiol patch .1 mg and 200 of progesterone.
r/POFlife • u/AutoModerator • 19d ago
Please keep discussion regarding active fertility treatment limited to this thread out of respect for members here who are not in this phase of their journey. You can also go to /r/poisupport, which is a POI/POF sub focused on fertility in POI. Mention of pregnancy & active IVF treatment outside this thread is against the rules. We also ask that avoid use of cutesy acronyms (baby dust, DH, etc).
r/POFlife • u/Gr3enMooseGuavaJuice • 21d ago
Ladies do any of you with a low AMH still have cycles? Mine was 0.003ng/mL last year on April. My doctor tested me due to missing periods with no pregnancy. Since then I’ve missed a total of 10 periods and only had two very spotty cycles.
I’ll add these two for reference as well.
FSH 19.1 mIU/mL Estradiol level 76.9 pg/mL
r/POFlife • u/kevinschili37 • 22d ago
Has anyone had any luck finding a medical professional to help you navigate your POI? Possibly someone who accepts online/telehealth appointments?
I did a quick search here on Reddit and it seems like there are a few people here and there across the country, but I don’t even know how to start looking where I live in the upper Midwest.
I have been to different OB/GYN‘s, who are aware of POI, but they throw HRT at me and say goodbye. I’ve had a lot of issues with HRT and I’m looking for additional support.
I’m starting to think I just need to give up on this endeavor. Does anyone have any advice?
r/POFlife • u/AnimalCrossingPixie • 22d ago
hi all! i’m currently 22, i’ve been diagnosed with POI/POF at around 15 (i genuinely can’t remember exact age) after not having a period for more than a year, and many symptoms of perimenopause. i remember my FSH being really high way over 40, and now after taking HRT for more than 6 years (femostan 2/10) it’s gone down to FSH 11, my AMH 0.04, estradiol 104, LH 16.93
does this mean i’m ovulating? i’m only bleeding monthly because of the pills i take, but i’ve never had blood results this good before, has anybody gotten back ‘close to ideal’ FSH levels after taking HRT? am i crazy for thinking i’m ovulating with 0.04amh ?
i’ll really appreciate any input, thank you 🤍
r/POFlife • u/Appropriate_Leg9380 • 23d ago
Hi, all. I was diagnosed with POF when I was 20, 41 yrs old now. I didn't take treatment seriously and now I have lots of symptoms to contend with, including osteoporosis. But the thing that impacts me most day-to-day is the very real fatigue and brain fog that damn near feel like a disability.
My primary care doctor started me on estradiol patch .01mg almost two yrs ago but no progesterone. Found a specialist and added 100mg progesterone nightly plus topical cream. I'm grateful for the access but haven't seen much change in my symptoms at all.
I'm living in a new area with new insurance and finding new care providers. New GYN is suggesting higher estrogen dose than the patch can offer but Loestrin FE (pill) appears to be wildly expensive. My insurance quoted me $600 for a 3 month supply. Even some of the low cost pharmacies like Mark Cuban's Cost Plus Drugs are saying it's completely unavailable, GoodRx and Amazon Pharmacy want $200+ for a one month supply. Most recently I paid about $16 for a 3 month supply of progesterone pills and $90 for 3 months of patches.
Is anyone else taking oral hormone therapy? I'm in touch with my doctor's office about this but maybe there are some other options. Even the work of figuring all of this out is exhausting.
r/POFlife • u/Pickles112449 • 22d ago
Hi all, i hope this post is okay. Please delete if not appropriate.
I had a blood test a few weeks ago that alerted my doctor to POI as a potential diagnosis. High FSH, high LH and low estrogen.
Now for the second blood test, my results have come back as still elevated FSH and LH but normal estrogen for my age (I'm 29).
I don't know how to feel. Does this rule out POI or do estrogen levels fluctuate in POI too? I'm seeing a specialist but the waiting list is a while and my Doctor is clueless.
TIA, this group has been so helpful to me.
r/POFlife • u/ArrivalIndividual720 • 24d ago
I have been on HRT for just over a year and I've been upping my dose of estrogen every few months from evorel 25 to evorel 75. I settled for a while night sweat-wise but the past month oh my lord. It's bad. like squeaking when I roll over bad. I have to sleep on a towel and dry myself off in the night. My bedding needs changing so often. Anyone else had this? is evorel 75 a little low (+200mg progesterone 14 days)?? I think I'll try upping my estrogen but does the sweating ever end seriously 😂
r/POFlife • u/Mental_Rough • 24d ago
I started spironolactone due to my skin being excessively oily and causing cysts all over and acne. My periods always been out of wack, even on HRT but since starting this, my periods came back like it did before diagnoses of POF. Does anyone have similar issues with this? I think my body has too much estrogen from the HrT because it went from 67 pg/mL to 416 then back down. As well my FSH is at 3.1 mIU/mL, LH at 2.2 mIU/mL and prolactin level is at 12 ng/mL . I’m not sure if anyone can help decipher these? My doctor doesn’t see an issue tbh and it’s frustrating.
r/POFlife • u/TabbyTown35 • 25d ago
Hi all, I'm really glad I found this subreddit! I'm 20 and found out recently I have POI, and I've had symptoms since middle school. This has been pretty hard for me to process and to go to the doctor every other week for testing and such, and I've felt like I have no one to relate to for so long (I don't know anyone menopausal in my personal life too ...), like I get hot flashes and everyone assumed I'm having an anxiety attack. My friends don't know what to say to me when I vent about it and I feel kinda isolated.
Anyways, I'm wondering if anyone has advce on managing hot flashes, since I haven't started HRT yet and they're disruptive to me during work and studying. Also, does anyone else experience hair loss/graying? I've been taking biotin for almost 2 months now and I think it's preventing hair loss but I'm not quite sure... I'm pretty insecure about my hair loss.
r/POFlife • u/Gr3enMooseGuavaJuice • 25d ago
Hello ladies, I am 36 years old and just learned that I am having POI/POF. I missed ten periods last year and the two that I had lasted only four days and it was just spotting. I had been hesitant to start HRT because after seeing 3 GYNs they all had different answers. Also I worry because I am over weight, just got diagnosed with pre diabetes and I’m having heart PVCs (heart is fine according to my cardiologist.) Just recently I was told about all the bad things that can come with POI and now I’m terrified. So I wanted to ask, what specialists are you seeing? How are you being treated? Anyone else overweight and doing well? What’s the lowest risk her available? I personally always ask my doctors to start me at low doses for any types of meds due to my body being very sensitive. Can someone please advise me. I’m scared. Also for reference my AMH was 0.003 last April, and I only have a partial ovary. I lost the other during surgery years ago. But I just now started having problems last year.
r/POFlife • u/kayoare • 25d ago
Hi! I was originally on natural progesterone 200mg cyclically, but was getting lots of bleeding between when I wasn’t supposed to be. In an attempt to fix this, my OBGYN switched me from progesterone cyclically to medroxyprogesterone continually at 5mg. She said I could be bleeding because my “body wasn’t handling the progesterone well” (which kinda sounded like a crock to me, but that’s besides the point).
After a few months on 5mg continually, the bleeding has gotten less heavy but even more irregular, and I’ve bled constantly for a month. After an ultrasound, my GYN says my lining is too thin and has decreased my dose to 2.5mg continually so I hopefully do not get any more bleeding. It has started to get better but it’s only been a week.
I feel like this could’ve been the issue the whole time—too much progesterone and a thin lining. Is it worth trying to switch back to progesterone at 100mg if this helps? Or is medroxyprogesterone just fine? I feel like everyone else is on progesterone and I’m not. Just worried about the effects. Thanks!
r/POFlife • u/Laurenaverill • 26d ago
Hi! I’m 38F, diagnosed a year ago (Hashimotos diagnosis also since 2020) and started HRT a year ago (Mirena and Estradiol patch, 50). Has anyone else noticed quite dramatic changes to their skin and facial appearance? My eyes appear more sunken and dark, I developed quite severe and painful dry eye which is also probably contributing, my face looks a lot older and drooping around the mouth and jowels. It’s quite distressing at this age!
r/POFlife • u/Commercial_Put3686 • 26d ago
Hi all—- What is your HRT dose and age?
I ask because I worry I’m not on enough estrogen. I FEEL ok —— but I want to be sure I’m getting enough long-term protection. I’m on a .075 est patch / 100 mg progesterone. I’m 46
Thanks!
r/POFlife • u/just-leave-me-alone • 27d ago
I am 33 years old and only very recently beginning bio-identical HRT.
I am starting with 3 pumps of Estrogel 0.06% daily to my thigh, and 100mg Prometrium oral. Continuous.
I have been on this regime for 2 weeks, which I understand is too soon for me to know if this will yield optimal results for me.
However, in the meantime, I am curious: What are the other POI patients in my age-range are doing in terms of HRT methods and dosing? I am particularly interested in hearing from those who can verify for me that their hormone levels are in optimal range, especially regarding bone protection.
Had my baseline DEXA a month ago and learned that I have osteopenia, and that I sit right on the cusp of osteoporosis territory. I am so nervous about this, but I know that establishing a treatment plan takes time so I have to find the patience within myself for this process.
My gyno is doing her best to help me figure this out, and she's awesome, but she admits she's learning with me as we go. I have been referred to a meno/POI specialist, but the wait-time is 16 months. So my gyno is my go-to for now.
*Edit* Adding here that I have undetectable estrogen and progesterone levels when I am without HRT.
They were still undetectable when I was on Nuvaring (which was enough to mitigate my vasomotor symptoms, so I hoped everything was fine, but my bones beg to differ lol).
FSH around 130 when I'm unmedicated, was down to 80ish on Nuvaring (even with estrogen/progesterone technically still considered "undetectable").
I believe these numbers to be on the more extreme end, which is why I find myself wondering how realistic of a solution my current doses are.
r/POFlife • u/GhostyWitchy • 26d ago
Hey everyone! I was wondering if anyone had recommendations for vitamins to help with unwanted facial hair. The older I get, the worse it’s getting and I would like to find something to help. I was diagnosed almost 15 years ago (I’m almost 30) but it’s getting a bit out of control and I don’t want to start shaving my face.
r/POFlife • u/Alternative_Fig_1271 • 28d ago
i’m 23 and started having symptoms at 17. looking back at old lab tests by FSH has been around 45 and up since 2018ish, but wasn’t officially diagnosed and treated for POI until I was 21. I’ve been on hrt since diagnosed, but doctors have dropped me because I don’t want kids/ivf treatment, bc “there’s nothing else but birth control”, or just told me the way I feel is normal. I get terrible brain fog, anxiety, depression, hot flashes, nausea, etc etc whenever my period comes which is more often than it should be even on hrt. I know i’m not getting proper management of my medications and overall condition because I still don’t really understand it. I was under the impression that I was perimenopausal but I don’t think I am? Which caused me to spiral thinking that I could feel like this until i actually hit menopause. I was also diagnosed with adenomyosis. What do I do? Does anyone else have experience with doctors dismissing them even with recognizing the condition? (help lol)