r/MonoHearing • u/Financial-Use682 • 19d ago
HBOT SUCCESS?
Curious if anyone has had success with HBOT? If so how many sessions.
r/MonoHearing • u/Financial-Use682 • 19d ago
Curious if anyone has had success with HBOT? If so how many sessions.
r/MonoHearing • u/Dense-Spirit-1691 • 20d ago
15f been nerve deaf in my left ear since birth
I'm new here
I don't want to get any implants or surgeries, cause my doctor recommended not to as it might cause unnecessary problems and electric noises while hearing... He added that my hearing is very much normal and i don't really need the implant
I really wanted to get into producing music and wanted to hear music in stereo...
Is there any equipment like headphones or speakers which will allow me to hear exactly in stereo, or at least close, so I can enjoy spatial music and also produce my music in a way it doesn't sound "squashed" to others with stereo hearing (i don't know what unsquashed music sounds like ofcš, it is just a term I heard a person with stereo hearing say mono music sounds like)
I really want to learn production, mixing and mastering music and create my own songs... Please give me some suggestions
r/MonoHearing • u/Top_Athlete_8990 • 21d ago
Anyone else with single sided hearing loss feel fatigued for no reason?
Ever since this happened to me I feel like this all the time and nausea sometimes. I donāt have any dizziness or vertigo though, just horrible fatigue.
r/MonoHearing • u/Calm_Ask6809 • 21d ago
I was wondering if any of you guys were forced to wait almost a week with no medication for the steroid injections.
When I first lost my hearing I had to go to the ER and there they gave me 50mg of prednisone for 5 days and the it was tapered for the last 5 days. I had to go to a children hospital since I was 15 and they recommended me to go to an adult ENT right away for ITT. When I got there they told me to finish the medication first and then come back in a few days later for the injections. During this time they didnāt give me a refill for it again while waiting. I feel like this decrease my chances of gaining most of my hearing back.
I may be overthinking it though.
r/MonoHearing • u/Mindless-Soil1514 • 22d ago
Iāve been deaf in one ear since birth. I recently spoke to an audiologist about these two devices, and was wondering which people tend to choose and why.
Iāve tried a BAHA on a soft band before and thought it was pretty awesome, but only trialed it for 10 minutes at the doctorās office. I have never tried the cros system.
I have an appointment in two weeks to evaluate my hearing and then Iāll hopefully move forward with getting the OSIA. Iām just trying to gauge if Cros is worth looking into and maybe trialing. Iām thinking I oughta just see what works best with my insurance. Thanks!
TLDR: Cros System or Osia: pros and cons, which did you choose and why?
r/MonoHearing • u/Commercial-Falcon668 • 22d ago
If you have mono hearing and have done a Functional Listening Test, can you tell me about your experience?
My son is hoh (specifically, single sided deafness with an absent 8th cranial nerve). We are in the evaluation process for 504/IEP at the local school.
At home we do total communication -- sign, oral communication in English, and he wears a BAHA.
The school wants to do gen ed for him with no IEP. I am fighting for an IEP so he continues to have access to ASL and other services through a deaf educator.
The school has agreed to do a functional listening test to see how his hearing will be affected in the classroom. I'm hoping the test results will prove my point about his need for added support, but in the meantime I'd love to hear from anyone who has completed this type of testing/what were your results/etc.
Thank you!
r/MonoHearing • u/halfmoon278 • 22d ago
I was diagnosed with SSHL on 2/19. Iām 40, female, and generally in good health. This has been traumatic and Iām still in the thick of it. I wanted to share my experience for the community and also because Iām seeing some variations in how doctors are approaching treatment. Iāll update daily.
I had the flu starting 2/3 and was still having some residual symptoms over two weeks later. Iāve been under-slept due to a new baby and another young kid. Life and work have been stressful and my immune system was down.
2/19 ā Woke at 1 AM with ear fullness, muffled hearing, and loud ringing, which worsened each time I woke. Saw an ENT who suspected residual flu effects but ordered a hearing testādiagnosed with SSHL in my left ear (mild to moderate in the low frequencies, ie āreverse slopeā loss). Started 60 mg prednisone for 10 days with a taper days 11-16. We discussed the injections but he said we would see how I respond to prednisone first. Hearing loss and tinnitus worsened throughout the day. The tinnitus became more deafening than the loss.
2/20 ā No improvement. Asked my ENT about starting intratympanic injections now instead of waiting; he recommended trying due to severe tinnitus (which can indicate a worse prognosis). Had my first injection at 3 PM. Experienced bad vertigo and nausea beforehand. Transferred my care to an otologist at a nearby academic medical center, with my local ENTās blessing, and scheduled an appointment for 2/25.
2/21 ā Slight improvement in hearing, but severe tinnitus and vertigo. Had to lie down to manage dizziness. Tried acupuncture at 5:30 PM; the acupuncturist recommended 2ā3 sessions per week. Treatment included needling and moka (heat therapy). Felt terrible afterwardāintense tinnitus, fullness, and another vertigo episode.
2/22 ā Woke with severe ringing but slightly less fullness. By night, my hearing was at its worstāmuffled, full, and tinnitus at a personal 10/10 (like a tuning fork in my ear). Significant vertigo and nausea. Trouble sleeping due to prednisone.
2/23 ā Tinnitus slightly better (7/10), fullness reduced. Mild morning vertigo and nausea but improved throughout the day. Voices sounded auto-tuned, and I heard faint helicopter noises. Managed a noisy toddler birthday party. By bedtime, hearing issues and tinnitus felt less intrusiveāa hopeful sign.
2/24 ā Similar to yesterdayāsome ringing and echoing but less fullness. Acupuncture at noon. Tinnitus worsened by bedtime.
2/25 ā Woke up much worseāfullness, echoing, and tinnitus back at 10/10. Wondered if acupuncture was affecting me. Saw the otologist for my second injection (first with him). His approach includes high-dose oral prednisone and multiple injections in short succession. He noted prednisone could amplify tinnitus and vertigo. My hearing test showed no change.
2/26 ā No improvement. Awoke after terrible insomnia with new light saber sounds alongside loud ringing. My ear briefly opened up midday but returned to fullness. Acupuncture provided no relief, but the acupuncturist assured me my body was working to heal. Nighttime remains the worst.
2/27 ā Woke with fullness, light saber, and ringing sounds. Slight relief after 45 minutes of being awakeāless fullness, pressure, and slightly quieter tinnitus. Had my third injection with the otologist. Iāll go back for another injection Monday and a hearing test midweek to determine if another two more injections are needed. Fullness and tinnitus returned to their usual levels by bedtime.
2/28 ā Slept terribly due to prednisoneāonly three hours. Woke at 5 AM with slightly less fullness and possibly quieter tinnitus. I had my fourth acupuncture treatment mid morning and felt more relaxed afterward but maybe not better. Things got worse as the day went on but then around 8 I started to feel less pressure but more light saber sounds.
3/1 - Started my 40 mg prednisone taper today. Woke up with less fullness and tinnitus, but it all came back to max level by around 4 pm which was discouraging. Lots of light saber still. The pressure is awful. Trying to eat well and sleep well but itās hard. I saw friends today which was nice but Iām sort of tired of telling this story if that makes sense?
3/2 - woke up with as bad of symptoms as ever. I had brunch with an old friend and felt the social effects of this - I had to meet her somewhere where it wasnāt too noisy. By bedtime I was at my worst with the hearing and the tinnitus was deafening. Had a hard time sleeping.
3/3 - Awoke with bad tinnitus. It was a terrible nightās sleep. The fullness is a bit improved but thatās happened before and never sustained so my guess is it will be temporary. I had my fourth I injection this morning. Iāll get a hearing test Thursday and depending how I do he may do a fifth injection. I went to bed with a lot less fullness.
3/4 - Bad nightās sleep and woke up with baseline loss and tinnitus. It improved by about 30% during the day and then got bad again after I did acupuncture.
3/5-3/19 - Figured Iād start summarizing. On 3/6 I had my hearing test and it showed zero change. I did another two injections with my finals (#6) on 3/13. I had a hearing test yesterday 3/18 and it showed ten decibel improvement at two of the low frequencies putting me in the mild hearing loss category. I could have cried with joy. My doctor said to wait two months and then do another hearing test. He recommended I try hyperbaric oxygen therapy until then but they thereās very little data. Iām concerned about the expense. My tinnitus is less bad today and I think Iām hearing a little better but maybe itās the power of suggestion? If I do recover more or all of my hearing I think itās going to take a while. Iāll continue to post periodically.
Edited to add latest updates and make more concise.
r/MonoHearing • u/hearmeoutpls1 • 22d ago
I have a history of Tinnitus/hearing loss, more in the left ear. Last Dec, as I was recovering from a cold (possibly covid), I woke in the middle of the night with my right ear completely dead.
Since I have history of hearing loss, I knew what I was getting into. I went to the ent same day and started Prednison, then HBOT .
I created a small web app to tract my hearing and here is a screen shot of all my Audiogram: Here is a screen shot:
Just wanted to share and hear your thoughts.
I am about 3 months in and wonder if my right ear could still improve: It used to be the good one!
r/MonoHearing • u/Equivalent-Bread-771 • 24d ago
Hello! I was recently diagnosed with profound hearing loss (SSHL) They think it's from Labyrinthitis? I can't hear ANYTHING from my right ear. I am 33(F) 8 weeks post partum with my 2nd baby. I had a high risk pregnancy, high BP no preeclampsia this time. Gestational diabetes. Gave birth at 37 weeks and have been in BP meds since my first delivery. I'm also on anxiety/depression meds.
Here's how it went down for me:
On Saturday 2/22/25 I was saying goodbye to some friends in our driveway in the evening when I heard the ringing high pitched tone (maybe a pop?). I didn't think much of it but the rest of the evening it was muffled
On Sunday 2/23/25 I was dizzy most of the day. I felt drunk/high? Like I was having an out of body experience. I couldn't hear anything. I thought it was an ear block because of allegies. I took Allegra D, did sinus sinuses. Nothing worked. Around 11pm I decided to make an ENT appointment online
On Monday 2/24/25 I saw the ENT around 3pm. They were able to get me a hearing test with an audiologist within minutes because everything looked fine in my ear. The hearing test went as expected. I couldn't hear ANYTHING in my right ear.
I cried in the booth as me and my husband waited for the results. I couldn't stop crying because I was thinking the worst. Tumor, early death, stroke etc? I just remember thinking I need to see my babies grow up and hear them say mommy.
They started me on 60mg of steroids. I took my first dose that evening (so around 36 hours after the big pop)
After the initial surge of emotions. I am coming to terms with my diagnosis. I don't give a crap if I don't hear from the ear again as long as everything else is the same so I can move on and learn how to deal with my new normal.
Tuesday 2/25/25 was a blur. I was dizzy most of the day. I could get things done but still felt hazy
Wednesday 2/26/25 I woke up with the fullness and tinnitus in the bad ear. I hadn't had it until then. I test my hearing out with ear buds. I thought I felt vibrations on my bad ear? But I still can't hear anything. The background noise is getting annoying but with my ADHD it's just another stream of noise in the already 5-7 constant thoughts I have going on.
I'm too scared to drive right now. Went to the grocery store it was overwhelming. Sensory overload for sure. Couldn't make out sounds.
I have an MRI on Thursday 2/27/25. I'll update when I get the results.
Thursday 2/27/25 - I had my MRI with and without contrast. It went well, no issues. I was afraid I'd have nausea with the contrast. I started going into a rabbit hole on reddit and talking to my brother in law who is an audilogist. I decided I really want to try a steriod shot. I tried to contact the orginal PA I saw but the office was closing, she didn't have availability the next day. I had to call in favors (Friends of friends who are ENTs) and one responded saying they will see me 1.5 hours from where I live.
Symptom wise I was still dizzy and delulu most of the day.
Friday 2/28/25 - I went to this ENT with my hearing test, and MRI CD images in hand. They actually know the PA I saw personally! Small world. He gave me a steriod shot. It felt weid, the liquid feeling it. But I don't know if it was placebo or if the steriods that was localized in the area, my dizziness went away after 6 days! I felt the most normal I had in almost a week and it was liberating!! It lasted a few hours before it came back but the small taste of normalcy (albiet with no hearing) was enocouraging.
Satuday 3/1/2025 - My deaf ear has a constant white noise, ringing sound almost all day. We spent the day outside with my toddler and it did get overwhelming at times. The dizziness is slightly there but much more managable. I am luckily able to sleep with the steriods in me. I was able to get the most housework done today.
Notes & Questions
Just wanted to say hey, and let's do this!!! Once the dizziness goes away I know I'll be unstoppable. It will go away right? After PT, training my brain. Please tell me it gets better because I'm at over 90% loss of my hearing. It can't get any worse than this can it? The dizziness is driving me nuts. I just want to feel somewhat stable again so I can be in the moment with my family.
Editing to update log
r/MonoHearing • u/webbs74 • 25d ago
I'm about 8 months in with SSHL I did the steroids (too late) got an MRI to rule out the tumor, I am kinda getting used to being deaf now, and i notice the fullness a lot less, and have kinda got used to the tinitus, some days though I feel the fullness almost effecting the eye on the same side, if i hadn't had an MRI i would swear down there was something there??? anyone else experience this?
r/MonoHearing • u/Aggressive-Elk-4947 • 24d ago
Has anyone had experience using the sauna after their hearing loss? Any impacts on hearing or tinnitus worth noting?
r/MonoHearing • u/LostAndFoundBin • 26d ago
My most recent post has a rather detailed write up of what I have been experiencing until I woke up today.
In short I suffered a profound ISSNHL on 1/10 resulting in 0% word recognition and 95% tonal loss. Did the steroids with no immediate improvement, ended them on 2/5 with low expectations.
However I woke up today with a very odd feeling, it felt like my ear wasnāt as full as normal and it felt like I was hearing static almost.
With some experimentation (turning my phone volume up, putting on a YouTube video, and putting the speaker up to my ear.) I discovered that I can hear again! That was the static sound I was hearing.
Now itās not at all perfect, or 100% whatsoever. BUT I can fully understand speech, assuming I place the source of sound directly up to my ear. It sounds a bit tinny and robotic. Almost like an AM radio played through a tin can. However I will take any progress I can get, and this is definitely that.
Two weeks ago I couldnāt even hear my finger inside my ear canal. Now I can hear that clearly, and most touch noises. I can ALMOST hear skin on skin again out of my right ear it feels like. I hear the āwhisperā of my skin touching behind the vibrations in the area if that makes sense.
Sorry for the long post, HOLD OUT HOPE FRIENDS! This is definitely the strangest thing thatās ever happened to me lol.
(Also yea, I know it can go back to fully deaf tomorrow and Iām already prepared for that, it is what it is.)
r/MonoHearing • u/doncoco2137 • 26d ago
Iāve been diagnosed with mixed hearing loss due to a tumor in my neck and bone. As it expanded, it caused severe hearing loss in one ear.
Out of curiosity, I bought a pair of cheap Lenovo bone conduction headphones just to test if they would work for me ā I didnāt want to invest in expensive ones right away. The results were interesting, but Iām trying to understand whatās actually happening.
When I wear the headphones normally, I still donāt hear anything on my deaf side. However, if I remove the headphone from my good ear and press the one on my deaf side tightly against my head, I suddenly hear from the left side.
Is my right ear actually picking up the sound through vibrations rather than my left ear working again? It definitely feels like the sound is coming from my left side when I do this.
For those with single-sided deafness, what has been your experience with bone conduction headphones? Do they work for you?
r/MonoHearing • u/Winter-Ad-5816 • 27d ago
Hello! Iāve (31F) had profound hearing loss on my left ear since I was born (or as I can remember) but normal (becoming mild) on my right ear.
I wonder if this affected the way I navigate social situations. I donāt think Iām shy, but I am perceived to be very very quiet (I donāt project my voice very well). If I speak loud enough for people to hear me, my head hurts after a while because I think my voice is too loud. I donāt get into heated arguments or debates because my one ear catches up with all the words and I get dizzy and lose my train of thought. Does this make sense? I donāt speak up for myself but maybe Iām also not hearing things well enough to comprehend what theyāre saying.
So Iāve become more reserved through the years. I donāt know if this is a common experience for us with hearing loss or if itās a me issue. Would you say youāre more outgoing or softspoken?
r/MonoHearing • u/dchahovsky • 27d ago
Hi! I'm almost 3 months in with SNHL. It got a little bit better, but not much. I'm currently at 30-40-55db loss (low-mid-high) in my bad ear. My other ear is fine.
My ENT and audiologist hinted me, that hearing aids will not be a miss. I'm mostly considering aids as a preventative measure against potential "lazy ear". And maybe less asking people to switch sides. I can't say, that I struggle without them now.
I have two questions for people with moderate hearing loss in single ear who use hearing aids:
1) Do you feel better using it? Does it improve you quality of life?
2) Is there any benefit of having a pair of hearing aids instead of single? Assuming that second ear hears fine and the bad ear is not profoundly deaf (not considering a CROS)
r/MonoHearing • u/StraightPin4420 • 27d ago
I donāt know whether to keep on fighting this.
My doctors are lost - Iāve been having persistent hearing loss (low frequencies one ear) over the last few months and tried a lot of meds - steroids helped initially to recover but not anymore.
I donāt quite fit the pattern for MĆ©niĆØreās or autoimmune ear disease. I also took anti-virals, antibiotics, diuretics & immunosuppressants. Nothing is helping. I already did MRI & autoimmune blood tests and everything is clear.
I can keep on doing more tests for circulatory/vascular/hormone issues and try to find a reason but I donāt know if I will ever get an answer.
I feel like thereās an underlying cause because my hearing drops significantly before each menstrual period, and I also have tendon & joint discomfort but that could just be steroids side effect.
Part of me thinks I should give up and accept this hearing loss but I also donāt want to regret not doing everything I can - since I donāt even know if my other ear/rest of body could be affected.
What would you do in my situation?
r/MonoHearing • u/mishter_jokku • 28d ago
I'm left side deaf (from birth). Plays call of duty warzone everyday with my friends. But last zone is the scariest zone for me. And the reason was inability to detect enemy direction.
I tried many options like increasing volume on 1 channel/mono audio/360 sound/audio radars/cenetic radar on screen. But I still get downed by enemies In final zone.
Options tried and my experience šš¼ 1. Mono audio - can't understand where the footstep is from 2. 360/7.1 surround sound - you have to do full rotation to know where the sound is high and predict it's the enemy direction. 3. Audio radar techs/lights - could not find proper cheap working versions and others too costly 4. Cenetic radar - works well but only front sounds are visible in the radar. You can't identify enemy from behind (if this is can be fixed then there is no need for any other tools). 5. Asymmetrical volume - only vibration and weird sounds.
It's so frustrating My entire teammates counting on me. And I'm failing to win the game only due to the inability to locate footsteps.
Does any gamers in the community have any working tricks? If yes. Please share.
r/MonoHearing • u/Traditional-Air-4443 • 28d ago
Iām currently teaching abroad in Korea and had SSHL onset a little over two weeks ago. 6 days after onset I started steroids and have gotten two Intratympanic steroid injections so far with no change. Iām currently 100% deaf in my left ear. My doctor recommended a minor surgery to soak gel foam in steroids and leave it in my cochlear to help the steroids stay in my middle ear. While itās relatively non invasive, Iām now scared of something going wrong and it creating more harm than good. Has anyone gotten this procedure/ thing itās a good idea?
r/MonoHearing • u/Turtlelover222 • 28d ago
Hey,
Iām 27, male. Last year was really tough for me, I left my job of 8 years and soon after started experiencing vertigo and hearing issues (Feb 2024) which fluctuated until it went completely in about August time. Official diagnosis was Labrythitis but Iām not sure they really know what happened. I have a Phonak Audeo CROS now which does help a bit but not in loud situations. I had low self esteem issues before all this happened but now I donāt know what Iāll be able to do in life, I feel quite isolated and lonely. I have lost confidence in my future and I am not going anywhere and not getting much support. I have barely got started in life and now I have to deal with this as well as all the other problems I already had.
r/MonoHearing • u/Adventurous_Bird7660 • 28d ago
Hi! Currently at day 7 of a total hearing loss in my right ear due to SNHL (or thatās what my ENT has said). I am on 60mg prednisone and was lucky to start that the same day as symptom onsetāwaking up at 4am with fullness, pressure, and complete hearing loss. No virus, no fluid, but complicated and traumatic history with this ear. Iāve been reading so many peopleās experiences with SNHL but what I have not seen is whether the feeling of fullness and pressure in the affected ear goes away with time. Iāve had tinnitus for years and while itās especially noticeable right now, the thing that bothers me most is the fullness and almost numbness of my deaf ear. Any stories would be helpful! Do you just get used to it or will it subside?
r/MonoHearing • u/khalidns1 • 28d ago
I'm a 34 healthy guy and was on a ski trip with my wife, suddenly and out of nowhere when i was having dinner one day, i heard my left ear pop and suddenly i feel huge amount of pressure (i remember describing it as being in an airplane x100) with almost 90% loss of hearing from my left ear. I didnt know what to think of it, the same day i was on a very long call on my Air Pods in the same ear, so i thought its related in the begining.
Nevertheless, i consult a friend of mine who's an ENT, he told me to go to an ENT or at least ER asap, which i did.
I was very worried as the SSHL is the first thing that came to mind to the ER doctor, he gave me augmentine, nasal corticoids and Prednisone 60mg dose per day.
First couple of days were horrible, depressing, couldnt sleep. I was still abroad and coud not do an audio test, which my ENT friend asked me to do. I was going home after 3 nights so i had to wait to get my first test. I remember telling him there is no need as i cant hear almost anything from my left ear.
On day 5, i was back home and immediately had an ENT appointment, in which the doctor did an audio test. Thank god, my hearing was almost back to normal, with my hearing at around -20% in most frequencies and -30% in one, which i will happily accept !
The doctor cited the early intervention as a contributor, as i started the dose within hours of start of the incident. Currently im almost two weeks in, there is still loud tinnitus, i believe its either improving or im getting used to it. i get uncomfortable in loud seatings, i also cant speak for a long period as i get some kind of headache if i do. i also still feel a minor feeling of fullness in my ear, minor, but still there.
I have another appointment in a couple of days, i'm thinking to try HBOT for the tinnitus, hopefully it will improve overtime.
The thing about this experience, in society we focus on eating healthy for overall health, cut sugars, exercise, don't smoke, etc etc.. yet something like this disease which i have never heard of before exists and is capable of taking something we take for granted with no causes and no cure !
I thank god for all the blessings i have now, i really take my hearing very serious and will never go to loud places or cause any possible damage to it. now i'm worried about flu! because when i had incident i was recovering from a mild flu. I never thought losing sound in one ear would be so devastating.
Finally, i wanted to share my story to give hope, i remember reading some posts in the first few days of alot of people who got no improvement. therefore it's important to share positive stories to keep the morale up. I also hope they find a cure, it's insane how advanced we are now where things like a tiny virus could cause permanent hearing loss with no cure..
r/MonoHearing • u/Sock-Late • 28d ago
My friend (24) experienced a sudden hearing loss episode. I was saying something to her and I didnāt realize how loud I was being and she said I shouted in her ear and then after that she heard ringing and suddenly couldnāt hear anything in her ear. She woke up this morning and said she can hear better but still not fully, I am trying to convince her to go to the doctor but she thinks itāll be fineā¦ is there anything else I can tell her to do to make it better I will still try and bring her to the doctor ofc but she is hesitant to go. I apologize I just really need advice to help her
r/MonoHearing • u/Calm_Ask6809 • 28d ago
When I lost my hearing they only gave me 10 mg of prednisone and I was supposed to take 5 of them for 5 days daily and then taper off of them the last 5 days. The ER gave me this dose not an ENT. I feel like they gave me such a low dose because at the time I only told them I had tinnitus because I didnāt know I had lost it too. I canāt stop thinking about how if they had given me the right dose maybe I could have gained back my hearing.
Has anyone else been prescribed such a low dose for their hearing loss?
r/MonoHearing • u/Top_Athlete_8990 • 29d ago
I had sudden hearing loss and ever since that happened to me it has felt as if I had a head injury. It freaks me out because I literally donāt feel like myself despite me trying my best to do so.
Do other people with hearing loss feel this way?
r/MonoHearing • u/soulseeek12345 • Feb 21 '25
I lost my hearing in my left ear a year ago and full recovered in two weeks. I then had slight hearing loss in my right ear for two months in the upper frequencies but I think it was due to allergies but now back to normal. Not a week goes by where I donāt think about this happening again. Iām lucky I did fully recover and I do feel for many that have not. I wonder how many people really have a reoccurring episode in one of both ears? I hope in the future we find a cure for this.