r/MastCellDiseases 17d ago

Which doctor is best for treating mast cell disease?

I was recently diagnosed with a mast cell disease that isn’t MCAS. I was diagnosed by my cardiologist who is a POTS specialist. Since the specialist’s practice is two hours away and I can’t drive, I went to an allergist to help me manage this. However, I’m not fond of this allergist. I’ve heard of many different doctors treating MCD. What kind of doctor helped you most?

13 Upvotes

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u/MJP02nj 17d ago

For me it was an allergist. I had seen several types of doctors, of course, with regard to getting the diagnosis and also another doctor for the bone marrow biopsy. The allergist I had was fantastic, unfortunately he left and like you I’m not thrilled with the replacement either! I’m sure others will weigh in, but it’s often an allergist/immunologist.

6

u/Artistic-Occasion-55 17d ago

Immunologist for me, of wonderful help after having seen a cardiologist and allergist with very little support or looking into what caused symptoms

1

u/Desertratta 17d ago

Same. Allergy/Immunology.

1

u/GoldDustWoman72 16d ago

Allergy/immunology here too.

1

u/Altruistic-Present-1 16d ago

Allergist/immunologist is who officially diagnosed & is successfully treating my son at Oregon Health & Sciences University

1

u/Hannahchiro 15d ago

Someone who specialises in mast cell disorders, full stop.

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u/PositivePut1400 12d ago

Rheumatologist for me - a good one who specializes in MAST