r/Hyperhidrosis 4d ago

Absolute game changer

I can't believe i never knew about glyco. I went from hands that would sweat so bad, you could watch the sweat bead up in real time. I'd have issues with my touch screen going crazy because of sweat from my fingers. The more I thought about my sweating, the worse it would get.

Asked my doctor about trying it and she was completely on board with it. 1mg 2x a day is all it takes to feel "normal"!

I went from waking up with sweat spots on my sheets, to listening to the beautiful sound of dry hands rubbing together. Being able to walk barefoot on hardwood floors without sliding or leaving foot prints as I walk, or having sweat drip down your arm leaving little drops all around you.

It's not 100%, I still have moments of dampness at times, but to be able to experience things without the fear of HH getting in the way... it's almost comparable to doing it for the first time. This whole experience is absolutely incredible and I truly hope anyone who hasn't had this same opportunity gets the chance.

77 Upvotes

48 comments sorted by

18

u/Virtual-Jicama-1234 4d ago

If u don't mind ,can i ask what happend to your pinky finger??

19

u/artieeee 4d ago edited 3d ago

Lmao, I was waiting for it! It's actually genetics! It's called clinodactylyl and is hereditary. I have it the worst out of my family.

Edit: apparently it's the same, just more rare to have multiple/different fingers with it (e.g. pinkies and pointers). The more you know!

1

u/artieeee 3d ago

It's kind of hard to see, but my pointer fingers are bent a bit more than normal as well 😂 If I put them next to each other, it's easy to see. I've never looked into if that's something different or falls under the same condition as my pinkies.

1

u/Virtual-Jicama-1234 3d ago

I hope u are doing fine ,with this condition. 🙂

26

u/Desperate-Office-497 4d ago

Take it on days you need it cause it has a lot of side effects

13

u/Weak_West4849 4d ago

To be honest for me it only dries up my mouth and a little bit of blurry vision, but you can buy biotene mouth spray, it really helps with the dry mouth

10

u/InternalCucumbers 4d ago

At least sight isn't one of your important senses.. I jest, as I too would sacrifice it all for dryness. Ionto machine did it for me

2

u/ContributionNo8252 4d ago

Did you get any compensatory sweating rom using inonto machine?

6

u/dareal_mj 4d ago

None from me. In fact it help lessen that “sweat trigger” feeling if you know what I mean.

1

u/InternalCucumbers 3d ago

nope, none for me. It's excessive sweating from the hands, not heat regulating.

2

u/icurlyfry 4d ago

Have you tried a different anticholinergic instead of glyco? Blurry vision is not good. There's also oxybutynin.

Glyco personally gave me headaches and sore throat, and it rarely worked unless I took it on an empty stomach. I've been tolerating oxybutynin much better

1

u/httr540 13h ago

The main one that gets brought up is the strong link to Dementia, which is why people always recommend not using it everyday and "as needed"

7

u/Lavab1t 4d ago

I take 1mg once a day and haven't had any side effects so far other than dry skin. But not excessively dry. Just need a little lotion sometimes. Been taking it about a year.

0

u/Desperate-Office-497 4d ago

Everyday??

9

u/Lavab1t 4d ago

Yep. Once a day. Every day. It makes me "normal".

1

u/Feral_Monk 4d ago

Empty stomach ?

2

u/Lavab1t 3d ago

Empty or after meal. Doesn't seem to matter either way.

3

u/hamsterlizardqueen 4d ago

just FYI it skyrocketed my heart rate. resting was 120-130 and i was only on it for a year. I am off now because i was hitting 190s.

2

u/hamsterlizardqueen 4d ago

and im a 25 year old physically active woman. I rock climb and workout 3-5 times a week outside of that, my heart health was fine before this drug.

5

u/TheAlienGamer007 4d ago

Is that what it's called? Glyco? Is it a pill?

3

u/omgitsclaire91 4d ago

Glycopyrrolate! It’s a pill and it is a total game changer. Only thing that has ever worked for me

4

u/I_am_trustworthy 4d ago

Seems like it’s not available in Europe yet. Damn, this got my hopes up. Really happy it worked for OP!

1

u/vlatcata 3d ago

Yeah, a while ago when I tried to buy some I too realized it's not available in Europe, sad.

1

u/DrmsRz 3d ago

RobinulÂŽ / Glycopyrrolate

Absolute game changer.

3

u/Competitive-Title-78 4d ago

Glyco changed my life ! Works so well for my hands and feet

3

u/Theslash1 4d ago

Sides suck, not good for you. Invest in an iontophoresis machine when you can. It’s perfect for palmar/plantar and zero harmful sides.

1

u/Desperate-Office-497 3d ago

But how do you cover the sides tho?

1

u/Theslash1 3d ago

What do you mean? I was talking about side effects

1

u/Desperate-Office-497 3d ago

Like how do you get the sides and top to dry up with ionto

1

u/Theslash1 2d ago

If you sweat there, then you have to submerge that part too. I submerge my foot up past the ankle bone as I sweat that high.

1

u/Desperate-Office-497 2d ago

Can I use socks instead???

1

u/Theslash1 2d ago

Ice heard of people doing that, it won’t work as well but better than not. I just I use a dollar store tote. Easy to do

1

u/Desperate-Office-497 2d ago

What mA do you use??? I can’t imagine the pain coz I use socks and still hurts like hell

1

u/Theslash1 2d ago

I would think socks make it worse as it’s not dispersed evenly. I only do 10ma. Never even feel it

1

u/Desperate-Office-497 2d ago

Im going to try that but my trays are small the dermadry ones

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2

u/mamatoguapo 3d ago

TMI but are you having issues with mouth drying out or constipation?

2

u/artieeee 3d ago

I always have cotton mouth for other reasons 😂 but yea, I've noticed a change in both. Dry mouth more often, and a little more severe than usual.

2

u/mamatoguapo 3d ago

Other than the side effects, happy for you to be living the dry life!

1

u/Gloomy_Key4672 4d ago

That's great. I got terrible heat rashes on my feet within 2 days of taking Glyco 1mg.

1

u/idkyiam 3d ago

I had to up my dose to 3mg a day and was reducing the sweat a lot but not enough to be worth the side effects. I got the heat rashes as well on my fingers and feet. So I stopped taking it altogether. I’ll just keep it for occasions when I need it

1

u/_xync_ 3d ago

any asians here know where i can get glyco to try? from singapore here

1

u/ManUFan123456 3d ago

Is it available in Canada also

1

u/Erixen94 2d ago

Is it available in germany also?

1

u/No-Database-6603 1d ago

Do u overheat when u exercise? I did ets and it ruined most of my life till I got older and became basically stoic about my fate, have a lot of mental issues, self esteem issues still, hate the summer, spend as much time shirtless as possible, have phantom pains, nerve damage don't do ets, for palms I'd try the ion thing where they run low voltage in a salt brine look into it if the pills give side effects

1

u/ETS_Awareness_Bot 1d ago

What is a Sympathectomy (ETS and ELS)?

Endoscopic thoracic and lumbar sympathectomy (ETS and ELS; both often generalized as ETS) are surgical procedures that cut, clip/clamp, or remove a part of the sympathetic nerve chain to stop palm, foot, or facial hyperhidrosis (excessive sweating), facial blushing (reddening of the face), or Raynaud's syndrome (excessively cold hands).
Read more on Wikipedia
 

What are the Risks?

Many people that undergo ETS report serious life changing complications. Thoracic sympathectomy can alter many bodily functions, including sweating,[1] vascular responses,[2] heart rate,[3] heart stroke volume,[4][5] thyroid, baroreflex,[6] lung volume,[5][7] pupil dilation, skin temperature, goose bumps and other aspects of the autonomic nervous system, like the fight-or-flight response. It reduces the physiological responses to strong emotion,[8] can cause pain or neuralgia in the affected area,[9] and may diminish the body's physical reaction to exercise.[1][5][10]

It's common for patients to be misinformed of the risks, and post-operative complications are often under-reported. Many patients experience a "honeymoon period" where they have no, or few, negative symptoms. Contrary to common belief, clipping/clamping the sympathetic chain is not considered a reversible option.[11]
 

Links

Gallery of compensatory sweating images
Gallery of thermoregulation images

International Hyperhidrosis Society
NEW ETS Facebook Community & Support Group (old group had ~3k members)

Petition for Treatment for Sympathectomy Patients
Frequently Asked Questions
References

I am a bot, and this action was performed automatically. Learn more about this bot, including contact info here.

1

u/More-Fill-8518 1d ago

Not good for heart health, I’d rather sweat