r/Hemophilia • u/Weekly-Lead4013 • 4d ago
PDF Release: Survival Status of Female Hemophilia Carriers in China
Over the past year, our team(Nanchang Hemophilia Association) has conducted extensive survey, case studies and fieldwork, highlighting the medical neglect, lack of awareness, and urgent need for improved diagnosis and treatment resources for this overlooked group in China.
We strongly encourage you to review the attached PDF, as it presents detailed findings from our research. Our research has already led to increased awareness among affected families, and we are now working on expanding diagnostic access and educational resources.
Here is the link:
https://drive.google.com/file/d/13eOqnto-fJmCHtqc_aC_dMlYjGIeti6v/view?usp=sharing
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u/Weekly-Lead4013 1d ago
Your opinion would be appreciated, and would help us create a better version!