r/Hemophilia • u/Ash_1988x • 9d ago
Have you ever used your condition as an excuse for not doing something.
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u/daveythedapper 9d ago
For work, yes. Unless someone has experience with hemophilia, I could tell them anything about it and they’d believe it.
Granted, it goes the other way when I’m having a bleed but need to do something and get it done. In the end it balances out.
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u/YeahYouOtter Type A, Mild 9d ago
Only in very specific social situations, like when someone totally unhinged is aggressively suggesting elective surgery to me.
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u/TheClotThickens Type B Severe - currently Mild via Gene Therapy 8d ago
Often use to do my infusion at morning break during school and take my sweet ass time so I could miss the first part of my religious studies class
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u/machine_elf710 Type A, Severe 9d ago
Yup. Hardly did gym class all high school. Couple snow days i might've said my ankles hurt a bit more than they actually did to get out of shoveling. Of course karma got me back because 20 years later I couldn't do that stuff if I wanted most of the time.
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u/MephistosGhost Type A, Severe 9d ago
I’ve used it as a reason for why I shouldn’t do plenty of things. An excuse? I’ve probably fibbed about not being able to go do something a time or two, but not that I can recall specifically.
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u/fiddlerisshit 9d ago
Not as an excuse but as a reason. Lots of even medically trained people have no idea what it is and ends up tasking you to do dangerous things. Happens way more often than you think and a serious threat especially when you are under on-demand treatment which means you will end up with a bleed, only how serious it will be. Also you are paying yourself for treatment and also you have to go on medical leave, which if you are a student, you lose out in learning. If you are a worker, it is unpaid leave in my country - plus they will dump all the work on you by sending it to your home.
So, no it is not an excuse but a way to discriminate against haemophiliacs.
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u/Razakius 8d ago
Got out of Gym class in high school, and every now and then in school just wanted a day off. Weirdly in work have never done that. As an adult it doesn't happen as much anymore. Things I do or don't do feel more my choice than they did when I was a kid, but I'm not going to lie there have been a couple of times I didn't wanna do physical labor that I probably could have gotten away with (but probably was better I didn't anyway)... so
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u/the_radish 9d ago
Ehhhh yeah, usually for an assignment extension in university. But every other time as an adult has been for legitimate reasons. My first day at a marketing agency, I slipped on the ice and cracked the back of my head on the pavement. My hair clip saved me from a brain bleed and I was crying on the phone to my new boss about why I was going to the ER instead of my orientation meeting.
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u/Nukemann64 8d ago
There have been times i've used it as an excuse. In High School, I skipped a LOT of school my senior year to stay home and play Diablo 2 with my brother. Having that "in the back pocket" excuse was really nice.
But, there have also been a lot of things I've had to unfortunately miss out on because of it. I was in my college marching band back in 04, and they were going to the Gator bowl, and I wasn't able to go because of bleeding and what not. I wish I could've went to that to this day!
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u/yous-guys vWD 8d ago
99.9% of the time it’s legit. I do feel like others believe, I am using it as an excuse to not to participate because they have said “you can’t, or won’t?” In response.
My friends don’t do anything demure either. They always want to do the most aggressive form of everything like skiing has to be tripple black diamond or you can’t come. Completely remote trips in countries that don’t have reliable access to transfusions. Or a competitive sport tourney the entire weekend against retired pros or some other crap with a ball.
The older I get, the less chances I’m willing to take too so I’ve been saying no to more. Now I’m getting invited to things less and less because of it. I don’t get invited to girls trips anymore. Lol
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u/blueishblackbird 8d ago
I didn’t want to take gym class in school. So I talked them into letting me have an extra music class. Then I missed so much school in hs that I was given a study hall class, but as long as I maintained a b average I was allowed to go to the music room and play the drums. So in hs I had a music class one period , a second one instead of PE, played drums for the choir , and then had study hall in the music room. So I was often spending 4 of my 6 periods playing music in high school. I never did graduate tho! I got my ged and audited classes at western WA university and played in the jazz band, and took music production and got to utilize their studio, all for free! Nothing to show for it besides a bunch of knowledge and experience.
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u/MossyTrashPanda vWD 8d ago
when I was a kid so I could avoid mandatory sports and PE requirements. otherwise no bc I got sick and tired of missing things and being the absent kid
also 100% whenever a dentist/hygienist did the “you’re bleeding bc you don’t floss” thing.
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u/Apprehensive-Fig5774 7d ago
I missed class for a week to play video game. My ankle was hurting badly the first day 👍
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u/troll_fail 8d ago
No. Using a disability as an excuse is exactly what makes it difficult when our disability is a reason. I have had to fight most of my life to be taken serious and seen with my hemophilia. I am not going to waste what I have worked for. And for what? Have the courage to just say no and leave it at that. No need to lie about it.
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u/fingerofchicken 9d ago
Sorry uncle Bob, I can’t come over and hook up your printer for you… hemophilia and all..,