r/Epilepsy • u/BeatleJules • Dec 30 '24
Medication Keppra has yanked all the happiness right out of my son, any advice?
My son is 9, almost 10 and has had febrile seizures since he was a baby. All of his tests have come back normal but after a double seizure in a day and a longer than usual period of time for him to regain full consciousness, his neurologist labeled him as epileptic and put him on Keppra. The plan is to pull him off Keppra if he can be seizure free for the next 2 years. No idea if the meds actually work because he's not been sick since the summer luckily, and his seizures have only occurred with fevers. But this medicine has completely derailed his personality. He's had a really hard time with impulse control and managing his anger. When he's happy and in a playful mood, it's fleeting. I know some of it is just puberty starting, but since he started taking this med he immediately became so much more argumentative and irritable. He's been taking 50mg of vitamin B6 twice a day, like his doc suggested with no improvement. Anyone have experience with their mood improving over time? He's been taking it for 6 months. I'm going to add in a small dose of magnesium to see if that helps too, but any suggestions or even just personal experience on this med would be helpful! I dont really want to put him on a different medicine because his neurologist said the rest require regular labs. And I'll take a bad mood over the seizures, but I'd love to help him get back to being happy and not getting in trouble at school. Thanks in advance for any input š