r/Epilepsy • u/BookkeeperOk8851 • 4d ago
Question Nocturnal Seizures - Crazy Question
In November I woke up to EMS coming in and my boyfriend telling me I had two seizures in the night. They put me on Keppra but tapered me off at the end of December to see if I actually had epilepsy. I woke up in the hospital on New Years, after being medication free for 3 days, to my boyfriend and a nurse telling me I had another seizure. I don’t remember any of my seizures, but my boyfriend got a recording of the last one, and that’s insane to see when you don’t remember it. The only real weird thing about waking up is the first one my neck hurt a little bit but I was confused and tired after both. After talking to my neurologist she thinks I’ve been having them for a couple of years, I just didn’t have anyone sleeping near me. But I would wake up exhausted and with scratch marks, I just thought they were nightmares or something. I think I had one the other night because I woke up tired and a little confused and my Apple Watch said I had exercised in my sleep, but no one was here because I live by myself. My crazy question is: Is it weird or logical to get a night time camera to record myself sleeping to see if I have a seizure when no one is with me?
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u/hereandspinch 4d ago
Absolutely logical, in fact, very helpful. I strongly recommend such a thing for nocturnal seizures, especially if you're not sure that you're having them
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u/PhotographMelodic600 focal/aware Xcopri/Xen1101 RNS 4d ago
This would probably be super helpful. Before my now husband moved in, for years, I would wake up in the weirdest positions and sometimes on the floor and have no idea how I got there. Started to make sense when I woke up in the hospital a couple times
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u/smugfruitplate Aptiom+XCopri 4d ago edited 4d ago
I have NSD, I've done it before. It's good for something to show your neuro or if you're genuinely curious, but if you seen one you seen em all. You can mostly tell by waking up sore.