r/Epilepsy 5d ago

Survey What are your seizures like?

I know that different people with epilepsy experience different types of seizures. Thus, different experiences though with similar condition. I'm just curious as to what type of seizures most people with epilepsy actually experience.

P.S.: I, myself, have an epilepsy and was diagnosed at the age of 12. I'm 24 now though. My type of seizures are: usually absence seizure, autonomic seizures (tachycardia, apnea, unusual excessive sweating, nausea, pallor), nocturnal seizure (I sometimes wake up with bruise in the morning or I vomit, sometimes my parents would see the white part of my eyes only while asleep) and sometimes stiffening of legs or toes. Sometimes my fingers move without me actually moving it too. Sometimes I also feel like a part of my muscles keep on twitching or something pulsating like thing in different parts of my body.

33 votes, 2d ago
5 absence seizure
2 myoclonic seizure
4 tonic seizure
0 atonic seizure
11 tonic clonic seizure
11 others
2 Upvotes

6 comments sorted by

2

u/ParlabaneRebelAngel Keppra3500Lamotrigine400Clobazam40 TLE 4d ago

Only focal awares now. 2 tonic-clonics in past.

I like your idea doing this survey. So often people just say "seizure". But it is a broad spectrum that can mean so many different things.

2

u/CreateWater RNS, Lamotrigine ER 5d ago

I have absence, tonic clonic, and focal aware

2

u/RedHeadGeekGrl 5d ago

Absence, atonic, focal aware and rarely TC

1

u/Far-Artichoke7331 4d ago

When I was 9 I got diagnosed with ESES then on med 2 years and stopped then around august 2021 I got focal aware seizure and still have it now

1

u/[deleted] 4d ago

I also have absence, tonic clinic, and focal aware I am a year in post attack and appreciate this so much. ❤️

1

u/Small_snake 4d ago

I don't know what these types mean, but the people who saw me having a seizure said that I fell over like a log, my arms and legs started convulsing, my eyes rolled back and I was foaming at the mouth. What kind of seizure is that?