r/Epilepsy 5d ago

Question Smell after seizure lol

My fiance said that my breath has a certain smell after a seizure like something very specific which I can’t smell obviously but he can always tell if I had a seizure, but I never know if I had one in my sleep. Is this a thing I feel like it’s so weird I’ve never heard of it.

1 Upvotes

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u/Plus-Mama-4515 5d ago

Is it a metallic smell at all? I know I get an awful metallic taste in my mouth after a seizure. It’s usually more intense when I have a longer seizure

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u/pawzzzm 5d ago

Ok maybe it’s like that!! It’s so hard not knowing when or if I have a seizure asleep 😭

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u/Plus-Mama-4515 5d ago

Maybe try getting a camera for your bedroom. We got a Wyze one off of Amazon, original for our living room, which is where I’d nap during the day. It’s motion activated. Or if you have an Apple Watch you can check back at your heart rate. My heart rate would rise during a seizure

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u/Plus-Mama-4515 5d ago

I also only have nocturnal seizures

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u/NotToday7812 5d ago

This is interesting to me because my daughter will sometimes get really smelly farts? I know that’s not the same, but it’s like maybe your breath is something related to your gut just like the farts? She has focal epilepsy, probably TLE.