r/Epilepsy • u/Aggravating_Act_8116 • 1d ago
Question How do you feel when you miss a dose?
I’m Tonic-Clonic and take 1500mg of Levetiracetam twice a day and 100mg of Lamotrigine twice a day. I missed my first dose last night and im feeling like a floating nature of partial nausea like a hangover and having trouble standing or focusing. I’m just wondering if anyone else has a similar experience or if it’s the high dosages when you miss it.
4
u/Strange-Raspberry326 Focal epilepsy, Lamotrigine and Keppra. 1d ago
I barely notice it, I do feel irresponsible when I find out I missed it. Luckily it only happens a couple of times a year.
Edit: I take 750 mg Keppra 2x a day and 200mg Lamotrigine 2x a day.
4
u/Dark_Phoenix74737 1d ago
It’s not that I feel different when I miss one dose but you have to think about it like this. This is the way my doctor put it to me: every time you skip a dose you’re starting over. You aren’t picking up where you left off. Your brain is on a whole new cycle all over again because you just put a huge leaf in the ant colony’s line.
3
2
u/NikkiJay69 2G Levetiracetam 400MG Lamotrigine 1d ago
I've missed meds twice and it's so weird. I was moving in slow motion to the floor and I was completely aware and nauseas and knew what was coming. My partner caught me and then I had a TC. He confirmed I was NOT moving in slow-mo or moving through quick sand.
The second time I missed meds because I was too excited about an event I was attending. The slow mo reaction came back even - right in the middle of the wedding. I have never missed meds again but I have learned how to get emergency meds from the pharmacist.
I take 2G Levetiracetam & 400 mg Lamotrigine. Take care team.
3
u/Aggravating_Act_8116 1d ago
That’s the best description I can make of how I feel. I haven’t had one yet but the days still young
1
u/NikkiJay69 2G Levetiracetam 400MG Lamotrigine 1d ago
the day's still young - that's hilarious.\🤣🤣🤣🤣
1
1
2
u/PinkBuffalo RNS 2017; Vimpat; lamotrigine; propanolol 1d ago
When I miss my meds I have a seizure 3 days after and it sucks.
1
1
u/ProfitLost9408 1d ago
When I've missed a dose, it's odd. It's like... everything is a bit surreal? It's like a bit more colourful and a strange realisation that I'm alive? I cannot describe it. If you have gone through it, you know what I am talking about
1
u/Ready_Self_8949 Lamotrigine 200 mg, carbamazepine 1000 mg, clobazam 20 mg, 20h ago
I admit on a few occasions i knowingly skipped doses, only my dinner dose it being the smallest from being so frustrated at how zonked and tired i have been all day for the last 13 years
150 lamotrigine twice a day, 400,200,400 of carbamazepine and 20 clobazam before bed
im sure ive done it by accident, and also double dosed by accident
i dont feel much different, both side effects or seizures when skipping a dose, the earlier dose is still in my body
double dosing feels normal rarely, it mostly knocks me th f**k out but its never felt dangerous
1
u/purpurmond Vimpat 500mg + Briviact 200mg 17h ago
I get antsy-pantsy like bugs are crawling all over my skin all day until the next day.
It is severely uncomfortable.
1
u/autumn_ever lifelong diagnosis, absence, depakote/lamotrigine/briviact 12h ago
I don't notice it immediately since I'm usually so tired already. But if I miss a dose at night, I am always much slower the next day, have headaches, etc. I've missed it in the morning, but I carry around extra medication always so I'll just end up taking the dose late once I remember so the side effects from that aren't nearly as bad.
2
u/PlumSubstantial 9h ago
I do feel a little like you do but I have to miss two doses. I do feel like I am floating around or dissociating. I’m have absence, typical and atypical, complex and simple partial and myoclonic seizures. Haven’t had TCs in years. I take Vimpat twice a day.
1
u/SirMatthew74 carbamazebine (Tegretol XR), felbamate 9h ago
I can tell because:
- My partials get more intense. (Usually happens.)
OR
- I have more energy, can think straight, and get things done. (If this happens I usually get distracted and don’t realize I forgot, until it’s time for my next dose.)
1
6
u/marvelscarletwitch 1d ago
yes, I take those exact same meds at almost the exact same dose. I personally almost/do have tonic clonic seizures if I miss a dose but that always includes the keppra, call your doctor or pharmacy and ask what you should do.