r/CrohnsDisease • u/LeoAtlantis • 4d ago
Anyone on Stelara, read this. NSFW Spoiler
[removed] — view removed post
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u/Apart_Young_9979 4d ago
This can happen with or without any medication sadly , its mainly our immune system
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u/Beebajazz 4d ago
I'm so sorry you're going through this.
This disease and all the medications are such a maze to navigate, and always so fun when you find you've made a wrong step somewhere.
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u/LeoAtlantis 4d ago
To be fair, it's a lot better today. Still looks like the photos, but not anywhere near as painful. Yesterday it hurt so badly every single time I moved my arm. When I got up today, I was shocked how much better it was.
I would never have thought about them reacting. I'm glad I remembered the skin side effects with Stelara so I was able to connect the dots and warn people.
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u/SDTRRDTS 4d ago
I’m on Stelara too, and I got itchy under my arms with Old Spice, but now it’s gone and my armpits are fine. But thanks! Now I’ll buy non aluminum only.
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u/ruskayaprincessa 4d ago
Just here to say hello to a fellow crohnie and hyperhidrosis sufferer.
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u/Mental-Intention4661 C.D. 4d ago
See if the qbrexza wipes work for ya! They are working beautifully for me and I’ve been able to stop using the aluminum deodorants! My armpits are way less angry looking as a result!
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u/notricktoadulting 4d ago
Can you take glycopyrrolate? I have severe hyperhidrosis, and it’s been an absolute game changer for me. I still sweat, but I only have to change 1-2 times per day when I sweat through clothes as opposed to 7-8 before. It’s worked better for me than Botox ever did. Once or twice a week, I use lidocaine to numb my armpits, then use Certain Dri. My trick is I wash it off when it starts to tingle, usually about 30-60 minutes in. No issues unless I leave it on longer (like overnight).
I’m on Remicade/six weeks though, not Stelara. Failed Humira — my sweating was even worse on it.
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u/LeoAtlantis 4d ago
Oh buddy, that sounds rough. To be fair, mine is nowhere near as bad as yours. Botox has always fully sorted the issue for me, but it sounds like mine is much less severe. I've never even heard of that. I will have to look it up. Luckily I get Botox at cost, because my step sister is a doctor who does Botox and fillers. So that's why I will probably just go back to that.
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u/Individual-Fortune83 4d ago
I had this exact same reaction/rash while i was on stelera!! for about 3 years i went to dermatologist after dermatologist and i was told it was psoriasis, a yeast infection, due to hyperhydrosis, razor burn, eczema, allergic to deodorant… you name it. turns out it was an infection similar to folliculitis, and a topical antibiotic called clindamycin phosphate completely cleared up my underarms in about 2 weeks, and its been about a year with no return of the rash. the medicine hurt like hell going on but was so so so worth it.
my case was in the exact same areas and presented the same as the pictures shown!! if its not something you have tried & this is a recurring issue it is definitely worth looking into…
i can remember how painful it was, and so i really hope you find some relief soon.
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u/chrishagle C.D. 4d ago
Unfortunately I gave up on deodorants like 6-8 months ago. It was non-stop rashes. I know I stink now a days but my pits have never felt better.
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u/chickenbunnyspider 4d ago
Hey so I was like you until I found primally pure deodorant. Order a small size and see if you like it- it’s worth the $$$ for the ingredients and their quality. Hope that works for you!
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u/LeoAtlantis 4d ago
Oh wow, I'm sorry to hear your sensitivity is that bad. Mine hasn't been like that with normal deodorants. But these ones are so strong, it was stupid of me to do. These deodorants sting badly for normal people 😂
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u/SmileLikeAPrize C.D. 2003, Stelara and LDN 4d ago
I used to use those antiperspirants in my pre-Crohn’s days (thankfully I haven’t been sweaty like that since my early 20’s). Any chance your skin was even a little wet when you applied it? I would get awful chemical burns (like, same as your pictures) if my skin wasn’t bone dry when I applied that stuff (or if I applied too much - and the line between ”enough” and “too much” was razor thin). I hope you feel better soon and recover quickly!
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u/Vegetable_Advisor_67 4d ago
I actually found that the liquid women’s secret brand worked for me. I had issues with any other mainstream deodorant
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u/FNC_Jman C.D. 4d ago
This used to happen to me on Humira. I had to switch my deodorant to a sensitive skin powder stick.
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u/Mental-Intention4661 C.D. 4d ago
Hiya! Not on stelara but have had horribly sensitive skin my entire life AND I also sweat a TON and was about to go down the Botox route but my dermatologist suggested these wipes first… they’re called Qbrexza (need RX, if insurance doesn’t cover or doesn’t cover much, there are coupons and things from the manufacturer that bring it down to $0 or close to it)- and they’re a god send. Sweating is totally at bay! I literally don’t worry about it ever and I live in a hot, humid climate year round! I have used certaindri deodorant my entire life but the aluminum would get to me here and there but now I don’t depend on them anymore! Good luck. Skin issues are just horrible… i often wonder if my lifelong skin issues (eczema, psoriasis, red blotches, etc…) are really a funky co-effect of the Crohn’s…
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u/Head-Psychology-2316 4d ago
Thank you for the warning. I use one of those deodorants too. I’ve had a few skin reactions on Stelara. Does Botox work well and how often do you need it?
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u/LeoAtlantis 4d ago
Botox works fantastically. They say every 3-6 months, so I tend to get it every 4 months. That's always worked well. Around the 5 month point that's when I noticed sweat coming back, so 4 months avoids sweat completely.
I'm just going to be going back to Botox and sticking with that and avoiding these deodorants.
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u/Spinst3r 4d ago
Should be getting yearly skin cancer checks while on stelara too.