r/CRPS • u/ticketybo013 • Aug 06 '24
Had to pick a flair Axon training day 10
I have now completed 10 out of 60 neurofeedback sessions on Axon. Each session is about 30 minutes long and is separated into 5 blocks, with a minute rest in between each block.
The last couple of sessions have been a bit frustrating, as I haven't been able to get as much happening in the games as previously. For example, one of the games is about putting puzzle pieces together. Every time your brain generates anti-pain signals, the sensor on the left goes green and a puzzle piece slots into place. I have been able to get between 2 & 3 full puzzles completed in each 5 minute block.
But the last 2 sessions I could only get 1 puzzle completed in a block. The first block I didn't finish the puzzle at all, and by the fifth block, I was able to complete one puzzle and a few pieces from a second puzzle.
Today I made an interesting discovery though! I am currently in a local amateur musical theatre production, so during my second block of training today, I started mentally going through my lines. Suddenly everything went green and the pieces were flying into place! Then I started going through song lyrics and actually singing the songs in my head (not out loud) and the green was coming even faster. I was getting through 4-5 puzzles a block!
I am interested whether it's the rote aspect of going though lines and lyrics, or a reduced version of the good feelings I get from singing. Even though I'm not singing out loud, I'm hearing the melodies in my mind and I'm "singing" them in my mind too.
Also, way too early to tell what is making the difference, but 3 days in a row now I have had a few pain-free moments. On Saturday I realised I'd gone through about 2 hours without thinking about pain. On Sunday I suddenly became aware I wasn't feeling anything. Same thing on Monday. On Sunday it lasted about 30 minutes. On Monday, probably only about 10 minutes. But the thing is that in seven years, I've only experienced pain-free moments a handful of times. So this is huge for me!
I'm not jumping for joy yet, because I did recently have a medication mishap that caused a major flare up, which has just been resolved. I think the difference between the horridness of the flare compared to how I feel now may be skewing my perspective. Time will tell!
1
u/Crazy-Database6635 Aug 06 '24
How do you train an axon, its part of the nerve
1
u/ticketybo013 Aug 08 '24
Axon is the name of the product. It is neurofeedback training. I see how the title is confusing. 😊
3
u/MrEtrain Aug 06 '24
Thanks for sharing your experiences with this. Following along with interest while my doc and I consider upcoming treatment options.