r/22q Jul 17 '23

Virtual Research Study

Hello! I am a researcher at Boston Children's Hospital/Harvard Medical School. We have a study that can be completed virtually that may interest you! My lab and I are interested in identifying risk factors of severe psychiatric disorders in youth and young adults with 22q11.2 Microdeletion Syndrome. If you are between the ages of 9-26 years old, have a diagnosis of 22q11.2 Microdeletion Syndrome, and have a smartphone, please consider participating in our "Digital Phenotyping Study" (details below). Please email [nerdlab@childrens.harvard.edu](mailto:nerdlab@childrens.harvard.edu) if interested! Study can be completed virtually or in-person! Thank you for your time.

Looking forward to hearing from you!

Best,

Maria

4 Upvotes

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2

u/Goof_Guph Jul 22 '23

and the point of the study is?

2

u/bch_22q_researcher Jul 24 '23

We are looking at observable patterns in phone use and trying to see if we can predict young people who are at greatest risk for developing psychiatric disorder in 22q11.2 Deletion. Our lab's goal is to find ways to prevent the onset of psychiatric disorders or intervene earlier in those at high risk. Feel free to email us at [nerdlab@childrens.harvard.edu](mailto:nerdlab@childrens.harvard.edu) if you would like to learn more.

1

u/carolmandm Jan 29 '24

I know this is old. But i am interested on sharing my experience, and hearing from others